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Everything posted by daisymae106

  1. Hi Everybody!! Well, the holidays are here and I just made a HUGE mistake! I ate a Lindt Lindor Dark Chocolate truffle ASSUMING that it was ok. I have celiac disease and have been gluten free for 3 years now and I should have known better! I am so mad at myself! Anyway, this is the first time that I can remember that I know I definitely ingested gluten since going gluten free. I'm sure I have had gluten unknowingly or have been cross contaminated because I have had reactions over the last three years, but nothing that I could 100% pinpoint. Anyway, I am not sure what my reaction will be, but I just wanted all of you to know that after researching this just now, most Lindt Chocolate DOES contain barely malt. I think the white chocolate truffles appear to be safe according to the ingredient list although it does list artificial flavors and I am not sure about that. I also have read that Lindt does not maintain that ANY of their products are gluten free. Thanks for listening!! Maybe barley malt does not illicit as strong a reaction as other sources of gluten?? I hope all of you stay clear of gluten in all of the Christmas goodies being passed around out there! Have a safe and blessed holiday season!
  2. Hey Everyone! My daughter brought home something that looked simply WONDERFUL! Does anyone know if it is gluten free? It is Jif Whips Peanut Butter and Pumpkin Pie Spice. I have been trying to research it online and have come up short. I have seen conflicting reports on Jif's gluten-free status. Anyway, thanks for your help!!
  3. Thank you both so much for your replies! It is so encouraging to hear from others who are dealing with the same thing! Thank you again!!
  4. Hey Everyone! Wow, I haven't posted on here in a while, but I am always searching topics to see what all you smart people are saying! I had my check up with my GI doc yesterday, this marks 3 years post celiac disease diagnosis in 2011. I'm doing great, feeling better than ever before, although coping with new issues, i.e. thyroid nodules resulting in low thyroid, low iron, etc. Anyway, I have noticed just in the past few months that my blood work has come back with low protein levels. I'm trying to figure out if this is just a casual, non issue and I just need to eat more protein, or if this points to a malabsorption problem, more specifically, malabsorption syndrome? I've never heard of this before, I have always known that celiacs aren't able to absorb nutrients, but I have never heard of "malabsorption syndrome." Doesn't a celiac's ability to absorb nutrients get better once you go on the gluten-free diet? My other bloodwork all came back great, and shows great results (low celiac antibodies) from being on the gluten-free diet. Just curious if any of you have ever had low protein levels in your blood? I'm not sure if this is just a diet issue, or if I am eating enough protein but it is not being absorbed? Any thoughts appreciated.... God Bless!
  5. Hello Everybody!! I am a celiac patient and have been gluten free for about 8 months!! Still encountering some bumps along the way, but overall I am feeling SO MUCH BETTER!!!! My question in this topic is for a dear friend of mine who just found out today that she is allergic to almost EVERYTHING, wheat, barley, rye, CORN, and SOY. I can help her with the Gluten Free issues, but not the corn and soy! It seems like there would be nothing left for her to eat! Could anyone direct me to some kind of general food list for people who have to avoid corn, soy, AND gluten? She is scheduled to also have a blood test for celiac which I am expecting to be positive. Her aunt had celiac disease before she died of cancer. I don't know if the cancer was related to her being celiac, but I do know she had gotten off the gluten-free diet for a few years before she got cancer. Anyway, I have heard that many celiac patients find out later on in their journey that they have other food intolerances. I am thinking of going to an allergist myself to see if there is anything else I need to avoid besides gluten. If anyone has any input or advice in how I can help my friend I would greatly appreciate it. Happy Valentine's Day!!
  6. Hello friends! I haven't posted in a while as I was diagnosed with celiac disease a year ago and have felt so much better for the past few months without any major issues! Celiac.com has been my biggest help and source of info on my journey of celiac disease. Recently I have been having stomach pain again and I am trying to figure out what it's from. One thought is that it's new food intolerances that I am sensitive to such as corn, dairy, and soy. I am currently trying out the Virgin Diet to help settle my system down (obviously I am already gluten free). The other thought is that I might have had cross contamination from the Visalus shake mix I have recently tried. The shake claims to be Gluten Free but also has a disclaimer because it is processed on the same lines as products containing wheat! So frustrating!! The hardest thing about celiac disease for me (aside from giving up gluten) is the hidden gluten you inevitably get from unknown sources! I just wondered if anyone else has gone through this or might have encouragement!
  7. Hello! 2 weeks ago today I found out I have celiac disease. I am gluten free (to the best of my knowledge) since then! I have noticed a big difference in that I have no more bloating, gas and much less heart burn/stomach pain (it is still there but less than before). I am thrilled to be on this new journey to feeling better! I have been very discouraged to hear about gluten being found in cosmetics, lotions, and shampoos! I am trying to figure out what cosmetics I am using contain gluten and starting the switch to gluten free. My question has to do with hair color (yes I am only as blonde as I pay to be haha) and acrylic nail tips (pink and white, solar, etc). As a stay home mom, I don't do much for myself, but do allow that when I can and would hate to give them up! My question is really this... is there any proof that glutened hair color or getting your nails done will actually harm your intestines? If there is only trace amounts of gluten in these types of products that can actually be ingested into your system, I would like to continue with it (unless of course I got really sick). Does anyone out there have input? I so appreciate it. This gluten free life is very overwhelming. It's EVERYWHERE and it's hard to know how to function normally and be safe. Thanks for any input!
  8. daisymae106

