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Kryptonite

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Kryptonite

  1. hi all, its been awhile,just wanted to leave an update on the protein issue,back in april 2012 protein was found in the urine it was 1.3 grams 24hr.tests were done to rule out other conditions that could cause the issue,all can back fine.so its just a kidney malfunction no biopsy was down becasue the protein went down to 853mg 24hr,and gfr is still high in...
  2. hi GFinDC, thanks for the reply,i hardly eat as it is lol ,you know how that is.i think i have tried everything under the sun.i guess i will follow his orders,and see him in 3 months.i am stumped about this.but its all ok if you can deal with celiac you can deal with this issue also.,have no choice. will post...
  3. saw the kidney doc this week all blood work was great creatine was also good also.he had told me that i am in pretty good shape,because there is no loss of functions anywhere,as of now.he has me on a med that will hopefully cut down the potein passing threw.i am to see him in 3 months he said if the bloodwork is the same we are good.same with the urine work...
  4. ok got some news here.all the blood work that i had done which was out of this world to rule out every disease known to mankind,turned out to be all normal,so i am left with a kidney biopsy to determine what the disease i have i guess.anyone here have one done and do i really need this to be done feedback would be helpful. thanks kryptonite
  5. hey this might help ,i have had always problematic stools,btwn the color and the floating stools,loose, etc .before i was diagnosed with celiac in 2008.still to this day i still have those issues. i have tried digestive enzymes,for awhile those made my stomach upset. i am a big fiber person to flush out the bowel,you might want to have your enzymes checked...
  6. ok saw the kidney doc yesterday i went to get lab work done that he had ordered.get this 15 different blood tests. after 12 vials of blood. have ultrasound march 8,he does not expect to find anything wrong because my blood work from my intern has no flaws cmp was fine and cbc was on jan 5.he wants to rule out other conditions.he thinks the kidneys are inflamed...
  7. hi GFinDC, thanks i will post what ever happens here so we all could have this to look back on. thanks kryptonite
  8. hi ravenwoodglass, i will let all know what the outcome is here but it seems to be the start of CKD as with all the stuff you and all have been talking about . cheers, kryptonite
  9. ok got back my 24 hr test results,looks like i have leaky kidneys,the protein lose is not that much my doc said so i am now reffered to a kidney specialist.i do not know what happens from here. kryptonite
  10. hi and thanks for the info my blood sugar is runs around 79-90 so thats fine my blood preasure run 125-135 systolic 80-86 dystolic so that should be ok there doc said no treatment for the tests. doing a 24 hr collect now for micro albulmin. thanks kryptonite
  11. hi, i had the micro blood in one urine test and that same test was sent out to confirm the blood and it came back neg.there was something else that tipped off the test to say blood but it was not.anyway stay on top of your health,i am just so body aware of things that whwn i see something i act on it right away.so now i am going to do a 24 hr collect tonite...
  12. hi frieze, yeah this sounds like this is going to be a take care of the kidneys from here on in.blood work was fine cbc and cmp,but the urine the creatine and bun where elavated.go figure.anyway any other thoughts are welcome . thank you kryptonite
  13. thanks for the feedback i am just trying to find out what could be the cause of the spilling of the protein.i read that some celiac people have kidney problems maybe there could be a link here. Kryptonite
  14. hi to all hope all is well with everyone ok need some feedback on this one been gluten free for 4 years,still have some issues going on.my main one is the protein in the urine.my blood work was fine cbc,cmp.so was the creatine to bun ratio.i now have to collect 24 hrs sample.i guess that is to find out how much is spilling into the urine...
  15. thank you for the post,i am just waiting for the protein vs creatine ratio. i did read how chronic kidney deasease could come on because of celic.even though you stay gluten free does not mean something else could arise.is it also true that adults do not fully heal once they go gluten free.i still have issues that i had before i was diagnosd with celiac.but...
  16. hi to all, need some advice on this,i have celiac and have had it for 4 years,i am now 46 years old .follow gluten free strict.over the past 6 months have noticed bubbles in the urine.went for urine test and blood work this past sept of 2011. CBC was great and CMP was great to also URINE was fine also. ok so few months have passed went back...
  17. does anyone have any ideas for what i can do help this out,thanks again this is a great place for info if your new on the block. sorry for the double post.
  18. hi kim69, thanks for your reply, i will look that up, otherwise yes thats the only thing that i have going on is the light colored and clay like stools,and lots os of gas. would digestive enzymes help at all. any other thoughts would be great thanks for all of your time
  19. hi to all, ok here is my problem i have celiac for 3.5 years i am 45 years old,follow gluten free eating to a T. once a month i get light colored and clay like stool then its goes away it can last a couple of days. i have had 2 abdominal ultra sounds to check liver gallbladder common bile ducts and head of pancreaes all clear and blood work...
  20. hi to all, i have had celiac for 3 years,and was wondering if keeping a steady weight was this hard.i have to make sure that i have enough calories,to maintain my weight.i exercise 3 days a week for 90 mins. i really have to eat to maintain 195 lbs.scale moves alot. thanks Kryptonite
  21. hi to all, i have had celiac for 3 years now,and been having upper right abdominal pain for 5 months,just had a ultrasound done and found was a distended gallbladder with no stones, any thoughts on what could cause this thanks for you input Kryptonite!
  22. positive blood/endo in 2008 celiac

  23. positive blood/endo in 2008 for celiac

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