Generic

When I participated I didn't have to do a scope. They must be really getting down to the nitty gritty of this. Did they say whether or not the scope is done before or after the study meds? Just curious...

I agree drugs are pushed way too much. I stand by why I participated.

It is in hope of raising awarness, hoping they can give my dad a pill that will help him to not slowly kill himself, and cc issues.

I have hope that there will be something available within in the next 5 to 10 years. I just hope it happens before it is too late for my idiot dad.

If anyone at all has questions about participating let me know here or send me a pm.

I'll be happy to help.

I had a GI Dr. call me this morning from Virignia Mason (the hosp. where I particpated in the study). He told me that the phase I participated in went so well that the new study is focusing on using the At-1001 on newly diagnosed Celiac paitents. They want to know if it helps them heal faster.

Just thought I would pass along the info.

I participated in the study a year ago. I started in Nov. had to stop Dec. 24th due to a diseased galllbladder. I found out that I was recieving the actual test drug (not a placebo) and wheat flour in capsules. I am a person who is super sensitive and reacts horribly to gluten and I DID NOT get sick! Not even once! Hooray!

I had a three reasons to make myself a guinea pig. I was diagnosed 21 years ago and never in this life expected for them to come up with any sort of pill, shot or whatever to help with celiac. It was considered extrememly rare back then.

* I wouldn't take any pill on a regular basis, but would like a safeguard against cc.

* Think of all the awareness a pill would bring. (think "IBS" pills or lactose intolerance pills, etc. Most people never heard of it before there was a pill.

* I was willing to sacrifice myself for idiots like my dad and sister (sister has since gluten-free). My dad is litteraly killing himself because he refuses to give up gluten.

If you have any questions let me know.

I have thrown up violently as an adult from accidental gluten. To make things more fun I usually have both ends going at the same time. (TMI sorry). I end up sitting on the can w/ a trash can on my lap. I would continue to do this to the point that I was severley dehydrated, delerious and passing out. The only thing that would stop it, would be a trip to the E.R. and getting an I.V.

I no longer have violent reactions like that (KNOCK ON WOOD!) I hope I didn't just curse myself. How I got over the severe reactions was going to acupuncture. She calmed my immune system down. Up until last week it had been 3 years since I had a cold. I always tell her she is worth her weight in gold.

Now when I get glutened I get a slight stomach ache w/ the runs and then it is over.

I'm hesitant to say go for the vacination. Shingles is just the Chicken Pox coming back to haunt you. Most people never get shingles others get them multiple times. My daughter got the at the age of 10 years old. She had chicken pox at 5 years old. She was treated by a Dr. both times with each outbreak. So it wasn't that she wasn't treated properly. Some people just get them.