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lizarch

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  1. Thanks for your reply, I do get the odd tingling in my hands and feet so will give it a try.

    I have gone to another Doctor today- took my results with me, and lo and behold, she agreed that I need further testing!!

    I was really comfortable with her, she seemed to know a bit about celiac, and has ordered full bloods and tests for gluten, lactose, fructose, thyroid as well as stool cultures! YAY!!!

    So fingers crossed I can get things worked out. I am full on eating all the foods that seem to make me sick ,so it will be tough for a week or so, but well worth it if I can get a true diagnosis and professional help. I will eat gluten free after that no matter what, but do need to rule out anything more sinister first with these tests. (And hopefully avoid any 'internal' tests!)

    Love this site/forum by the way, just what I needed as a 'newbie' to the whole celiac thing!

    Cheers,

    Liz

  2. Hi All,

    Did i read correctly that itching scalp is a symptom of celiac? Is that tru? And that wheat is found in shampoo? What is it called?

    I don't know whether to laugh or cry, have had an itchy scalp for over 30 years and tried all sorts of things to get rid of it-except gluten free. I don't even bother mentioning it to Dr's as they don't see it as a symptom of anything! Maybe I can finally ley my hair grow after all these years(of course it will be grey now :( ) Sad to think of what I have put up with when I didn't have to.

    liz

  3. Okay, I know everyone is probably over looking at blood test results, but I am confused becaase everyone seems to have high results but mine are low, but I have numerous symptoms that tell me otherwise.

    If someone can give me some insight into blood test result I would greatly appreciate it. The Doctor basically didn't want to know about me. And I thought he was a good Doctor too!

    Gliadin IgA Abs 2 U/ml (0-20)

    tTG IgA/IgG 3 U/ml (0-20)

    This is all I got from the Coelic serology

    Other results I thought were a bit strange were:

    Haematocrit 0.37 (0.35-0.48)

    Ferritin 16 ug/l (15-200)

    Iron 9.4 umol/l (5.0-30.0)

    Vitamin B12 619 (145-637)

    red Cell Folate 2225 nmol/L (776-1784)

    Everything else tested was midrange.

    These are Australian Tests so not sure if the parameters make sense to you guys.

    Let me know what you all think!

    Cheers,

    Liz

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