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JenHarris

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Everything posted by JenHarris

  1. JenHarris
    Weird thing is, just after writing the above post I started chilling and running fever. Ran fever (little over 100) for about 16 hours, couldn't eat, and then fever was gone. Woke up yesterday morning feeling better except for a headache and my stomach's still very very sensitive, and I had a round of extremely loose stool yesterday too. Stomach is still...
  2. JenHarris
    Just remember, you can have pretty much all of the outward symptoms of Coeliac (except for DH) and be gluten intolerant/sensitive. Me and my son both have symptoms and I'm going to go through my second round of testing later this year because according to my new doctor, the testing I had two months ago wasn't done right and therefore can't be deemed conclusive...
  3. JenHarris
    I got cross contaminated from the peanut butter jar and didn't have symptoms until the middle of the night. Now I feel like I've got stomach flu... complete with body aches, terrible backache, horrible cramping and nausea. I'd made it over a month without even getting slightly glutened. (I was on a gluten challenge til the middle of April and then went...
  4. JenHarris
    Oh, I know that going gluten-free will solve it... it's just that I'd really like to have a firm diagnosis for tax purposes so we can write off some of the food cost, and for my piece of mind after years of unexplained symptoms. My son has Cystic Fibrosis and Short Bowel Syndrome so we pay through the nose for his medical expenses (just for meds and regular...
  5. JenHarris
    SO unbelievably frustrated and so mad I could scream right now. My doctor shouldn't even be a doctor!! I had an upper GI done two weeks ago and just found out my 'Baylor and Mayo- accredited' doctor only took 3 biopsies, and now all he wants to do is put me on a year's worth of Omeprazole and apparently call it a day. This is a load of $&*+!!!! I got...
  6. JenHarris
    Thanks. I am back to a gluten free diet today. My reactions have been severe enough that I'm trying to find airtight containers for flours, I have my own peanut butter jar, I don't use butter, or the toaster and I've sorted my cabinets by gluten-free and gluten-y foods. I now suspect my son might be sensitive as well. He starts blood work next week. I...
  7. JenHarris
    Yep. Sounds like glutening to me. Just like my 'glutened' symptoms too. Fatigue, headache, brain fog followed by not wanting to get off the couch the next day. Cross contamination has got me from the peanut butter jar just a couple days ago (presumably from stray bread crumbs transferred), so I feel for you. Now we have his and hers peanut butter jars.
  8. JenHarris
    I had an upper endoscopy today and had some very interesting findings for someone who is just, 'gluten-intolerant' so I'm actually hoping the biopsies show I'm positive for Celiac despite negative IGA... or at least that it leads to some diagnosis other than 'IBS'. Here's what the official report said and the doctor's comments to me. I had grade A esophagitis...
  9. JenHarris
    Tonight I accidentally glutened myself with chili beans (which had modified food starch unbeknownst to me), and within 15 minutes of having my meal I had a severe headache and noticed my hands shaking. (This was 45 minutes ago now). No stomach cramping yet, but I'm sure that's coming. The pain is extending all the way down the back of my head and into my...
  10. JenHarris
    Here are the results. He gave me a copy and went over each result with me. tTG IgA: 0 Gliadin IgA: 2 Gliadin IgG: 10 IgA, Total: 305 Vitamin B12: 903.4 He also did a Lipid Panel- which was normal. Amylase and Lipase levels were also normal. Oh, and yes, I have been having pain on right side just below ribs that radiates to the back on occasion...
  11. JenHarris
    I got the results this morning. Celiac panel was totally negative. The doctor says he thinks I just have severe gluten intolerance and admitted he was surprised I wasn't positive for Celiac. He also said I absolutely don't have IBS... that it was a lazy diagnosis from previous doctors. He's putting me on Miralax to help regulate me and he still wants to do...
  12. JenHarris
    I've been gluten free for most of this week and dairy-free for the last three days. I can't tell you how much better I feel! I was commenting to my husband that this is the first time I can truly say I've gone all day without stomach distress of some type (GERD or IBS-like symptoms). My stomach has been completely content all day. I'm not bloated. I've had...
  13. JenHarris
    I'm so frustrated. I went in for my lactose intolerance test (hydrogen breath test) and it was nothing like I expected. Everywhere I'd read about procedure, I was supposed to drink 12 oz. of whole milk 3 hours before the test, go in and be given a challenge dose of lactose, the subsequently blow into the breath machine every 15-30 minutes for 3 hours following...
  14. JenHarris
    Does your daughter have any other issues besides failure to thrive? Does she have frequent lung problems or get sick with head colds a lot? Does she have any known vitamin deficiencies?
  15. JenHarris
    I too have had this. And it does happen more with being sick, but I've had it with migraines too. My husband thought it was so weird that I couldn't wear anything but super loose clothing when I used to have migraines.
  16. JenHarris
    I definitely have similar symptoms to you. I've measured and found as much as a 5 inch difference in my waistline on days that I bloat. Prime example... I felt ok all day yesterday after being gluten free for the first time in a month (gluten challenge for testing). Then I went to dinner with some friends. The corn tortilla chips and tortillas were supposedly...
  17. JenHarris
    I went to my new Gastroenterologist today. I like him so far and was really impressed with the detailed questions he asked me about my history. He immediately ordered the blood tests today and said we'd have results by Monday. He also wants to do a hydrogen breath test on me to see about lactose intolerance since I seem to have such severe reactions to lactose...
  18. JenHarris
    It definitely seems to be related for me. I have a rash only on my scalp that I've had for as long as I can remember and it went away when I went mostly gluten free and switched to an organic shampoo with no wheat in it. Now... I'm back on gluten rich diet before celiac testing and guess what? The rash is back! I'm still using the same organic shampoo and...
  19. JenHarris
    I'm on a gluten challenge right now and miserable (appointment with doc on 25th of this month and testing thereafter). I wasn't entirely gluten free before, but I'd say I was only at about 10% or less that could possibly have gluten because I had begun noticing that breads/wheat seemed to cause me problems and had eliminated as much as possible from my diet...
  20. JenHarris
    Thanks for the advice. I have an appointment at the end of the month with a local GI specialist who is known for dealing with celiac. I'm limiting myself to 2 slices of bread a day. For the most part I am miserable, alternating between constipation/diarrhea and horrible bloating, sometimes stomach cramps, and frequent headaches. I hope to God this means answers...
  21. JenHarris
    OMG... I will be MISERABLE if I eat that much bread! I bloat severely for a couple of days with just 2 pieces of bread. Seriously? They recommend that much bread before the test???
  22. JenHarris
    I have a long history of intestinal problems and have been diagnosed with IBS, but I've always wondered if it was something more. I frequently have bloating, stomach upset, and diarrhea. I'm lactose intolerant and severely vitamin D deficient. I have degenerative disc disease and asthma and consistently get sick with everything under the sun including...
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