JenHarris
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I'm a married 28-yr-old mother to a 2-yr-old son. We both are gluten intolerant. We are on the road to being diagnosed. My husband is the healthy one of the family and does fine with gluten, but we are in the process of becoming a gluten-free household nonetheless.
I'm super-sensitive having had reactions ranging from nausea, vomiting, throat-swelling, migraine headaches, all in a matter of minutes to hours after being minimally exposed to gluten.
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Weird thing is, just after writing the above post I started chilling and running fever. Ran fever (little over 100) for about 16 hours, couldn't eat, and then fever was gone. Woke up yesterday morning feeling better except for a headache and my stomach's still very very sensitive, and I had a round of extremely loose stool yesterday too. Stomach is still...
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Just remember, you can have pretty much all of the outward symptoms of Coeliac (except for DH) and be gluten intolerant/sensitive. Me and my son both have symptoms and I'm going to go through my second round of testing later this year because according to my new doctor, the testing I had two months ago wasn't done right and therefore can't be deemed conclusive...
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I got cross contaminated from the peanut butter jar and didn't have symptoms until the middle of the night. Now I feel like I've got stomach flu... complete with body aches, terrible backache, horrible cramping and nausea. I'd made it over a month without even getting slightly glutened. (I was on a gluten challenge til the middle of April and then went...
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ARCHIVED I've Been Duped
JenHarris replied to JenHarris's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Oh, I know that going gluten-free will solve it... it's just that I'd really like to have a firm diagnosis for tax purposes so we can write off some of the food cost, and for my piece of mind after years of unexplained symptoms. My son has Cystic Fibrosis and Short Bowel Syndrome so we pay through the nose for his medical expenses (just for meds and regular... -
ARCHIVED I've Been Duped
JenHarris posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
SO unbelievably frustrated and so mad I could scream right now. My doctor shouldn't even be a doctor!! I had an upper GI done two weeks ago and just found out my 'Baylor and Mayo- accredited' doctor only took 3 biopsies, and now all he wants to do is put me on a year's worth of Omeprazole and apparently call it a day. This is a load of $&*+!!!! I got... -
ARCHIVED Answers Via Upper Endoscopy?
JenHarris replied to JenHarris's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks. I am back to a gluten free diet today. My reactions have been severe enough that I'm trying to find airtight containers for flours, I have my own peanut butter jar, I don't use butter, or the toaster and I've sorted my cabinets by gluten-free and gluten-y foods. I now suspect my son might be sensitive as well. He starts blood work next week. I... -
ARCHIVED Glutened, I Think
JenHarris replied to color-me-confused's topic in Coping with Celiac Disease
Yep. Sounds like glutening to me. Just like my 'glutened' symptoms too. Fatigue, headache, brain fog followed by not wanting to get off the couch the next day. Cross contamination has got me from the peanut butter jar just a couple days ago (presumably from stray bread crumbs transferred), so I feel for you. Now we have his and hers peanut butter jars. -
ARCHIVED Answers Via Upper Endoscopy?
JenHarris posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I had an upper endoscopy today and had some very interesting findings for someone who is just, 'gluten-intolerant' so I'm actually hoping the biopsies show I'm positive for Celiac despite negative IGA... or at least that it leads to some diagnosis other than 'IBS'. Here's what the official report said and the doctor's comments to me. I had grade A esophagitis... -
Tonight I accidentally glutened myself with chili beans (which had modified food starch unbeknownst to me), and within 15 minutes of having my meal I had a severe headache and noticed my hands shaking. (This was 45 minutes ago now). No stomach cramping yet, but I'm sure that's coming. The pain is extending all the way down the back of my head and into my...
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ARCHIVED Got My Results....
JenHarris replied to JenHarris's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Here are the results. He gave me a copy and went over each result with me. tTG IgA: 0 Gliadin IgA: 2 Gliadin IgG: 10 IgA, Total: 305 Vitamin B12: 903.4 He also did a Lipid Panel- which was normal. Amylase and Lipase levels were also normal. Oh, and yes, I have been having pain on right side just below ribs that radiates to the back on occasion... -
ARCHIVED Got My Results....
JenHarris posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I got the results this morning. Celiac panel was totally negative. The doctor says he thinks I just have severe gluten intolerance and admitted he was surprised I wasn't positive for Celiac. He also said I absolutely don't have IBS... that it was a lazy diagnosis from previous doctors. He's putting me on Miralax to help regulate me and he still wants to do... -
ARCHIVED Confused, Frustrated- Lactose Intolerance Test Not Done Right?
JenHarris replied to JenHarris's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I've been gluten free for most of this week and dairy-free for the last three days. I can't tell you how much better I feel! I was commenting to my husband that this is the first time I can truly say I've gone all day without stomach distress of some type (GERD or IBS-like symptoms). My stomach has been completely content all day. I'm not bloated. I've had... -
I'm so frustrated. I went in for my lactose intolerance test (hydrogen breath test) and it was nothing like I expected. Everywhere I'd read about procedure, I was supposed to drink 12 oz. of whole milk 3 hours before the test, go in and be given a challenge dose of lactose, the subsequently blow into the breath machine every 15-30 minutes for 3 hours following...
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ARCHIVED Confused About Gluten Challenge Etc.
JenHarris replied to katiekay's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Does your daughter have any other issues besides failure to thrive? Does she have frequent lung problems or get sick with head colds a lot? Does she have any known vitamin deficiencies? -
ARCHIVED Weird Skin Pain
JenHarris replied to Marie1976's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I too have had this. And it does happen more with being sick, but I've had it with migraines too. My husband thought it was so weird that I couldn't wear anything but super loose clothing when I used to have migraines.
