Meggielynn13

So I got some good news and some bad news.

Test results:

DGP IgG-Neg <.4 Eu/ml

DGP IgA Pos 8.6 EU/ml

TTG IgA-Neg 1.1 U/ml

EMA IgA- Negative

total: 329 mg/dl

So I'm positive for the new test which I was hoping for mostly so I can convince myself to actually do the Gluten Free diet.

Hopefully going to the GI soon but I have to go back to the stupid GI doctor that didn't think there was anything wrong with me especially not celiac or GB disease(ended up having both hmm).

Now for the bad news. My liver enzymes were AST:127 (normal is between 15-37) and ALT: 149 (normal is between 30-65). They do not know what is causing that and that is what is freaking me out. I know its not going to help me by doing this but that's how I react to different things. Hoping things get better once I go to the GI and hopefully I can see the DR that specializes in Celiac Disease cause this clown of a doctor doesn't know about anything other than IBS.

Hopefully anyone reading this could give me insight to what any of this could mean, i'd really appreciate it. These results are a lot to take in, especially at 24 years old

Thanks you so much IH for your response. I actually went there and saw another doctor that was not helpful at all. Gave me the BS diagnosis of IBS. Hopefully I can get a referal to go there once I get diagnosed. I had my blood drawn for the celiac panel. Crossing my fingers that I'm not in the 20-30 percent false negative group

I had the stomach virus two days before I had my gallbladder removed and a week after. I normally don't get it so I was wondering why I got it twice in about two weeks. I had my gallbladder removed due to pain in my side constantly and having tons of GI problems that the GI told me was due to IBS. I kept pressuring them to do a hida test cause there were no stones on the ultrasound and I'm glad they did it. It had a 12 to 14 ejection rate. At my age it should have been 90. But having it out I can barely eat anything without having issues 30 to an hour later. Hopefully they test you for celiac. If they don't I'd pressure them to. I did and they're testing me in two weeks. Going gluten free anyways cause of the 20-30% false negative. Let us know how everything works out. Being on here and reading/talking to people has helped me a lot so I don't have to talk about it constantly with family and friends who are sick of hearing it.

Reading this makes me feel like I'm reading a list of my own symptoms plus I might have hypothyroidism( minus the pregnancy ones as I have never been pregnant, I'm only 23 ) I too had my gallbladder out and had more problems after than I did before. Others have told me that having undiagnosed celiac or gluten sensitivity could have taken my gallbladder. Sounds like what happened to you too. I'm the opposite of you that I want the answers on paper so I know that I'm not being a hypochondriac. My boyfriend knows that I'm not and really does think I'm sick.

Hopefully you get the answers you need. And you do not sound like you are not sick. And reading this makes me feel better about my own situation cause I feel like I'm not the only one going through this. Let everyone know your answers when you get them back. Its great to read that people got the answers that they wanted. I hope to be in that place someday

Welcome to the forum! I'm new here too and I am still learning a lot by reading all of the posts on here. A while back( i still haven't gone through testing yet, but will on 1/23) someone told be to go to enterolab and pay for a test through them. I never did but I found the link that sends you to the test that best fits your symptoms. Open Original Shared Link

If you don't have insurance I believe this is the easiest way to get tested. The tests run from $99 to a couple hundred dollars.

Good luck with the testing and keep us updated once you get results!!

I'm going to get tested by my PCP in January but I would like to go to a specialist who specializes in Celiac and Gluten Sensitivity. I'm looking for a doctor in the upstate New York area between Albany and Saratoga if possible. I've been to GI's who supposedly specialized in Celiac and I ended up knowing more about Celiac then they did. What a waste of hundreds of dollars. If you know of any doctors I would really appreciate contact information.

Thank you!

Are you going to the same doctor who refused sthe blood panel before? If it is a different one, like a PCP, definitely ask for the celiac blood panel, and make sure she orders the DGP (Deamidated Gliadin Peptide) which is the newest and most specific for celiac and also a total serum IgA.. If the tests come back negative there is not much point in another biopsy because many gluten intolerants simply cannot "pass" the celiac test, whether blood or biopsy, but nonetheless gluten is their problem (about 20%). With your prior list of symptoms I am quite confident that you will improve on a gluten free diet. And yes, , so many people have lost their gallbladders to gluten.

Do get back to us in January and let us know how everythng works out. And have a happy holiday season. Remember to keep eating a full gluten diet over Christmas (aren't you lucky? ) and until you have had your tests. Good luck.

I'm going back to my primary(a woman). My GI was the worst doctor I have ever been to. The doctor that figured it was my GB is the head doctor of the doctors office I have been going to since I was born. I hope I improve on a gluten free diet. Maybe if I had gone on the diet sooner I'd still have my gallbladder. At least for Christmas, Hanukkah and my birthday next month I'll be able to eat what I want but I won't feel that great . Thanks, I hope I actually get the answers I'm looking for this time. Merry Christmas!

I did it but not for very long because of the blood work they did and told me it was my liver that was making me sick. I think I will be trying it once I get tested. I know I should start now but I want a medical answer because I really still feel like doctors don't believe me.

I started it back in April but they told me it wouldn't be a good idea and did some blood work. That resulted in seeing that my liver enzymes were high and my liver was swollen. They put me on liver medication for months and it made everything worse (that's how I found out about the GB). I should have just stayed with the diet but knowing that it might not be the problem makes me not want to continue with being gluten free. I'm just afraid that it won't make me feel better and I'll be sick like this forever.

