cszymanski12

Thank you, and I agree completely with you on the idea that I dont want to put myself through it all again. I had a grocery list of symptoms and systems that were affected and I was so sick. I have the diagnosis of gluten intolerance by my GI right now which is still better than not having the doc diagnose me at all and having to self-diagnose. However, I...

I have been fighting this journey for a couple years now and after all the numerous doctors the one I have finally has a brain (at least one that comprehends this disease).... However, it took my allergist to push him to get to me getting currently diagnosed with Gluten Intolerance. Well my doctor is not the smartest, because why wouldnt he have just done...

OH!! Speaking of you mentioning the test and being gluten-free for 5 weeks and then getting tested. Well I have been gluten-free of course but they are going to do the blood test or again for celiac and then he wants to do the one for the genetic thing. But I know that it will affect my test so how soon before do i have to eat gluten again before it??? My...

Book sounds great I just looked it up I have come to learn that books, others such as many of us on here, and friends or family that have it are our best choices. I too had the help from a friend that has celiac and a instructor I had on clinicals in school that I still keep in contact with. I completely agree, they were the ones telling me no screw the doctors...

I couldnt agree more I think that the rest of the house needs to be free of gluten as well. Not for the temptation but more the sneaky little things that get into our food and things we use that make us feel icky. I have thrown away almost everything, still working on accepting that I have to make a new life. But it is well worth it because its not worth...

Thanks so much!. Oh my I just looked and yes this Aveeno has the oats no wonder why Im feeling twice as bad using it. Im stopping it immediately and im going look into that lotion you mentioned. I get so angry when I realize things like this. Its hard maybe because im so new at it. But I am making the little mistakes with things that are small but are...

I am familiar with food its a good one that you do not have to get a prescription for in order to have your kitty on it. I am still in the process with getting used to everything myself and I have realized so many little things can cause a fork in the road for complete recovery. I am going for a biopsy of the rashes i have in the next 2 weeks to find out...

i read your little story and I have a suggestion that can be of help. Im a veterinary professional so I myself had to pay attn to my cat's food and treats. There is a diet call d/d venison and sweet pea both dry and canned cat food by Hills. Its prescription so you will have to see your local veterinarian to be able to get it. My one cat actually after I...

I actually have a question regarding eating gluten again before you are going to get tested which for me will be the second time. I am non-celiac gluten intolerant but my GI wants to do the tests at his office so he is comfortable with my diagnosis. I dont quite understand why he didnt just do them and then have me get the other tests but he seems to do everything...

I just read your comment and this book sounds like a great one. Do you have any suggestions where I would have the best luck to find it like amazon or any stores?? This would be a huge help for me since I too am non-celiac gluten intolerant. I have become very fond of reading these books and they are also very comforting. The one that I also have that I love...

There is both the biopsy which so many doctors love to call the "gold standard" which it can be and there is the blood test which will test for the antibodies in the blood. Yes you can have neg results and still be a celiac, however there are different variations to that. My post above yours explains partially about testing and I know many of the more experienced...

Reading your post brought me back to not too long ago how I felt/still do feel. It is something that many don't understand besides those who may be going through it. The most unfortunate thing is that the patients (us) know more than alot of these doctors. There is so much research continually being done to try to help those who are fighting for their diagnosis...

Thank you! I will have to try Kroger, I am more than open to go wherever I can. I feel like it is different with each and every one of us what we can tolerate. We all at least have in common that gluten is an absolute poison. I feel it is just super hard to get a grasp when buying something because Ill see its gluten free and want to get it but then I realize...

Hey everyone just an update here. I went to the grocery store and got my start on strict gluten-free foods. I got rid of everything that I had that I knew was going to be tempting. This I mean in the sense of just the foods all being in my pantry and missing being able to eat those things. I wont go back now because feeling like your going to die is not worth...

I am going to the store with my friend who is a celiac tomorrow! Thank you everyone. I feel like I have a extensive network of family on here almost. It honestly would top anything a doctor could ever present compassion upon. I additionally send out prayers and hope for anyone else who is going through this beginning stage, and those who have been fighting...