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Here are a couple of the abstracts of the articles I can find, and none specify the distance from a lesion that's necessary. Open Original Shared Link Open Original Shared Link I think mine was perilesional and wasn't very inflamed. The blister was actually intact. The second article says "Noninflamed perilesional skin showed more intense IgA deposition...

Thanks for your reply. I should get a copy of the results. I would hope that the dermatopathologist would have done the immunoflourescence to look for IgA. My mother-in-law used to manage pathology in town and was aware that that was necessary. She specifically spoke with the pathologist about it, and my dermatologist specifically indicated on the pathology...

Thought I should post because I've received results of both biopsies. Neither suggested DH. Although both docs biopsied lesions instead of skin adjacent to lesions, the derm did biopsy a fairly large area so I know he did get some adjacent skin at least. Also, my mother in law personally knows (she works in pathology) the dermatopathologist who looked...

Does it always have to be completely normal skin? 2 docs biopsied me with a punch, taking a lesion but in addition a tiny bit of surrounding normal-ish skin. One of those docs is a dermatologist specifically looking to rule out DH. Surely he would know what he was doing? I even asked if he had to take some normal skin and he just said "no no this is fine...

I agree with you mushroom - we as patients should be the central part of our healthcare team, but my doctors don't even really communicate with my other doctors (wouldn't it be ideal for the dermatologist and allergist to have some kind of communication?), but I also have a concern that I'm already doing way too much self-diagnosis and need to "trust" my...

I was taking cephalexin - went through two rounds of it within a couple months. Also have a steady supply of topicals: bactroban and fuciden.

Did you find your rash went away when you went gluten-free? Or you felt better but the rash didn't improve? Sorry to hear that you must re-start your journey, in a way, but hopefully now that you know at least a part of what you have, you can address it in the best way possible. I've been getting UV therapy for a few months now for whatever it is that...

None of my doctors have mentioned Dapsone and I'm always afraid to suggest anything for fear of offending them. My dermatologist did a biopsy tonight to rule out DH at my prompting and after seeing some new lesions on my arms, so I have that going in to the lab in addition to the one my family doc did in December. The derm took a 4mm punch so I think he...

Thanks Hopeful. I had read about trauma to the skin but wasn't sure what it ended up looking like in most people. What you describe is what I'm experiencing too. At my biopsy site, I have a circle of blisters. Also makes sense that my worst-hit place initially was my lower legs, where I shave the most (that's trauma!) and why I initially thought the whole...

An allergist I saw suggested patch testing but my dermatologist made me cancel the appointments because he said I'd just get "angry back" since my skin is hypersensitive right now. Thing is, I think it's hypersensitive because of the DH and skin trauma relationship. They did say it'd be a bunch of patches on my back, then I'd have to come back in a couple...

I also really like that article for an overview - it's also what had me look at my birth control pill as a potential aggravation of my symptoms. I also like this one to help explain some of the finer details in somewhat layperson terms: Open Original Shared Link Given how readily available all of this information is, from both reliable layperson sites...

Does anyone else find that if you get a paper cut, or a small scratch (e.g. my dog scratched me last week), it bubbles/blisters up and takes forever to heal? I've read DH shows up in areas that are more subject to trauma. Does this also mean wounds can become blistered due to DH too? I've found since the onset of my symptoms that minor wounds can become...

When I started getting super strict with gluten and dairy avoidance I started using a whey protein supplement from a company called Xocai. I'm not sure where you buy the stuff if you don't know someone who sells it, and I just happened to have a coworker who was always pushing these "healthy cacao" products on everyone. I was always super skeptical and hated...

I feel like I'm in the same boat as you (waiting on biopsy results, 4 months into the rash), but have been gluten free for almost 2 months now (started suspecting gluten a while ago although I just became super strict in the last week) so just to provide some words of encouragement, it certainly gets easier! I do have some previous experience with experimenting...

Thanks everyone! I so appreciate your comments and feeling like you "get it." I know my close friends and family are sick of hearing me talk about it, so it's nice to have a place here where people understand and also have stories to share. There were days when my itch and pain were so bad, the appearance of my body was so unsettling, the feeling of a complete...