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jaywalker

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Everything posted by jaywalker

  1. jaywalker
    Oh! gotta have another little grumble about the NHS. To my great surprise, they were actually willing to prescribe the Vit D for me! (since i qualify for free prescriptions, this is an imprtant difference). However these turned out to have geletine capsules (not veggie!) and...wait for it...peanut oill (which I react to very horribly) i was told that...
  2. jaywalker
    Thanks for all the replies! I should perhaps add that my research into my symptoms suggests an underlying systemic disorder of some kind, plus a shedload of complications, including probably some of the things you've mentioned. I've had all kinds of tests , but nothing has ever showed besides vit D deficiency (now supplementing). I think the main problem...
  3. jaywalker
    Heck, give up potato and fruit as well is the last thing I need to hear I think I'll pass on this lot. one man's meat is another poison, as they say, so whilst I'm sure it works for you, I'm not all convinced that vegetarianism is an issue. I don't see veggies posting here in huge numbers, as would surely be the case if a veggie diet contributed to gluten...
  4. jaywalker
    If I could re-run my own life, I'd go a diagnosis now, whilst the symptoms are relatively mild, as they do tend to increase with increasing exposure to gluten; and you don't sound convinced enough to stick this out long-term. Also, you probably haven't even done enough research,yet to fully eliminate Gluten from your diet. It crops up in some very surprising...
  5. jaywalker
    Not sure I chose the right sub-forum for this. Please feel free to move it I stopped posting on this forum for about 2 years. I recently returned because Google searches kept throwing me back here, and I realised I could find a lot more answers and relevant discussion here than anywhere else. Also I realised- crucially- that this forum makes no distinction...
  6. jaywalker
    excuse belated reponse! (i've been absent from this forum, past 2 yesrs) interesting info! I just want to clarify, I'm not worried about MS (since an MRI scan - albeit arguably- ruled that out) just saying that if gluten can cause MS (which appears to be a perfectly respectable theory) then no reason why it can't cause TG, by the same mechanism (demyelination...
  7. jaywalker
    you're in America? I have American friends who daren't disclose their ASD, because it might disqualify them from health insurance altogether...or send premiums through the roof. . After much discussion, though nobody's convinced that we're better off in Britain, healthwise. My Dad was within weeks of dying of a metablastic melanoma, before doctors...
  8. jaywalker
    I disagree. I don't think you can possibly predict all the future sittations where Dx would be a big advantantage. Here in Britain, the fact I can't get gluten free food on prescription (and can't afford it otherwise) without a clear Dx of celiac disease has turned into the least of my worries. It's meant that I don't get any of known co-morobidities taken...
  9. jaywalker
    hey Mommy Many thanks for all the feedback I think i answered most of your points in the other thread. Yep, I'm in England, As regards Private Medicine: Well, if i ever have any money to spare (and that's a very big "if") i do intend to blow it on private medicine. And whilst I'd very much like to go outside the mainstream, my priorities would...
  10. jaywalker
    i also forgot to say, all the rice products i use are processed in some way, since boling and steaming are too dangerous and time consuming for me ( i scald myself too often, and get worn out suddenly, so i go for things that cook fast, and that don't involve boiled water ) My favourite is Rude Health Puffed Rice, but I guess I'll be going without it...
  11. jaywalker
    I forgot to say I'm now also taking a probiotic supplement with loads of added vitamins and minerals (Boots own brand)
  12. jaywalker
    Thanks for all the helpful replies, guys. One general point: my options are very limited by financial constraints, due to being on State Beneits (and losing a portion of the these- perhaps even the whole if i lose my Appeal-- as I was assessed as "fit for work"in 2012). My family are helping, but unable to help very much, nor forever! I also have very...
