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LolaK

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Everything posted by LolaK

  1. LolaK
    Thank you Mushroom - I've not seen any results for the blood tests, we were just told verbally, but I will ask the GP for a copy. I did get the biopsy result which said no sign of coeliac disease, villus architecture in tact etc. The endoscopy showed patches of Duodenitis.
  2. LolaK
    Hi I've posted before - my teenage son had a positive blood test but negative biopsy. I was reading on another thread that false positive blood tests are extremely rare? My GP said that the blood tests were not terribly reliable, although one of the consultants later said they had a high rate of reliability!!!! I am confused - also my son had a...
  3. LolaK
    ljgs, I know it's a while since you posted this question ... I've only just discovered the international section been so busy on the pre-diagnosis bit. My 16yr old son's been gluten free for around 5 weeks now so I am a novice really but I do live in London. If they are self catering any of the larger branches of our supermarkets (Tesco, Sainsbury's, Waitrose...
  4. LolaK
    Well, we went back to the GP today as my son has been discharged by the gastro consultant as 'better' and no need for further investigations. I was surprised by his response. He said we can't know at what point Coeliac damage appears in the gut and that the biopsies were taken from only a few places and may have missed damage that was there. He also said...
  5. LolaK
    Yes, my teenage son has suffered from what he describes as "deep aching in back of calves" for no particular reason (not linked with sport or anything) and all sorts of other aches in legs and lower back. He has used Magnesium Oil in the past which has helped. Lola
  6. LolaK
    I found that really interesting - I have read a couple of similar articles but can't think where (might have been here :-)) which I'll try look out and post,but late here in the UK and off to bed. Has anyone else had positive blood test followed by negative one or know why this might occur?
  7. LolaK
    Well, my son is well and truly on gluten again, only eating gluten-free at home (and his father's house too) I reckon, but out and about I think he's having his old favorites - sandwiches & sausage rolls!. He had a complete meltdown this evening and afterward when his father and I talked about diet (the meltdown was triggered by something else) he kept...
  8. LolaK
    What about a positive blood test followed by a negative one? Is this common? Thanks for all the positive comments by the way, I was feeling pretty disillusioned! Lolax
  9. LolaK
    Just thought I would update as we went to hospital for follow up. I thought it would be frustrating, but it was worse than that. The registrar was different to last time. she started by saying "good news the biopsy was negative and so was the blood test" (they did a second test at the first appointment). she asked J how he was and he said that he had gone...
  10. LolaK
    Thanks Eatmeat4good for sharing that with me, sounds like a similar picture in many ways. We live in the UK so with a positive biopsy you can get gluten free foods on prescription, which I was hoping for, but that's maybe not to be. I was surprised at how well he has accepted the diet, but he did have a burger after the first week "just to see" and he...
  11. LolaK
    Thank you Ravenwood, we will be doing our best to keep him gluten free, I will be interested to hear what consultant says on Thursday. Does anyone know if the Duodenitis is significant? Is it normal for someone so young to have this? Thanks Lola
  12. LolaK
    zus888 and etta694, Thank you both for your responses. Both very helpful and informative. I've been reading a few posts on here about diagnosis and it seems they should be taking tissue from multiple sites? Well it seems like they only took 3 samples from my son. Also He had one positive blood test and that was followed by a negative one that the consultant...
  13. LolaK
    Hi I'm new on here. My 16 year old son has been ill for the last 2 years, mostly exhaustion and low immune system plus leg and back pains - loads of time off school and recently sore abdomen, bloating and gas. He had Glandular Fever 2 year sago and the GP thought it was post viral syndrome but tested him for coeliac and the blood test was positive. 1 month...
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