Jump to content

Mattie-Jack

Advanced Members
  • Posts

    16
  • Joined

  • Last visited

Mattie-Jack's Achievements

  1. My kids were bed wetters - daily. I have one that is 9. Every day. Within a week of cutting out gluten it stopped. After researching, it turns out that many people that are diagnosed with overactive bladder are actually having side effects from gluten. Once the gluten is removed from the diet, the overactive bladder stops. It's just one of those things...
  2. In a nutshell, I have 4 children and they are all on gluten-free diets. As a result, I am on a very limited gluten diet. I've started thinking that I'd like to have a Celiac panel to determine if I am at the minimum gluten sensitive. Basically, I'd like to know if anyone knows how much gluten is necessary to make the blood work accurate? If I go to my...
  3. I'm looking for the same thing for a 2nd opinion. I'm in DFW. We currently visit Kendall Brown, MD with Digestive Health Associates. He has offices in both Plano and Dallas. A friend was told that she should see Dr. Eric Argao with the same group. She was told that he was very aware of recent research. These doctors are easy to see and I can say that...
  4. Good point! I've tried to make it a habit to have the doctor provide me a copy of lab results so I can look at them myself. Perhaps that is a good idea here.
  5. Here are some ranges if this helps: TTG antibody, IGA : normal 5-8 Endomysial Antibody Screen (IGA): positive/negative TTG Antibody, IGG: 7-10 Gliadin antigody (IGG) 11-17 Gliadin Antibody (IGA) 11-17 Immunoglobulin A: 33-235 Hope this helps you read your results.
  6. Most physicians seem to want to have several pieces of the puzzle to get a true "Celiac" diagnosis. My experience has been that the bloodwork is the typically the first phase and then the endoscopy/biopsy. They look and take several biopsies of the small intestine at the same time. Recovery is typically quick and easy and the doctor will give you a visual...
  7. No change in diet but the subsequent lab reports don't show what her Immunoglobulin A was at the time of the test so it is possible that that affected the outcome of the EMA. I called our GI today to schedule an appointment just to review results. I want a consultation I guess. I'd like for him to explain it all in detail and tell me why he is dismissive...
  8. Your activities are a legitimate excuse! It isn't easy to plan, especially with so many distractions. I actually gave several things to neighbors out of my pantry yesterday. I've also cooked a week's worth of meals out of a new cookbook I was given as a gift - Gluten Free Quick & Easy by Carol Fenster. It has several family friendly meals and several...
  9. I just have to add that I too am a mother of 4 and two of my children are gluten free. I often times feel disheartened and overwhelmed but just keep a great stock of gluten free snacks, fruits, veggies, yogurt around just in case. If I can't think of what to fix, I can always grab one of those. The biggest challenge for me is being prepared. I'm unable...
  10. Okay, experts out there, I'm struggling with a few things. I've learned that this is truly a roller coaster ride... My 7 year old has minor GI symptoms. Mostly constipation which flares up here and there. We've been dealing with that for about 3 years as well as anxiety and bedwetting. All three can be associated with Celiac, according to my research...
  11. Does this make any sense to anyone? My child tested positive for Celiac via blood work, however, had a negative biopsy. Doctors have concurred that a Celiac diagnosis can not be obtained. I have put her on a gluten-free diet. If she had her labs redone after 3-6 months on a gluten-free diet, would the results be negative for Celiac, therefore, diagnosing...
  12. I think I'll try your idea of searching this site and the internet. I'm also going to just substitute other gluten-free flours in recipes and see how they turn out. Perhaps heavy but it is worth a try for this novice. My pantry isn't stocked yet with the gluten-free mixes you have mentioned. Cornbread it is tomorrow! Happy New Year.
  13. Along those lines, we're going to start up gluten-free tomorrow! If you had to purchase one gluten-free cookbook to get you started, family friendly, which one would you choose? I'm going to run and get it today. Actually, I think it would be a baking book as everyday dinner recipes are pretty easy for me to figure out.
  14. Thank you for clarifying some of the test results. I visited a local pediatric GI and traveled for a 2nd opinion after asking around for someone who may "think outside of the box." I insisted on additional food allergy testing which was all negative. Stool testing was all negative. ADD testing was inconclusive and yet problems continue. I think that...
  15. Wow. Thanks for the information. I have been increasingly frustrated with my daughter's soiling as the physicians have "ruled out" Celiac and blamed attention as the cause. We had her tested for ADD and providers disagreed about a diagnosis but her GI was so proud to say he had found the cause of her problems and closed the book. I've been unwilling to...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.