  13. jaywalker
    Hi, before I went gluten-free aboutv 6-7 years back, i found i was having attacks of severe indigestion which were always followed by attacks of nacolepsy, lasting up to 3 days. I'd spent maybe a year [previously ignoring these symptoms and hoping they'd go away. Prior to that I'd never experienced narcolepsy except as a symptom of illness or reaction to...
  14. jaywalker
    I have simlar symptoms with a whole buch of foods besides gluten, as well as eisodes that don't seem to correlate with food reactions at all. For me, it's easy to tell when it's triggerered by gluten, or other food, because I have simultaneous GI symptoms (primarily severe wind and bloating) all occurring 5-6 hours after eating, and theress a very...
  15. jaywalker
    ummmmm..... in a nutshell, things have gotten worse! think i've only survived this long without topping myself, because i finally was forced to confide in my family, who've been incredibly supportive. I put the Gluten Ataxia idea to my GP, who aid it was for a neurologist to assess that. However, the neurologist whom I subsequently saw (about 2...
  16. jaywalker
    In the past two years or so, I've been developing intolerance of all kinds of foods, inluding fats, nearly all legumes and seemingly all of the non-gluten grains, as well as the gluten ones of course. I'm also vegan ( used to be just veggie, but intolerences pushed me the whole way) I seem able to tolerate Soya Milk. Often , that's my only source...
  17. jaywalker
    sorry for raising this long dead thread, but i just spotted a mistake in my original post It's Loratadine, not Piriton that eases my symptoms (i used to frequently get the two mixed up. to my cost! ) Probably worth it's own thread , but I thought I better correct it here,
  18. jaywalker
    hi, i feel kinda bad for not getting back to you guys since posting the above , i've developed so many food intolerences, i can't be absolutely sure that gluten was responsible. but then, on the other hand gluten always gives me a pain in my lower back, whereas other food always give me me a pain at the front (don't ask me why that difference ! no...
  19. jaywalker
    Jusy adding a quick update: After keeping a food diary, I now find that I'm having reactions to all vegetable oils (including Sunflower oil...except for Sainsbury's Oven chips in sunflower oil, oddly) as well as peanuts, cocoa, rice and maize! I don;t know if some of these reactions might be due to products being packed in a factory that handles nuts...
  20. jaywalker
    Thanks. Yes, it does, and I know, but i consume other soy products every day, without ill effect...includung their Vanuilla desser
  21. jaywalker
    I just got glutened by Alpro Chocolate Flavour Soya Dessert. I should have known better. It happenened to several times over a year or two back , and i wrote to Alpro asking if a batch might have got contaminated? They wrote back denying that was possible and pointing out that their products met the current standards of less than blah-blah parts per wotsit...
  22. jaywalker
    Ummm. you're supposed to be on a normal diet for three months, prior to the test, to get a positive result....and even then there are plenty of false negs. My mistake was to wait to wait til the symptoms were so severe i had no real option but go gluten-free, in a desperate attempt to be get myself fit enough to work, before i asked for a dx. To make...
  23. jaywalker
    Unfortunately, i've just done some research and found out what is in that spread, apart from soya oil ...sunflower oil aaaaaand.........palm oil i know that i can still tolerate sunflower oil, cos i've been eating chips cooked in sunflower oil (Loads of them,lately, cos baked potatoes started making me ill....guess why?) my doctor agrees that it can...
  24. jaywalker
    OOps. i forgot your kind suggestion. call me an awkward bleeder, but i was lacto-vegetarian before i became dairy intolerant. Since the intolerance has finally pushed me into be totally vegan, i can't bring myself to go back again. i've visited a dairy farm, and really hate the way the cows are treated. that's why i forgot about the ghee. thanks, anyway
  25. jaywalker
    Thanks, Irishheart and all! I 've just had a talk with my doctor , following my latest reaction (from eating a curry, with no Soy in it), anly we have agreed that the only real possibility, from the list of ingredients on the Soya Spread label, is "vegetable oils". I've now been advised to cut out vegetable oils and keep a food diary. Luckily I...
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