    Corn Free, Gluten Free & Soy Free

    Thank you so much everybody!! This forum is invaluable!!! Happy March 1! LOL!!
  9. daisymae106

    Corn Free, Gluten Free & Soy Free

    I can't thank you all enough for your insight and input on my post!!!! I appreciate it so much. I will definitely let my friend know!!! Thanks again and God bless all of you!
  10. daisymae, you left a message on my profile complaining about the almond nut thins. I don't believe there used to be such statement on the boxes...I'm sure the post was from a long time ago. This incident just reinforces the need to be diligent about ALWAYS reading ingredient lists before buying and consuming products. I would recommend to contact the company as well to register your com...

  11. Hey Everyone!! I have seen a few people post lists of what they have found gluten free at Costco. Their unsalted butter is such a great deal, but it says on the ingredient list "natural flavorings". It only lists milk as an allergen, but it said that people with food allergies should look closely at the ingredient label. Anyway, I know most butters are ok, but I have read where some are definitely not ok. Does anyone know about this brand? Thanks for your help. I have been feeling so much better now on my 5th month of GLUTEN FREE FOR LIFE (diagnosed with Celiac in late July 2011).
  12. That is nuts! LOL I know for a fact that Land O Lakes is safe (at least that's what I read).
  13. Thanks Peter, this is what concerned me. Other butters I have purchased have been all natural, just pure butter. Anyway, thanks for your input!
  14. Hello everyone!!! I hope you are enjoying gluten free holidays! This is my first holiday season going gluten free since I found out I have celiac disease back in the late summer. I was wondering if anyone knew if Lucky Leaf Premium Cherry Pie Filling is gluten free? I am finding mixed information online. The ingredients on the can list that the modified food starch is corn based. But, I have seen other websites who say there are questionable ingredients. Can anybody help me on this? Thanks and Merry Christmas!
  15. Thanks for the fast reply!!!! I so appreciate your input. I think the natural flavoring thing always throws me off!!!! Ugh!! Thanks again. I feel better especially after I just bought a huge pack of it. haha! Merry Christmas!
  16. THANKS SO MUCH! I know for certain that Comstock is gluten free. That at least gives peace of mind to know 100%. But I am glad to know your relationship with the Lucky Leaf people. That makes me feel better!
  17. Hello Everyone!!! I know that regular Sudafed is gluten free, but I am wondering about the 12 hour Equaline brand? I have heard conflicting reports on polysorbate 80? Anyway, here are the ingredients in case anyone knows. I so appreciate this forum! It has been SO HELPFUL! EQUALINE 12 HOUR DECONGESTANT (pseudoephedrine hydrochloride) tablet, film coated, extended release Active Ingredient: Pseudoephedrine HCl 120 mg Inactive Ingredients: carnauba wax, colloidal silicon dioxide, dibasic calcium phosphate dihydrate, hypromellose, magnesium stearate, microcrystalline cellulose, polyethylene glycol, polysorbate 80, titanium dioxide
  18. Thank you so much for responding to this!! The only other questionable ingredient is "artificial flavor".
  19. daisymae106


