SoyBoy

Thank you. I will look this up and see if the systems match what I am dealing with. I have never heard of B100. Vits have helped me with everything, could be exactly what I need.

B100 is a mix of all of the b vitamins. The "100" refers to the amount (milligrams or micrograms depending on the vitamin) of each of the components.

http://www.livestrong.com/article/401283-benefits-of-vitamin-b100-complex/

Just wanted to share something I stumbled on for anyone dealing with sensative scalp issues. I don't have dandruff but my scalp had been burning from (what I thought was) an incident with hairspray that didn't go away once I tossed the can. I had small sores on my scalp and around my neck where my hair touches my skin. So I tried a medicated shampoo for dandruff and I am finally getting some relief!

Seborrheic dermatitis???

Mine was greatly reduced last year(~90% better) after 20 years. My best guess is that the improvement lines up with taking a B100 complex daily.

I had seen some improvement using medicated shampoos or rinsing my scalp with salt water.

I apologize if we are talking about two different conditions.

I have no help on the ingredients you are looking for. However, I would say that it is best to avoid companies that are not open with potential allergens.

The liberal use of soy milk and the lack of allergen information (for their drinks) online keeps me out of Starbucks. Their main Canadian competitor is much more open about potential allergens, and they get my business.

well you're the first person i've heard from that also has morning episodes. this only started for me in the last few weeks and i can't for the life of me think of what changed. In the past these blood sugar issues have always been linked to gluten, so i hope i'm not still getting cc'ed somewhere because i sure don't know where at this point! i don't even take any vitamins right now or meds while i'm trying to figure out all gluten sources (i drink green smoothies for natural vitamins for now). i'm beginning to realize i need to check for other intolerances! i love corn. i hope its not that...

I would say you are on the right track here. Tracking meals or snacks from the night before may show something.

When I initially went soy free, I was just avoiding the things that would give me an (near) immediate reaction (soy sauce, protein, etc.). I felt much better, but I was having delayed (minor) reactions on the way to work in the AM. Since eliminating all other sources of soy (and correcting a couple of other intolerances), the morning issues went away.

Best of luck.

Thanks for your thoughts!

I am supplementing with B12 and D3 - that's it. My doctor did not check my B12 & Folate levels until I was already supplementing for about a month. So, I'm not sure if I was low in that department - probably though.

Is it safe to assume that if it is nerve damage from many years of malabsorbtion, it will resolve itself if I keep supplementing & living gluten free? I'd imagine so, but... ?

If it is nerve damage from malabsorbtion, it will resolve itself with supplementation as long as the damage isn't too extensive.

Ravenwoodglass mentions the numbness / tingling in the extremeties that comes with low B12. This is true and typical, however, I can tell you from personal experience that the nerve damage caused by malabsorbtion is not limited to the hands and feet. I had low B12 which caused nerve damage that extended from my lower back and wrapped around to my lower right rib cage. After supplementing with B12, the pain lessened significantly. I still have some very mild (not noticeable unless I press on the right area) pain in the same location almost two years later. However, please note that I let my pain go on for way too long (3 years +).

To add to the point that nerve damage is not limited to the extremeties, I also have residual nerve damage in the neck at the base of my skull.

Best of luck.

I take it from your high B12 and folate that you are supplementing. Is this correct? If so, I assume you were low at one point. If you were, could this possibly be nerve damage from low B12 and / or folate?

Never had an abnormal test for inflammation...yet I have lost three pant sizes with only 8-10 pounds of weight loss since starting elimination diet three months ago. I have shrunk everywhere...it is now completely obvious to all that I had inflammation in every part of my body.

Interesting. I had a similar experience. I had multiple signs (visible to my doctor) of inflammation, yet my numbers were "the best #s I have ever seen" according to my Dr. She was perplexed, but did not investigate further.

Ice on the lower back helped with the pain for me (sciatica and general mid / lower back pain).

Once I was able to, I started to slowly ramp up an excercise / stretching program.

In January, I will be 2 years back-pain free.

Good luck.

I checked the ice cream for soy ingredients, but as it had dairy that gave me symptoms, I don't see how that's an issue since I don't eat dairy anymore.

also, my diet is 100% MSG free right now just because of happenstance. I think the only msg I ever really got was at gluten-free restaurants or possibly in broths or something. I should change my signature maybe.

Were mono / diglycerides in the ingredient list of your ice cream?

Huh? MSG is usually manufactured with bacterial fermentation. Hydrolyzed soy protein always contains MSG but nothing I've ever read suggests that MSG always contains soy.

Protein-rich foods take a fair amount of stomach acid and enzymes to digest properly. Getting your acid checked sounds sensible.

I did not state that MSG always contains soy. However, MSG could possibly be a source of soy. As a celiac, you know well enough that "usually manufactured" just isn't good enough.

Source (Health canada Website)...

http://www.hc-sc.gc.ca/fn-an/securit/allerg/fa-aa/allergen_soy-soja-eng.php

Possible sources of soy

Note: Avoid all food and products that contain soy in the ingredient list, e.g., soy cheese.

