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charliesmom

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by charliesmom

  1. charliesmom
    My 4 year old son appears to have some serious behavioral issues from exposure to gluten. He shows a lot of anxiety and seems to be very irritable - prone to ridiculous tantrums and hard to deal with. He's going to get kicked out of school if we don't figure something out to keep him from getting exposed or to minimize behavorial reactions. What type...
  2. charliesmom
    you might try cross posting on the behavoir board (all the way down on the bottom) - i didn't realize it was there and posted my similar thread here too but you might get adults with celiac who might know there too.
  3. charliesmom
    Man, I hear you - my son really needs a manual. And the food things -it's so hard - he's 4! It's so hard to tell. We had his evaluation.... he's been fine the last couple of days. I REALLY think his behavior issues were diet related. The OT thinks he might have a minor sensory modulation issue (which gets confused with ADHD all time - worth a look...
  4. charliesmom
    Don't forget to change your soy sauce too
  5. charliesmom
    Thank you for this information. I have been searching for a mystery glutening.... this might solve it.
  6. charliesmom
    I accidentally gave my kid a whopper (the candy) the other day - DUH! Mid bite I yelled "Stop!" I just blanked completely.
  7. charliesmom
    Well 2 days have gone by and none of these insane tantrums. He is still showing anxiety signs though. But I have kept him out of school to be in a better environment. He has an OT evaluation on Wednesday so that will be interesting. My husband is convinced it is gluten related. I am feeling like it is probably gluten but reserving judgment so i am not...
  8. charliesmom
    My son's only real symptom of celiac was anemia. Reading through your post though, my main thought was to try removing all gluten - hidden too. Because if you have celiac, those are hurting your villi too and that could be causing your other problems. Additionally, I would call your dr and ask for a copy of your celiac test to see where you were. ...
  9. charliesmom
    I forgot - my 4 year old has an envirokid bar a day practically - he likes them all but especially the one withe penguin which has fruit stuff and rice krispie stuff we make a lot of rice chexie treats and do them plain or with pb or chocolate chips Fish sticks - blue horizon wild make FAB ones
  10. charliesmom
    Yes, Bell and Evans gluten-free are fabulous! No input on kid friend crackers - eh. We like the glutino table ones - most like saltines. the blue diamond ones aren't horrible either. graham crackers - kinnickinnick - pretty decent! they make and animal cracker and graham cracker that are decent too - a little "make you cough" but decent. They have...
  11. charliesmom
    Some of the huge weight on my chest just lifted. Thank you for sharing.
  12. charliesmom
    Great info - thanks! I am definitely suspected Sunday night again... He was acting really weird in the middle of the night too on Sunday. He came into our bed at 4 am (unheard of generally) and was thrashing around banging his head etc. DH and I were concerned.
  13. charliesmom
    I know this is silly, but I was curious specifically about the Kellogg's ones. My friend dropped off an enormous amount of Kellogg's fruit snacks. Her kid has EE and doesn't eat wheat so I have trusted them and fed them to him. However, my son is currently reacting to something and I can't figure out what!! I have given away the rest of these but the...
  14. charliesmom
    Just following up on this -has anyone's kids reacted to fruit snacks of any kind? Mine has had a bunch of kelloggs ones and I am curious.
  15. charliesmom
    Has she been tested for celiac disease?
  16. charliesmom
    The theory with the hand sanitizer is to knock the crumbs off the other kids hands to minimize cross contamination risk. It was the best I could get the school to agree to for after lunch and I figured it had to be better than nothing and the dietician seemed to think it would be acceptable. He eats food from home on a disposable tray and washes hands...
  17. charliesmom
    I did review the room when we were first diagnosed and checked all the supplies. I looked up anything questionable. They don't use food products and the teacher has 99% fruits and vegetables as snacks there. I double checked to make sure Monday wasn't a gluten snack day - thinking cross contamination - and she said it was oranges. I asked if there were...
  18. charliesmom
    My 4.5 year old is 3 months in the gluten-free diet. His case was extremely severe and we struggled with bad anemia for a year before diagnosis. 2 weeks ago i was nearly certain he was glutened. that next week he was awful at school. the only other time the teacher said she saw that behavior was when we started the gluten-free diet. Then, he was ok...
  19. charliesmom
    My son was diagnosed with Celiac because of his severe anemia. He was exhausted all the time and was so tired he wouldn't even open Christmas presents and he was vomiting at night and we knew there was something seriously wrong. Additionally, he would rarely eat and had gotten so skinny and sickly. They ran a CBC which clearly showed anemia. We started...
  20. charliesmom
    Well, here is the official response from coke received today. HIs behavior is much better the last few days so i don't think he was glutened again Thank you for contacting The Minute Maid Company.We appreciate the opportunity to address your concerns. We are able to confirm that Coca-Cola classic, caffeine free Coca-Cola classic, Coca-Cola Zero, Barq...
  21. charliesmom
    Ok, here is a recent one I found finally! The Coca-Cola Company Gluten-free food list from a letter from Coca-Cola dated February 25, 2010: We are able to confirm the following as gluten free: Coca-Cola Caffeine free Coca-Cola classic Coca-Cola Zero Caribou Iced Coffee Barq
  22. charliesmom
    I don't know! I found some old emails that said that all coke products are gluten-free or close - none actually use gluten but some have cross contamination concerns. But I can't find a recent email and I swear I read that a minute maid product used wheat...
  23. charliesmom
    Thanks! Yeah, that's pretty much what I found too. My son has no other issues other than Celiac Disease. I normally would never give him something like this but you know how it goes, a moment of weakness and a rough day I was just hoping maybe someone had info from the company as to whether or not the "natural flavors" actually includes gluten.
  24. charliesmom
    I read the ingredients online. It has that wonderfully vague "natural flavors" so it is still a big question mark. I thought I just read that Coke's minute made canned lemonade has wheat as an ingredient? I have no idea really.
  25. charliesmom
    In a moment of desperation, I gave my 4 year old a fountain Hi-C Poppin' Pink Lemonade today and now I am so freaked out that I glutened him and I can't find the information online anywhere. I emailed coke and I am waiting to hear back. He is coming off of being glutened a week ago so I can't tell for sure based on reactions. Does anyone know??
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