Staceyshoe

I would love some of your advice about this situation. Super quick background: Ds has always had digestive issues (though not diarrhea). He has the gene for celiac and got a blood test but only for IGA-TTG, and he's IGA deficient. Scope was clean. Last year he reached the point where he was doubled over almost daily, not feeling good enough to play,...

I've been thinking about this some more. We will remove oats and dairy from his diet, and obviously keep him gluten-free. Is there any reason to remove corn? I realized that's one grain that he's been eating a lot of. If oats and dairy are far more likely, we'll just stick with that. TIA!

Thank you both! My youngest is sensitive to even a crumb of bread. He often reacts to modified food starch in a seasoning blend. I guess I assumed that if he can eat the oats, then my oldest certainly could. I know the allergy tests are different, but I'm realizing that the proteins must be different too. (Otherwise my son with the IgE wheat allergy wouldn...

There are more details in my siggy, but my oldest son (age 6) has significant risk factors for celiac disease. He has never been prone to diarrhea. However, we put him on a gluten-free diet for 10 weeks this summer. He had one accidental exposure to a trace amount of gluten without issue, and then started back on oats a week before gluten without problems...

how long did it take before the weight gain began? We are strongly suspecting celiac in our oldest (details are in my siggy). He's 6 years old, and lost 3 lbs earlier this year despite a good appetite. This dropped his BMI down to around the 3rd percentile. We just finished a trial on a gluten-free diet (10 weeks), and his bowels completely rebelled when...

My oldest son has had digestive issues his whole life (severe esophagal inflammation as an infant/toddler and frequent unexplained stomach pain as a child). He's 6 and lost 3 lbs earlier this year despite a very healthy appetite--which puts his BMI at around the 3rd percentile. We have realized that there's a family history of celiac, though no one else...

I had this for years (and I do not have celiac or gluten intolerance). When I went to an acupuncturist for hormonal imbalance, my periods became lighter, more regular, and no more diarrhea. It's been 8 years since my last acupuncture treatment, and the positive effects are still there.

Thank you for your responses. My biggest worry was not having a clear gluten-related reaction and still feeling like we don't know for sure. We have a pretty clear reaction. Ds has had diarrhea all afternoon, barely making it to the bathroom at times. He's never had anything remotely like this before, so I'm pretty sure it's the gluten.

My oldest ds just went gluten-free for 10 weeks and started back on gluten yesterday. He was fine yesterday, but having diarrhea today (about 24 hours after gluten exposure). Does this sound like a gluten reaction? I was expecting a quicker reaction if gluten was the problem, but I don't really know how quickly someone with celiac might react to gluten either...

We used Enterolab to test our two boys. The info was very helpful because we had no idea if celiac could even be a possibility. Keep in mind that the majority of people with the celiac gene do no develop the disease, so a positive genetic test doesn't confirm a celiac diagnosis. A negative genetic test indicates that it's unlikely that celiac disease is...

That makes a lot of sense. Thank you! I'm curious to see what happens during/after this trial.

My 6 y.o.'s endoscopy came back neg for celiac, but he's having regular stomach aches. (Really no other symptoms of celiac, however.) I'd like to try a gluten-free trial just to see what happens. I need to do it for 6-8 weeks, right? We have a lot of specialty diets in our immediate and extended family, so I'm pretty familiar with gluten-free. I keep...

Does anyone know about this or know of a forum where I can get questions answered? I'll write my story below and try to be brief. My son has a history of severe silent GERD which included an inability to swallow. When he started on Prevacid at age 2, he gained 5 lbs in 6 wks and then the meds stopped working. They doubled the dosage and it was still ineffective...

Thank you! That really helps with decision-making for the future.

My 6y.o. son's celiac test was negative. He is not symptomatic, so I do trust the result. He is positive with THE genetic subtype most likely to result in celiac, and he is IGA deficient (which I understand also increases the risk that he may develop celiac). I've heard of too many people without classic symptoms who have celiac and don't want to overlook...