
stanleymonkey
-
Posts
250 -
Joined
-
Last visited
stanleymonkey's Achievements
-
-
lil critters gummies are gluten free
-
I know its not celiac but my hubby is an identical twin and he has crohns and vitiligo and his twin doesn't
-
call jamieson we have always found them to be helpful,
-
go to London drugs and tell them what you need. The London drugs in b.c. Where I am have always been super helpful, even called manufacturers
-
back from our original gastro, told him everything that is going on and it turns out that the gastro who is supposed to be the department head never told us that she has the celiac genes. Given how she first responded when we went gluten free, it is a good bet she has celiac, no endoscopy or anything needs to be done.
rash is probably DH, and sister has same rash so keep her gluten free too.
she is probably just more sensitive to gluten now she is Gr, but hey that's life I guess
if you need a ped gastro in British Columbia Canada ask to be referred to Dr mark riley, he is the only one who hasn't dismissed my concerns
-
thanks for everyone's suggestions,
her little sister has started having the same sort of bowel movements that got us concerned about the eldest bad as it would be maybe notary youngest one has the same issues someone besides our original gastro might start paying attention and help us
today her spots are back on her face and bum, and her vagina is really red even though she is pottyntrained , and her belly seems more swollen on the right of her belly button and she is constipated even though she is back on the PEG
-
went gluten free with our nearly 3 year old a month or so ago. We had a great start, I had my beautiful happy healthy monkey back. Now she is even worse, slowly she started getting bloated again, although to the extreme as before, no appetite - or unbelievably ravenous, vicious moods, bizarre behaviour, rash around her mouth when she eats anything ( seriously anything), constipation, pale skin, looks exhausted
we have seen the head of the gastro dept at the local kids hospital and he diagnosed her with intermittent diabetes due to nerve damage caused by a virus and told us to go back to our original gastro if we felt we needed to see someone for follow ups. We see this doc on Monday but doubt he'll be able to do anything as his boss has pretty much dismissed us
its destroying our whole lives, we can't go anywhere, I take her to preschool but only because she is so exhausted to misbehave, family think she is just naughty and we are bad parents
we don't know what to do
she is definitely gluten free, all celiac tests and tests for all related conditions well within normal ranges
she has no deficiencies
she is dairy and egg free due to anaphylactic allergies,soy free on a hunch, no salt, nightshade
any ideas?
-
chewing cardamom can help
-
some doctors don't get it, the head of the GI clinic at our children's hospital silt the firm belief that if a child is not malnourished, and has no evidence of anything in the bloodwork than absolutely nothing is wrong, but our regular GI and our pediatrician don't care what blood says, they look at the physical evidence. We have been told we can't get an official diagnosis of glutenintolerance as there's of the GI clinic downs't believe it exists.
-
if it says vegan it should be, but I would always read the lsbel , our daughter has an anaphylactic reaction to milk and we have found a few products that say vegan but in the ingredients it has something labeled as a derivative of caesin.
-
well, day 3 gluten free, And all I have to say is who is this child? Can't wait for our appointment with our original gastro because that man needs a great big hug. He is the only one who never brushed us off with toddler diahrrea and withholding stool and a phase
any parents in Vancouver b.c. Need to see Dr mark riley in north van
-
we are 2 days in with our 35 month old, and she is so much better already, she has gone from being aggressive whiny and clingy to almost back to how i remember her 2 yrs ago.
today iwen to fold the laundry and she happily played by herself instead of crying and following me
when one of her toys didnt do as she wanted, she started to cry and i told her to stop and calm down, normally nothing would work and we would have a screaming fit all day long
she has stopped begging for food and had eaten 3 meals and three snacks, not asking for anything other than the stuff i gave her
she has taken herself to the bathroom and not needed help or soiled herself, she pooped withut the need of PEG
she even helped dress her sister
i guess it depends on how much damage is done, she has dropped a pound in weight in 1 day which i'm sure was mainly water and she is tired, but so far so good
keep us posted
-
the specialist at our local childrens hospital told us our daughter in no way had issues with gluten as her ttg was normal the two times it was tested, and the fact she was growing
well we decided to trust mommy instinct, and 2 days gluten free i have my happy, spunky, funny 2 yr old back, no 2 hr tantrums, no clinging to my side
we are going back to our original gastro, he suggested gluten-free no matter what the tests said, and he was right!
-
skin prick tests arent accurate, the skin is completely seperate and different to your gi tract. my daughter had ana anphylactic reaction to milk in baby cereal at 7 months but it didnt show in a skin prick test till 18 months old. the IgE test are the most accurate as your IgE cells are the ones that react to an allergen and the are in your blood, not on your skin.
-
you should ask for a referal to a peadiatric alergist for testing. keep in mind though skin prick testing is not accurate, the skin is different to your GI tract. my daughter had an anaphylactic allergy to milk in baby cereal at 7 months, put didnt get a positive skin test until 18 months old
-
i'd keep away from the berries, there may be too much acid for his stomach
if you google foods that are the least like to cause allergies it should bring up lists, pretty much when you start feeding a baby. everytime my daughter gets sick we do it and it seems to help, make sure even the fruits are soft, you can poach them, also steamed chicken with little ginger. try making your own stock and let him drink it. my MIL is chinese and swears by boiling rice and saving the water to drink, then cooking the rice again with stock till it turns to mush (congee)
-
have they checked for eosinophillic gastroenteritis? Our allergist thinks our daughter may have it as her allergy numbers are crazy high but we never give her any of the things she is allergic to as she has anaphylactic allergies.. Our allergist said people can have too many IgE cells and their body starts to treat everything as an allergen, our daughter has an allergic reaction if she gets a fever above 100
-
we need to a diagnosis of what's wrong as there are so many mother things it could be as there are so many autoimmune issues in the family
also extended medical an schools will only cooperate with an official diagnosis
gluten free is not working she is dairy and egg free due to anaphylactic allergies, we just want to know what is going on
her allergist noticed that her I'Ve levels were crazy high so she wants them to scope her to check for eosinilhilic gastritis
-
docs have given up trying to help us, have started gluten free but what else van a naturopath help with? What testing do they do? Want to know before we pay out lots of money
-
think my previous posts were in pre diagnosis ...... Oops
-
she has pica but all her test were okay
they checked all her enzymes thyroidd even re did her cystic fibrosis test
we have gone gluten free day 1 done, but the Proctor was insistent Most books tests and the fact her weight is finally back to where it was a year ago means nothing is wrong besides maybe some nerve damage I feel like giving him some never damage
-
we were referred by our gastro to gastro clinic at our local kid hospital (daughters history on earlier posts) he wanted new doc to scope to see what is going on inside
we were given a diagnosis by new doc of intermittent diarrhea , told to give Zantac for reflux, no follow up, no directions on meds, told to buy it over the counter, try giving a 2 yr old a tablet! He says she probably has nerve damage from a virus, this kid has been sick 3 times her whole life (flu, tummy bug, group all AFTER the tummy troubles started) and nothing else we done as all blood work is perfect
so frustrated and unsure of what to do, meanwhile the big d continues and she is being thrown out of preschool as she can't stay awake
-
where are you in Canada? In bc It is covered, I'm stunned it's not covered elsewhere, especially as there are more Europeans out east
-
I'dstill go see a gi if he asks him go put your son back on gluten, tell him what gluten does to your son.
Super Sensitive Teen
in Parents, Friends and Loved Ones of Celiacs
Posted
is it dried or fresh rice noodles? My husbands family is Chinese and I know that they use flour with fresh rice noodles to dust the board the are made on to stop them sticking. Dried rice noodles are usually okay.