I'm back after trying to figure out my name and password on here. I made my password so hard I couldn't even figure it out. Anyway, my GI told me that it wouldn't be a good idea for me to go gluten free because of all of my other health issues including gastritis, elevated liver enzymes from my gallbladder functioning at a rate of a 65 year old(12% ejection rate 0_0, which I had to get out after a HIDA scan in October) and a hiatial hernia which is causing my GERD. At 23 I shouldn't have all of these problems and also should not have listened to this GI. After having my GB out I felt better than I did before but recently( about 2 months after the surgery) I have had the same pains in my side that I had from my GB, pains underneath my stomach where my small intestine and large intestine are. I get it after eating eveything now, just as I did before I had my GB out. After reading this forum for quite some time I am coming to the realization that Celiac or a Gluten sensitivity could have killed my GB. No 23 year old I know other than one of my friends who has other auto-immune disesases has had to have their GB out. My ejection rate was even worse than my friend who has an auto-immune disease( hers was just below the level where they might remove it or might not remove it). I'm going to get tested again when I go to the doctor for my yearly physical in January. Hopefully they will give me some answers. I'm still having the same symptoms: diarrhea, recent vommiting, really bad stomach pains, immediately going to the bathroom after I eat sometimes, sores in my mouth and lips, really itchy eyes, recurrent yeast infections ever since my GB surgery, fatigue,abdominal cramping, Tryglicerides higher than normal, lactose intolerance, really bad anxiety( they put me on an anxiety/depression medication a while back), and weight gain( I have gained about 50 pounds in the last few years). I hope someone reads this and helps me realize that I do have something wrong with me and it's not all in my head like the doctors think. I had to pull lots of strings to even get a HIDA test done, which brought them to the diagnosis that I had to get my GB out, which I knew all along. I would really appreciate answers again. Thanks so much! I love reading all of the answers on this forum, it makes me feel like I'm not alone

I went to the doctor today and all of my tests including the biopsy they did to check for celiac came back negative. I totally expected the negative result. They didn't want to do the celiac panel because the biopsy is more conclusive. I'm going to go gluten free though because I've taken everything out of my diet that they told me and I'm still sick. So I've come to the conclusion that it's the pasta, bread,cookies and anything else that has added gluten to it. Hopefully this will be a good change but I know it will be really hard to get used to.

Thanks so much for your post. I have been through every test you can imagine. they sent me for the flex sig and egd because they wanted to rule out crohns and ulcerative colitis, which i think is a stretch I believe they did do a biopsy for celiacs when they did the egd. I'm going to get the paperwork and see exactly what it says because even slightly elevated means good bye gluten for me. I absolutely want the doctors on my side since I have seen so many of them they probably think I'm crazy .. I'm bringing my dad with me so I can have another opinion on my appointment so he can listen as well.

i'm hoping to get answers soon because I want to live my life and not be a prisoner in my own body because of this.

I have been having symptoms of diarrhea for at least a week at a time, really bad cramping, intolerance to most foods, constant pain and it also goes into constipation sometimes. This has been going on for three years. It all started from milk, then spicy foods, then acidic and citrus foods. All giving me diarrhea at least 3 times a week( but at least 5-6 times each of those times a week) . I'm also positive that since I have taken milk out of my diet and still having the same symptoms, I have a sensitivity or intolerance to gluten. I also have burning feeling in my large intestine in the lower part of my torso and also the same pain in my back that keeps me up at night. This has been interfering with my life and job and school and I just want answers. I also forgot to say I get fevers when having diarrhea, I'm also tired a lot of the time and wake up in the night because of my stomach pains and I get mouth sores a lot. I don't think I have ulcers inside my stomach and intestinal tract but I might... I went to the doctors the first time and was diagnosed as lactose intolerant but he also thinks I have IBS. With IBS you don't have fevers, continual cramping etc. they did a flexible sigmoidoscopy and an EGD. They determined that I have a hiatus hernia, gastritis, diverticulosis after doing the flex sig and egd. They also think I am developing colitis because of the amount of inflammation in my colon. I will know more once they get back the biopsys back. They also did a few tests to see if I had celiacs and chrons and uc.... Im going back to the doctor on Monday and I'm gonna have them run blood tests and other tests cause inflammation in my stomach, sm intestine and colon aren't normal. Ibs is what they said is probably what's causing my problems but when you barely eat anything but eggs,toast,chicken,pasta and rice and still have symptoms; ibs is their way of telling me that they are clueless. I think I'm gonna have them run a celiac panel on me too cause the symptoms I have are similar to what i have.

My symptoms are:

Diarrhea

Constipation

Chronic indigestion

Chronic bloating

Poor appetite

Abdominal cramping, pain, and distention

Mouth ulcers

Lactose intolerance

Weight loss

Not absorbing nutrients properly

GERD

Messed up menstrual cycle

Fatigue

Slight anemia

Elevated liver enzymes

-Anxiety for the past 3-4 years

-sleeping problems- i either sleep too much or not enough

-poor circulation- always cold, never warm enough even with blankets and layers

Any help to steer me in the right direction would be greatly appreciated. This has been going on 3 years too long and I wanna get it straightened out asap. I am going to the dr on Monday and hopefully he will run the tests I want them to because otherwise im going to end up doing the gluten free diet anyway to make myself feel better.