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jcgirl

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by jcgirl

  1. jcgirl
    Please excuse the venting, I'm sure many have had the same frustrations: Well I finally received my results from enterolab yesterday, and low and behold, my GI doctor was wrong and I was right. After living 10 years with going from one dx to another and then back again, I finally have an answer. What makes me very angry however is that I specifically...
  2. jcgirl
    I was diognosed with IBS, then colitis, then back to IBS. Self diagnosed and gluten-free and the "D" is gone, except for accidental gluten poisoning as I like to call it. My son, "D" and going straight to a specialist in pediatric GI that specializes in celiac. No wrong diagnosis for my baby boy but he has to deal with the big D until August
  3. jcgirl
    My doctor said that I had it in the recent past. As for parvo B19 (fifth's disease) that is current I guess. I feel the hypoglycemic symptoms and very sluggish. My son who is waiting to see GI has been home vommiting and diarehia all week. Also recurring boils for two years. Any chance this can be mono or fifth's?
  4. jcgirl
    My celiac symptoms have been going on for years, at 10 years for sure, maybe even more. Is there treatment for mono, my doctor told me to go home and rest. Can't do that though, have to work.
  5. jcgirl
    I started a thread asking about hypoglycemia the other day. Well, went to doc today and he said my fasting level (85) was normal. He did say that I have parvo virus B19 and had mono within the last few months. What????????????? I discussed my GI doctor's ever changing dx and he asked if I had a biopsy done. Didn't have one because GI won't do it, says...
  6. jcgirl
    I didn't think about asking to be fit in if there is a cancellation. I will call tomorrow. He has also had several staph infections and has been on all types of antibiotics. His regular pediatrician doesn't seem to think much of it, did do a culture the other day though. These things are huge and very painful. Don't know if it is related to gluten or...
  7. jcgirl
    I feel like I need to go back to college just to learn to eat these days. The last couple days have been o.k. with the sugar levels that is. I have been eating meats and vegis. However, when on a school field trip to Medieval Times, had a good time but got glutanized. There were some small noodles in the soup, didn't see them and knew I should not have...
  8. jcgirl
    Stephanie, Yes it was a fasting blood test. I ate small snacks throughout the day yesterday and felt a little better with the loopy-ness. However, I was so stuffed from eating, not used to that because of the stomach aches, etc of my former gluten life. As soon as I get the results of blood work and I am going to see a nutritionist. I am to the point...
  9. jcgirl
    Update, I was able to get my son an appointment at the Golisano Childrens Hospital's Pediatric G.I. center in Rochester, NY. I was referred to them by the parent of one of son's friends whose sister has celiac. Has anyone heard of Golisano and or Dr. Rossi? There is only one ped. GI in my area (Binghamton, NY) and I was told that he isn't so knowledgable...
  10. jcgirl
    Thanks for the info. I had blood test done this morning and I almost passed out. Never had that problem before when blood being drawn. Now I have to wait for the results. As for my diet being balanced, it's a tuff one. I have been eating mainly meats, vegi's, yogurt and fruit. Not sure if that is a balanced diet or not. This is so hard, for the first...
  11. jcgirl
    I have been gluten-free for four months. For the past few weeks I have been experiancing tingling in fingers and toes, foggy headed feeling almost like being intoxicated or on major drugs, tired and headaches. Usually feel this way in the moring and before meals. I purchased a glucose meter and my levels have been low. Sometimes I feel as though I am...
  12. jcgirl
    My GI insists that I have IBS. Over the last 10 years he has changed my diognosis, IBS, colitis, Inflamitory Bowel Disease and now back to IBS. I asked him about Celiac in January after finding this site and he insisted it was not my problem and would not order the celiac panel. I went gluten-free on my own and low and behold my food baby (looking pregnant...
  13. jcgirl

    ARCHIVED Migraines

    jcgirl replied to skbird's topic in Related Issues & Disorders

    I have had migraines for 30 years. gluten-free sense January 20, 2005 and have had only one. I have noticed that when accidentally ingesting gluten I begin to get a migraine but have been able to ward them off with tylenol. I have not had to have my imetrix prescription refilled sense going gluten-free.
  14. jcgirl
    Advise needed. I put my 12 year old son on a gluten-free diet for 2 weeks and he felt much better. Bloating and diarehha all but disappeared. Then the hard part came, back on gluten. He is now spending alot of time in the bathroom again, bloated and getting headaches. Also vomitted a couple times. I am trying to get him into a GI specialist in Rochester...
  15. jcgirl
    I was having the same problem coming up with ideas for school lunch. I got alot a great suggestions here. I have sent my son to school with mac & cheese that he likes to make himself. We use rice pasta and powdered kraft cheese that I found at Wal-Mart next to the parm. cheese and spegetti sauce (thank you celiac3270 for that wonderful idea). Another...
  16. jcgirl
    I have had sharp pain in my ears and they constantly feel as though there is fluid in them. The doctor always says that there is no fluid in my ears and dismissing the earaches. I would too would get migraines and think that they were triggered by a sinus/ear infection. Sense being gluten-free I have not had a migraine but still have the ear thing going...
  17. jcgirl
    Thank you for the links. I am going to try the insurance reimbursment for enterolab. I didn't even think about the possibility before. Laurie
  18. jcgirl
    Mariann, What is the gene test called. I am going to the Dr. next week to talk to him about all the things I have learned via researching online. I do not want to go back on gluten for the test because 10 years of misery is enough for me. If the EMA is negative can we still be gluten intolerant?
  19. jcgirl
    I spoke to my GI doctor's office this morning to ask for the blood test results so that I could try to understand why he told me I don't have celiac but he put me on the gluten-free diet anyway. I have been gluten-free for about 7 weeks with very positive results. Anyway, his nurse told me that the EMA was negative so they did not perform the anti-gliadin...
  20. jcgirl
    Nicole, we used to make quesadillas with the flour tortillas prior to going gluten-free. I use the corn one now. I will have to give your recipe a try to use them for pizza. The frozen crust I bought did were not terrible but we just could not get used to the texture after several bites. The toppings on the other were very good. My son was wondering...
  21. jcgirl
    What are the tests for gluten intolerances? Are they differant than the standard blood tests for celiac?
  22. jcgirl
    Thank you all for the suggestions. After only 4 days of being gluten-free my son is feeling better. I found the Kraft cheese in the can at Wal-Mart by the spegetti stuff and sent him to school with mac. and cheese. It tastes just like the regular stuff. We also made rice crispy treats with fruity pebbles, yum, yum. Tonight we are trying the gluten-free...
  23. jcgirl
    celiac3270, she transferred over to the high school this year. I am going to call her mom this weekend to talk. By the way, you mentioned Kraft cheese packets being gluten-free. Can you buy them seperate or do you just use the packet in the box and get rid of the gluten noodles? The conveniance of those cheese packets is great when my son wants to cook...
  24. jcgirl
    celiac3270, thank you for all the suggestions. Here is treat that some may or may not want to try. My stepdaughter made it up and all the kids love it. She calls it peanut butter sugar. What she does is put peanut butter in a bowl and mixes it with a tablespoon of sugar. I made a rule that it was off limits due to the sugar put I may consider it for...
  25. jcgirl
    Last night on a re-run of King of Queens, Carrie was wearing a shirt that said Gluten Free with some other writing under it but it was to small to make out. Shows like the Good Morning American and Today would also be great options to get the word, espcially sense many people have them on while getting ready in the morning.
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