Baby formulas

Baked goods and baking mixes, e.g., breads, cookies, cake mixes, doughnuts, pancakes

Bean sprouts

Beverage mixes, e.g., hot chocolate, lemonade

Bread crumbs, cereals, crackers

Breaded foods, chili, pastas, stews, taco filling, tamales

Canned tuna/minced hams

Chewing gum

Cooking spray, margarine, vegetable shortening, vegetable oil

Diet drinks, imitation milk

Dressings, gravies, marinades

Frozen desserts

Hydrolyzed plant protein (HPP), hydrolyzed soy protein (HSP), hydrolyzed vegetable protein (HVP)

Lecithin

Monosodium glutamate (MSG) (may contain hydrolyzed protein)

You mentioned that you ate ice cream about a month ago. Which brand / flavor was it?

In your signature you mention that you are attempting to avoid MSG. If you were completely soy-free, MSG consumption would not be an option.

Strawberry,

I think eliminating nuts is wise.

Could you post your "banned ingredients" list for soya? I see a couple of items in your post that seem to indicate that your list of soya-containing ingredients is not complete.

Getting your hernia fixed sounds like a great idea as well.

I have been gluten free for 15 months. I am now 24 years old. I am a young man standing at 5 foot 9 inches and 200 pounds.

Since going on the diet, I cook all my food myself.

I have confirmed via blood test 3 months ago that I am not getting any hidden sources of gluten.

I have not lost any weight, despite swimming, running, and kickboxing three times a week and walking everyday.

As of one month ago, I have started limiting my calorie intake to 1400 calories.

I still have "celiac belly" due to severe bloating problems.

I take a multivitamin.

What gives????? What can I do?

Post a couple of days of what you have eaten if you can (today and yesterday), and please provide more details on your excercise (how far are you swimming, running, walking, etc.). Perhaps someone can help explain.

What is your belly measurement when not bloated? Immodium chewables lessen the bloating for me.

Celiac + a 1400 calorie diet + excercise sounds like a disaster waiting to happen...but I'm not a dietician / nutitionist. Not enough food to nourish your body for the activities that you are doing.

Just wanted to share something here to give everyone hope...

Last week my neighbor came over and needed a cup of flour. Ironically, I still had a new bag (that I would never use) so i gave him the whole bag, laughed and said "take it, I'll never use it - apparently I have Celiac Disease".

Well, next thing I know his wife comes over with some Betty Crocker gluten-free chocolate chip cookies. She put them in a disposable plate, in a freezer bag, with the Betty Crocker label cut out so I could see what they were.

Since im sick and desperate (and I figured it can't be any worse than eating at a restaurant) I've been munching away. So far so good...

So, as you can see not everyone will second guess you or make fun if you or give you a hard time!

Nice story!

yep. I saw the same thing. But three separate times getting sick. No thanks. There is something in there my gut doesn't like.

I'm fairly certain its not the milk, i eat cheese, milk, with no issues.

MSG???

I offer folks like this (those that I insist eat soy or those that roll their eyes) the

I got cramps just reading the title of your post.

A lot of the fruits (peaches, pears, etc.) you are eating are high in sorbitol. I have read that a high percentage of the general population (and even higher percentage of celiac population) are intolerant of sorbitol. Tree nuts (ie. almonds) are also something to keep an eye on. Just some food for thought as you track your diet and symptoms.

I would say that at 6 weeks gluten-free, that's not enough time to start experimenting with fancy foods like chocolate chip cookies.

Start again and keep to the basics (vegetables, unseasoned meat, rice, fruit if you can).

Fun? No. The right thing to do? I think so.

Talk to your doctor about the need to supplement with vitamins. If you have celiac, your intestines' ability to absorb vitamins and minerals has decreased. If you have modified your diet to go gluen free, I would guess that you are eating much less of the fortified foods that you used to eat (cereals, flour, etc.)

Best of luck.

Here is the list that I like to use (from Health Canada website)...

http://www.hc-sc.gc.ca/fn-an/securit/allerg/fa-aa/allergen_soy-soja-eng.php

Gluten or not, can't even the strongest intestinal tracts expect this kind of reaction after visiting the colonel?

So what should your B12 be? I don't have my report right in from of me, but I know mine was well at the low end of a very wide range. I know there is a reference range which I did fall into, but what about optimal??

Maybe not the best site to reference, but here you go...

http://www.stopthethyroidmadness.com/lab-values/

B-12 lab test: Measures an essential vitamin, B12, which can be low in hypothyroid patients due to low stomach acid. You are looking for an optimal B12 lab result at the top of the range. It is NOT optimal to simply be

With a B12 deficiency, it takes very little time to start feeling the effects of supplementation. So, it is possible that it is not

A couple of observations...

1. You do not include fish or dairy in food breakdown which may explain your Vit D need

2. As Mushroom mentioned, being within the ok range on the blood tests may be misleading. I was on the low level for B12 and responded very well to supplementation.

To answer your original question...

I went on a soy free diet for 1 year and was not able to excercise. The D got better, but the energy level was very low.

After one year of being soy-free, I hit "bottom" as far as health goes, and responded with B12, B-Complex, and multivitamin supplements (along with electrolyte sports drinks). After including supplements to my soy free diet, I was able to excercise after three months of light weights and stretching (like you are doing now). Fifteen months later (now), I am training for a triathlon.

My advice...

Listen to the wise Mushroom

I react to GNC products and all fish oils I have tried as well.

I now avoid any supplement with tocopherols (or lecithin of course).