jeslk

i would love any thoughts about some recent episodes I've had. Background is that I was diagnosed with celiac disease in 2011. It's always been described as "silent celiac" because I have never had symptoms and felt fine even at diagnosis. My doctor ran the test because of some vitamin deficiencies. I went strict gluten-free immediately and am very...

Hi all! Any updates on this? I have been having the worst time since switching to levothroxine after Levoxyl was discontinued. Went from severely hyper to hypo within three weeks at same dosage. And the levothroxine itself doesn't seem to agree with me. I was on synthroid for a year w no problem but when I got the celiac dx my doctor moved me to Levoxyl...

We just had my daughter (4) tested for celiac. The IgA came back <2 and the Immunoglobulin A, Qn, Serum came back as 119. So both negative. The genetic markers, on the other hand, are positive, Initially I thought it was two markers, DQ2 and DQ8, but the doctor explained that there are actually four variations on each, for a total of eight, and she...

Thanks Stephanie! My daughter's doctor called this morning and said he strongly urges us to switch her to gluten free. Turns out she has all eight (when you count the sub-markers?) of the genetic markers and so he said there's a much higher likelihood of her developing celiac in her lifetime and that by the time there's a biopsy diagnosis damage will already...

I was diagnosed with celiac two years ago. My primary doc did genetic and general celiac panel for the initial diagnosis, which was then confirmed by biopsy. I have silent celiac so I've have never had a physical symptom / reaction to gluten. I have had two types of cancer, though, and am not convinced there isn't a link. I've been entirely gluten free...

Gemini - thank you SO much for such a detailed and thoughtful reply! I do feel happy with the results and will now just aim to keep plugging away. Thanks again! Jess

Hi folks, I've been gluten-free since mid-February, after blood work and endoscopy confirmed Celiac. I never had symptoms (the diagnosis came accidentally), so it's been impossible to tell whether or not the gluten-free diet is working. Just had labs done, and here are the results: Deamidated Gliadin Abs, IgA 7 (previous 15) Deamidated Gliadin...

Want a pep talk? Only read below if you are ok with it being a litle harsh . . . * * * * * * Look at my signature below. I can't prove that the two cancers are related to the celiac disease, but several docs think it is very likely. And I don't have any outward symptoms, so there is nothing to keep me on track every day but the fear of more...

You've already gotten great advice and I'm a newbie myself, so I'll just add this: I was diagnosed with celiac last month and I felt fine. I didn't even know my doctor was running the test. As you can see from my signature below, though, I'm not exactly drama free when it comes to my health. Please feel free to have your wife email me if she's looking...

He's one of the best things that has ever happened to me. In fact, I trust him with my celiac issues more than the GI . . . they aren't always easy to find, but if you can find an integrative and/or "functional" medicine doctor - DO IT.

Actually, he did know about it. He's a great integrative physician and is the one who discovered the celiac even though I wasn't complaining of symptoms. He suggested waiting, though - said that until my blood tests for the celiac get to negative, it will be hard to tell what's causing what. So the plan is to revisit the idea in about 6-9 months.

Thanks - never heard of that. Will ask doctor about it tomorrow.

As far as I know, I don't have any symptoms at all. But I do have celiac, even without the symptoms. And my oh-so-bad health history (see below) leaves me not wanting to take chances. But gluten-free is a big adjustment in and of itself, so I don't want to force myself to cut anything else out unnecessarily.

It has been recommended to me that I try and determine whether or not I also have allergies to dairy, soy and corn. But it isn't clear HOW to figure it out. One nutritionist suggested cutting them all out for several months and then reintroduce them one at a time. The gastro doc I saw said it isn't necessary at all, my pcp thinks it's a good idea but...

I'm still new to this so all I know is that I need to do follow-up testing in 6 months. I plan to see a celiac specialist around that time and ask about continued testing.