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jaywalker

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  1. jaywalker
    Oh! gotta have another little grumble about the NHS. To my great surprise, they were actually willing to prescribe the Vit D for me! (since i qualify for free prescriptions, this is an imprtant difference). However these turned out to have geletine capsules (not veggie!) and...wait for it...peanut oill (which I react to very horribly) i was told that...
  2. jaywalker
    Thanks for all the replies! I should perhaps add that my research into my symptoms suggests an underlying systemic disorder of some kind, plus a shedload of complications, including probably some of the things you've mentioned. I've had all kinds of tests , but nothing has ever showed besides vit D deficiency (now supplementing). I think the main problem...
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  5. jaywalker
    Heck, give up potato and fruit as well is the last thing I need to hear I think I'll pass on this lot. one man's meat is another poison, as they say, so whilst I'm sure it works for you, I'm not all convinced that vegetarianism is an issue. I don't see veggies posting here in huge numbers, as would surely be the case if a veggie diet contributed to gluten...
  6. jaywalker
    If I could re-run my own life, I'd go a diagnosis now, whilst the symptoms are relatively mild, as they do tend to increase with increasing exposure to gluten; and you don't sound convinced enough to stick this out long-term. Also, you probably haven't even done enough research,yet to fully eliminate Gluten from your diet. It crops up in some very surprising...
  7. jaywalker
    Not sure I chose the right sub-forum for this. Please feel free to move it I stopped posting on this forum for about 2 years. I recently returned because Google searches kept throwing me back here, and I realised I could find a lot more answers and relevant discussion here than anywhere else. Also I realised- crucially- that this forum makes no distinction...
  8. jaywalker
    excuse belated reponse! (i've been absent from this forum, past 2 yesrs) interesting info! I just want to clarify, I'm not worried about MS (since an MRI scan - albeit arguably- ruled that out) just saying that if gluten can cause MS (which appears to be a perfectly respectable theory) then no reason why it can't cause TG, by the same mechanism (demyelination...
  9. jaywalker
    you're in America? I have American friends who daren't disclose their ASD, because it might disqualify them from health insurance altogether...or send premiums through the roof. . After much discussion, though nobody's convinced that we're better off in Britain, healthwise. My Dad was within weeks of dying of a metablastic melanoma, before doctors...
  10. jaywalker
    I disagree. I don't think you can possibly predict all the future sittations where Dx would be a big advantantage. Here in Britain, the fact I can't get gluten free food on prescription (and can't afford it otherwise) without a clear Dx of celiac disease has turned into the least of my worries. It's meant that I don't get any of known co-morobidities taken...
  11. jaywalker
    hey Mommy Many thanks for all the feedback I think i answered most of your points in the other thread. Yep, I'm in England, As regards Private Medicine: Well, if i ever have any money to spare (and that's a very big "if") i do intend to blow it on private medicine. And whilst I'd very much like to go outside the mainstream, my priorities would...
  12. jaywalker
    i also forgot to say, all the rice products i use are processed in some way, since boling and steaming are too dangerous and time consuming for me ( i scald myself too often, and get worn out suddenly, so i go for things that cook fast, and that don't involve boiled water ) My favourite is Rude Health Puffed Rice, but I guess I'll be going without it...
  13. jaywalker
    I forgot to say I'm now also taking a probiotic supplement with loads of added vitamins and minerals (Boots own brand)
  14. jaywalker
    Thanks for all the helpful replies, guys. One general point: my options are very limited by financial constraints, due to being on State Beneits (and losing a portion of the these- perhaps even the whole if i lose my Appeal-- as I was assessed as "fit for work"in 2012). My family are helping, but unable to help very much, nor forever! I also have very...
  15. jaywalker
    Hi, before I went gluten-free aboutv 6-7 years back, i found i was having attacks of severe indigestion which were always followed by attacks of nacolepsy, lasting up to 3 days. I'd spent maybe a year [previously ignoring these symptoms and hoping they'd go away. Prior to that I'd never experienced narcolepsy except as a symptom of illness or reaction to...
  16. jaywalker
    I have simlar symptoms with a whole buch of foods besides gluten, as well as eisodes that don't seem to correlate with food reactions at all. For me, it's easy to tell when it's triggerered by gluten, or other food, because I have simultaneous GI symptoms (primarily severe wind and bloating) all occurring 5-6 hours after eating, and theress a very...
  17. jaywalker
    ummmmm..... in a nutshell, things have gotten worse! think i've only survived this long without topping myself, because i finally was forced to confide in my family, who've been incredibly supportive. I put the Gluten Ataxia idea to my GP, who aid it was for a neurologist to assess that. However, the neurologist whom I subsequently saw (about 2...
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