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stellagogo

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by stellagogo

  1. stellagogo
    how risky is it to order a gluten free grilled burger patty or chicken breast at a restaurant? is this a guaranteed source of cross contamination or are grills generally ok? ::sigh::
  2. stellagogo
    i seem to get a burst of energy and my depression lifts when i get glutened...then i feel worse.
  3. stellagogo
    youre an angel. it's so nice to hear from someone who understands. we are so much alike--i have hashimoto's too. i'm on a t4/t3 combination rx but my dr wants to see if my antibodies go down now that i'm gluten free (i'm surprised they were still as high as they were seeing as how i've been 98% gluten-free for awhile) before upping my medication. he wants...
  4. stellagogo
    oh i wanted to mention also that i've come to recognize extreme thirst as a sign of glutening. i get this insatiable thirst that i can down glass after glass of water ... it's bizarre. and i retain it...i dont have to pee much...weird! i've never heard of anyone else with this symptom, but i am pretty sure it has to do with gluten, because since i've been...
  5. stellagogo
    prickly.. i am so sorry you are going thru this but it really makes me feel better to know i'm not alone. you sound just like me...i am annoyed with eating and nothing feels safe and it all just seems too difficult. ive been depressed all my life, but this is worse than i remember, ever. i went to sleep last night at 9:30 (i NEVER go to sleep that early...
  6. stellagogo
    you guys are awesome. casein must have a similar opiate effect. i was feeling really good for the first week or so of gluten-free (i'd been MOSTLY gluten for awhile), but i have never been so depressed in my life since going dairy free. i am just sitting staring at walls and sleeping. i dont know what i'm gonna do if this doesnt get better.
  7. stellagogo
    avr thank you for responding! you make me feel so much less nuts. i'm also doing this right now by eliminating all grains and sticking with lean meats, fruits, veggies, nuts. and some dark chocolate. it feels good but i hope i can add back in some goat cheese, yogurt, gluten-free breads at some point. after about a week gluten-free i started to have some...
  8. stellagogo
    i've been gluten free (and now dairy free) for about 2 weeks now. i have so many questions. sorry. 1. i havent lost much weight (gluten makes me gain) but i feel like i'm smaller, less swollen. has anyone experienced this? 2. i am more tired than i've ever been in my life. is this because my body is no longer pumping out large amounts of stress hormones...
  9. stellagogo
    thank you!! i'm sorry about your headaches...i've been having those too. my stomach seems more sensitive now..i have been getting bellyaches and i'm not used to that. ive eliminated dairy now too...i hope that's just temporary. mentally i feel this indescribably clarity ... that alone will keep me sticking with this. keep me posted on how youre doing...
  10. stellagogo
    thank you. it really is nice to know i'm not alone with this. i am not used to having stomach pain (weird for someone w celiac)...i've always prided myself on a cast iron stomach, too! now all of a sudden ive got pain/bloating after totally eliminating gluten. i'll get rid of the dairy for awhile like you both did. it's never caused me any problems but maybe...
  11. stellagogo
    i'm one of those people who GAINS instead of losing when i get glutened. it's like my metabolism shuts down and i swell up and gain fat ridiculously fast. i also have hashimotos thyroiditis. my t3 levels are low but my dr wants to wait on increasing my meds until i'm gluten free for long enough to let my adrenals heal and my thyroid antibodies come down....
  12. stellagogo
    omg thanks! you DID help. i'm so right there with you in limboland. it really helped seeing my dr last week because he made me feel less like a "fraud" or hypochondriac for thinking it's highly likely that i have celiac. i just have this intuitive feeling that gluten really may be the issue. funny i made a call today for allergen info and felt like a fake...
  13. stellagogo
    So i've been about 95% gluten free for quite awhile (no so concerned with cross contamination, etc), with periods of denial in which i would consume some gluten products here and there. but i'm over it and my doctor confirmed last week that she's fairly certain i have celiac. for the past 2 weeks i've been strictly gluten-free and for the past 3 days i've...
  14. stellagogo
    exactly!
  15. stellagogo
    thank you SO much. it seems every day gets a little better since i've been strictly gluten-free. mentally things are shifting a lot...it's really weird. for awhile i was about 95%, still eating tortilla chips that shared frier oil, etc...hoping for just an intolerance rather than celiac. but intuitively i'm feeling that it is the real thing. and i know just...
  16. stellagogo
    your answers are both very helpful. i feel dumb for not knowing much about how to read the genetic results. i thought in my question i had mentioned that the antibody testing at this point is useless because i've been mostly gluten free...but going back i see that i didn't make that clear. the tests were ordered a long time ago, before i really went gluten...
  17. stellagogo
    so only 30% have the predisposing genes? and i'm feeling better? and i have hashimoto's? i guess it's just hard to know how seriously to take this without a clear definite dx. my family thinks i'm crazy for talking about the need for separate pots/pans/sponges/etc...for all my fears of cross contamination...they think i'm losing my mind. i'm frustrated.
  18. stellagogo
    tissue transglutaminase antibody IgA was also done, <1.2 (ref range <4.0), so i guess that's fine. but i've been gluten free for a long time because i couldnt afford to have the tests done till now. i'm just really curious about how to interpret the genetic testing...i know i can't get a definitive dx at this point, but i'd like to know what the...
  19. stellagogo
    in addition, my results read: iga - 212 (ref range 61-356) dq alpha 1 - 02:01,05 dq beta 1 - 02:02,03:01 i'm sorry i don't know anything about genetic testing or the interpretation thereof.
  20. stellagogo
    so i finally saved up the money to have a whole buncha labwork done, including the celiac panel that was ordered for me last year. turns out celiac gene pairs are present, but looks like antibodies are within reference range. i've been gluten free for almost a year now (with a few periods of not 100% strict because i havent been sure). if the gene pairs are...
  21. stellagogo
    thanks, richard. in addition to dining out and ordering chicken, the restaurant where i was working shut down and i took the rest of the frozen chicken breasts home with me. now i'm scared that chicken like this from a big distributor may contain gluten. i dont worry so much about the chicken i buy from the grocery store as there is nothing other than chicken...
  22. stellagogo
    thank you very much. i guess there is a part of me that is still in denial, as i am self-diagnosed, and after 16 years of anorexia, hardcore restriction and miserable meals, this just seems like some kind of sick joke. my parents don't take it seriously, either, especially the cross-contamination issue. my mom just thinks of celiac as some sick-unthriving...
  23. stellagogo
    thank you. wow. so how do you eat out at all? i rarely go out, but when i do, i almost always order a salad w chicken breast and hope for the best in terms of cc. no wonder i felt terrible the whole time i was visiting my parents (they like to go out a lot). this sucks.
  24. stellagogo
    call me paranoid, but (aside from obvious food service cross-contamination issues) is gluten ever used as a preservative or anything in chicken breasts from large food service distributors? i thought i read something about that once but i might be losing my mind. i'm so scared to eat anything at this point. this is not easy for a recovering anorexic.
  25. stellagogo
    i am starting an elimination diet to pinpoint what, other than gluten, might be perpetuating symptoms. i bought natural almond butter last night, assuming it would be just almonds like the other brand i usually buy, but no...it contains palm oil. should i be avoiding palm oil for now?
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