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Tay Tay's Momma

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Everything posted by Tay Tay's Momma

  1. Tay Tay's Momma
    My son has had trouble walking for the past couple of months since the onset of symptoms through diagnosis. We have been in the hospital this time since Wednesday with the hopes of steroids and anti inflamitories allowing him to walk home. Still not sure when we are going home, but the doctors here are stumped they are waiting for my pediatrician and GI...
  2. Tay Tay's Momma
    I was just buying hot dogs yesterday. Nathans hot dogs are good. My issue is finding some reasonably priced that don't have msg added... I am new to this as Taylor was just diagnosed a few weeks ago. I looked at the ingredients of hebrew national and they have modified food starch, then I found out this morning that is supposed to be safe... Is that true...
  3. Tay Tay's Momma
    He has been on steroids since Wednesday and still not walking. I am supposed to call in to doctor in the morning to update them on progress. They were sure he would be walking by Monday and we could start cutting the dose to wean him off the steroids. Steroids should have helped whether it was arthritis or the celiac disease causing the pain. I will...
  4. Tay Tay's Momma
    we have been in for blood work at least once a week for the past month, that is when we weren't in the hospital. I will ask about the vitamin deficiency. I have a friend who is a naturalpath, maybe he has some vitamins that are gluten free.
  5. Tay Tay's Momma
    At this point crutches won't help. He cannot stand, it hurts too much. He is frustrated with waiting on me to pick him up and is being very inventive with different ways to scoot around. It tortures me to hear it even from another room. He says owe the whole way, even just from chair to chair.
  6. Tay Tay's Momma
    We have checked for everything from arthritis (jury is still out on that one) to parasites. Just got a call from doctor this morning that they are going to put him on steroids to speed up the healing process and relieve his pain... Not sure I am comfortable with putting my 8 year old on steroids, at this point I just want him to walk again. Dr. Ward has...
  7. Tay Tay's Momma
    We have been through every blood test and neurological test you can think of. Taylor was fine just over a month ago. He got a 24 hour virus and hasn't been the same since. After spending every week in and out of doctor's office and 4 days in the hospital, not including the partial day for the biopsy, I am at my end. As soon as the biopsy was done we changed...
  8. Tay Tay's Momma
    What does she drink? Does she eat popcycles? When Taylor was in the hospital he ate tons of green popcycles and had lots of green showing up!
  9. Tay Tay's Momma
    If you don't let her eat things with gluten in it, the biopsy can be a false negative, then you will have to go through the whole thing all over again. I just went through this last week with my 8 year old. He is still in pain and we had the biopsy and changed his diet. It takes a little while to get their systems straightened out.
  10. Tay Tay's Momma
    I am sooo brand new to this, but I was asking that question on the way home from biopsy with Taylor who was insisting on a happy meal for the toy. A nurse told me to get him a double cheeseburger with no bun. It was messy, but he ate most of it.
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