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Cara in Boston

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Everything posted by Cara in Boston

  1. I just went gluten free after my blood tests came back positive. Didn't want to wait for further testing because I was hoping to feel great this week (home with the kids for school break). I definitely do not feel great. Constant headache, dizzy and shakey, just yucky. I am on day 5, but I don't think I was completely gluten-free the first two days (sneaky...
  2. My 5 year old looks like he is headed toward a diagnosis of celiac (blood and genetic tests positive, endoscopy in March)and I like to plan well in advance. I know I'll need to leave a supply of gluten-free snacks and special treats with his teacher for those times when the class has a snack together or some sort of celebration. We've tried lots of gluten...
  3. Thanks everyone - I think I am more nervous than he is. My husband is not nervous at all and isn't even planning on taking off work to be there. He just works up the street and can be there to say hi when he wakes up. So, I was thinking of taking the train to Mass General (about 20 minutes total, including walking to the station from our house) Would...
  4. We don't go until March 10th, but it is already on my mind. He is extremely (overly) sensitive to pain and very dramatic about it. It took 4 adults to hold him while taking his blood sample. I'm actually a little worried he will throw a fit just going to the MD again since the last two visits involved taking blood. I want prepare him as much as possible...
  5. My 5 year old is still in the testing process so we have not gone gluten-free yet. The process is taking longer than I would like (months!) but I know I have to be patient. I know going gluten-free will help him but no one will support it without an actual diagnosis (in-laws, school, etc.) Because he tested positive (blood panel) we got the rest of the...
  6. Sorry to be so dramatic. Here's the story: My 5 year old son was complaining of stomach aches pretty consistently for about 10 days - at the same time, his behavior took a shocking turn for the worse - tantrums, melt downs, super sensitive to absolutely everything, etc. Doctor tested for Celiac and 2 of the blood tests came back positive. This was...
  7. My 5 year old son recently was tested for Celiac and came back positive on two of the three blood tests. From what I could gather (checked out several books from the library) our results seem to suggest that he is gluten intolerant (for sure) and may or may not have celiac disease. We finally got in to see a "specialist" (Pediatric GI/Nutrition) and I had...
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