
shezatrip
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Everything posted by shezatrip
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ARCHIVED Celiac V. Gluten Intolerance
shezatrip replied to MerrillC1977's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Great post. I have been trying to figure this out too and can't quite get the information. I want to know if there are certain degree's of gluten intolerance. For instance, Are there people who can eat small splurges with no effect? -
ARCHIVED What Can You Do To Deal With Neuro, Joint And "other" Issues?
shezatrip replied to JoshB's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Here is what you do= You buy kefir grains online. I ordered mine from etsy...you put the grains in a jar and two days later you will have kefir. It will start adding flora back in instantly. You will feel so much better!! many get raw milk and add it to their grains. The raw milk is also loaded with enzymes and nutrients/that paturized milk does not have... -
ARCHIVED Your Celiac Diet And Symptoms
shezatrip replied to shezatrip's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thx :-) -
ARCHIVED Your Celiac Diet And Symptoms
shezatrip posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi Everyone, I would love to know this. Are there various degrees to Celiac? For instance, can some splurge on rare occasions ( a few things on the weekend) and have no effect? is there any room for cheats? Also can you please list how and when your symptoms hit, after you have eaten it. Is it gradual or do you feel sick right away. Can you eat... -
ARCHIVED Gene Results Question
shezatrip replied to shezatrip's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Beebs, if you don't mind me asking, what were all your other symptoms that disappeared? Also, how long did it take? -
ARCHIVED Gene Results Question
shezatrip replied to shezatrip's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Amazing everything disappeared I need to be more committed. It seems as though I start, and don't see huge differences.. so I stop. I either need to gluten up and test/or stay strict -
ARCHIVED Gene Results Question
shezatrip replied to shezatrip's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Beebs, I completely understand how you feel..It's as if you are in limbo..yet, to do all the tests take time, energy, money.. and having to regluten yourself for months :-( Def. a catch 22. Did you do the blood tests. trans. glut? -
ARCHIVED Gene Results Question
shezatrip replied to shezatrip's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
3 months **SIGH** I don't know. I want to quit gluten all together, however without the test I will never really know for sure for my son and he is experiencing some symptoms. Did you get the other tests or did you stop at just the gene test? Can you tell me what your symptoms were and what went away/how long? -
ARCHIVED Gene Results Question
shezatrip replied to shezatrip's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thank you so much for writing me back :-) I started going gluten free to test the waters...so I am about 70% gluten free 30% not. I don't have the classic bending over in pain after being glutened. i also don't have diarrhea. What I do have is muscle aches/fibro, ulcers, vocal chord swelling, headaches and the intestinal flares (which feel like ulcers) are... -
ARCHIVED Gene Results Question
shezatrip posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi, This is for all of you experts on Celiac. I have had symptoms for years: painful bloating, mouth ulcers, diziness, fibromyalgia, gassy, etc... However, I started on semi-gluten free..so couldn't take the blood test unless i loaded up again. I did take the Gene test however: tested negative for DQ2...tested positive for DQ8/DQB1*02. What do you... -
ARCHIVED I Need Your Help :)
shezatrip replied to shezatrip's topic in Parents, Friends and Loved Ones of Celiacs
Thank-you both for your great advice! I still have a couple of questions if you don't mind- If my sons symptoms are; motor tics, attention problems, repetitive thoughts....will it be a delayed effect? How long before your son/who has OCD felt the difference? Does it go away in One day, and if he eats a reactive food..will I notice a difference right away... -
Moms, I need your advice~! My sons symptoms: 9 ear infections in 15 months- Attention problems, dark circles under eyes, allergies, and OCD getting worse. (I have autoimmune-fibromyalgia) Dad has tested pos. for celiac. Testing: tested a 3 on a celiac panel with referance range of 6 being positive. Low vitamin D, lower iron. How do I find...
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ARCHIVED Test Results
shezatrip replied to shezatrip's topic in Parents, Friends and Loved Ones of Celiacs
Thanks for your answers everyone. All of this is a nightmare to find out. The elimination diet stinks. It's so hard to know what is what and takes forever. I am going to get an allergy food test panel/and tree's, pollen, etc..panel. I AM tired of Dr's!!! ACK -
Hi everyone, I was wondering if some of you can help answer a test question. My son took the test (has reoccuring ulcers in mouth, low D, Low Iron, muscle pain,e tc...) His test came out a: 3 The test said anything over a 8 is a positive. Could he be celiac positive with a 3? or even sensitive? We hadn't been loading up on gluten at all prior to...
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Well, here we go! I just received my Biocard test from Canada in the mail! Even if it is negative, will still do a few more tests..... Can you tell me... 1. Does the endo. procedure HURT/or uncomfortable. What is your experience with it. Is pill cam better? 2. I have been eating gluten for some time, however should I load WAY up prior to the test...
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ARCHIVED Help!
shezatrip replied to shezatrip's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Ty, Ty!! appreciate the advice :-) still hanging' in there.... will let you all know :-) -
ARCHIVED Help!
shezatrip replied to shezatrip's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
TY for your kind response and support!!..It sure helps. Today is better :-) They just said they shipped my biocard, so 10 more days to go to load up. Even if it says negative, I will back waaay off gluten~ and eat clean. Thx again! -
ARCHIVED Help!
shezatrip replied to shezatrip's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I agree..that is what happened. I stopped for 3 weeks and then had to gluten all back up I need to keep my eyes on the prize (this test) but feel so bad.. just want to eat really healthy. ARGH... I don't look forward to pizza and bread. -
HELP! I need some encouragement or advice. I have ordered a test, biocard..and should be getting it twelve days from now. I am supposed to Gluten up. However, Not sure what allergy (gluten, milk, etc..) But, I am so Ill (nausea) that I hardly want to eat anything. I am so tired of the fullness, bloating, pain..that It is taking all i can to go one...
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ARCHIVED Tiny Amounts Of Gluten
shezatrip replied to shezatrip's topic in Coping with Celiac Disease
Amen Quincy! Amazing story of recovery that will help so many others!! It brings me joy reading and hearing healing stories~ recovering from pain and suffering..It can be SUCH a difficult journey as we know. And YES, Thank-you God for the woman who helped navigate you to your test.... One person can change a life~ Now you are helping others and bringing... -
ARCHIVED How Many Parents And Kids Have Celiac?
shezatrip replied to shezatrip's topic in Parents, Friends and Loved Ones of Celiacs
LOL! That's how I feel..."The plot thickens and another piece of the puzzle is added" There HAS to be an easier way, don't ya think? :-) -
THX! Will check that out
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ARCHIVED How Many Parents And Kids Have Celiac?
shezatrip replied to shezatrip's topic in Parents, Friends and Loved Ones of Celiacs
wow..a lot of family members! At least everyone can journey together down the healthy road, right? As far as bilirubin, Yes..I have read that it is high in those with Celiac. Many who go gluten free come down. I haven't heard of Gilberts synrome..will have to look that up. -
ARCHIVED Tiny Amounts Of Gluten
shezatrip replied to shezatrip's topic in Coping with Celiac Disease
Your daughter seems like she is going through a lot. I too was diagnosed epstein barr along with endometriosis, all the other crazy symptoms. Yes, it is hard to pay for medical when you are too sick too work!! It's a catch 22, isn't it? ~ Just keep swimming~ that's what I tell myself! from nemo :-) -
ARCHIVED How Many Family Members Have Celiac?
shezatrip posted a topic in Coping with Celiac Disease
I would like to know how many in your family or extended family have Celiac?