    Hello!! I am 2 months into the Gluten Free lifestyle, diagnosed with Celiac Disease in July 2011. During the time of my testing and various doctor appointments, they would routinely check my temperature and I would be running a low-grade fever! They would ask me if I was fighting a cold or feeling sick, but it was always a shock to me as I never suspected a fever. My hands and feet are usually on the cold side, but my head is hot. LOL Does anyone else go through this? I never knew I ran a low grade fever but it has happened more than twice when I have been at the doctor for other reasons. I am wondering if this is related to Celiac Disease. I feel frustrated with so many unanswered questions going on with me. My son's bloodwork for celiac recently came back as a "weak positive". I am hoping to find a good doctor that is familiar with Celiac Disease in children. My son doesn't have any symptoms except bloating and gas which he has learned to live with. I just want to make the right decisions in moving forward and I don't want to ignore anything that could be serious. When I received his bloodwork results, the nurse merely suggested I could try him on a gluten free diet for a while. I am thinking a weak positive still means positive! Thanks for listening. This community has been so encouraging and helpful. I have felt MUCH better since being gluten-free, but the idea of Celiac Disease being an auto immune disorder is scary when you think about the ramifications it can have down the road. Any comments or thoughts on this would be appreciated!
  20. Hello Fellow Gluten Free Friends!!! I am only posting this because I can't find the information ANYWHERE online, including the Shamrock Foods website re. their products in general. My question was regarding their Dessert Topping, Ultra pasteurized whipped topping. I called the company and they were kind enough to put me in touch with the TOP CHEF who called me personally from his cell phone! He asked me to read the ingredients which I did, and he reassured me that there is no gluten or wheat-containing ingredients in that particular product. Anyway, on the off chance that anyone is researching this product, I wanted you to know it is gluten free!! Thanks!
  21. daisymae106


    Hey!! Thanks to you both for your replies! Amazing, isn't it? I am so glad to hear that others have gone through this. I don't ever feel feverish, it's strange because I never knew gluten could be the culprit. I know some people run higher temps than others anyway but It will be interesting to see if I still have a low grade temp the next time I go to the dr. Hopefully I am not getting accidentally glutened. Thanks again and I have so appreciated this forum! Take care and God bless!
  22. That would be awesome if you can fix it!! I didn't have inflammation, but maybe the doc caught it early. Anyway, I am just so glad to be on the path to feeling better!!! Thanks for keeping me posted!
  23. Here are my celiac panel results: IgA: Sufficient Gliadin IgA Ab: 8 Tis.Transglut.Ab IgA: 75 (Positive is indicated as >30) That is all my test results are telling me and I am trying to figure out if I can be celiac if my IgA and Gliadin IgA Ab numbers seem to be in the normal range, yet my ttg numbers are 75. Thanks for your help! I had an endoscopy yesterday which looked normal to the doctor, but he took several biopsies of my small intestine to send off and check for celiac damage. He said my elevated ttg are not the usual markers for celiac, yet in my own research, I thought that elevated ttg was the MAIN marker for celiac? I am confused and have to wait a week for the results. Any input out there? Thanks! signed.... CONFUSED!
  24. I hope you get clear answers for your son too! Thanks for sharing about what you are going through. Keep me posted if you can!
  25. Thank you so much for your reply! I have never heard of that test. I will have to look into that! Also, I am just reading your symptoms below your post! Have you been diagnosed with celiac disease yet? I had many of your same symptoms, including the muscle twitching. I haven't seen anyone else who had that. I am interested to see what your results are! I hope you can keep us posted! I don't really have nausea, but have the upper abdominal pain, mostly in the center but sometimes to the left. Anyway, thanks for reading and responding to my post! Take care and I hope everything works out well for you! God bless!