fairydust81

Many thanks for the ideas, I really am hopeless, i can manage preparing food for my daughter so I should take a leaf out of her book (she was born with a bowel malformation and underwent so many surgeries and endured a temporary colostomy, she is now 7 and will only eat healthy, refuses to eat junk (processed food) as she has learnt that anything like that...

I really feel for you, it's so awful what you have been through... It is always possible to have false negatives and like other diseases even people with coeliac, still with gluten in their diet can have negative bloods - rheumatoid arthritis for example, you can have all the outward symptoms and bloods for inflammation are high, but the key diagnostic...

I would definitely seek medical advice from your doctor, especially if the pain is unbearable. If anything, they'll hopefully be able to give you something to help ease the pain and discomfort in your abdomen. I also agree with the post above - this is your body's way of telling you it really doesn't like gluten, especially with the positive bloods etc...

Thanks for the replies - so glad I have found this site and found so many wonderful people who truly understand. Thankfully I have never met this woman and I don't think I'd like to, judging by some of the stories I've heard about her. Just getting to grips with basics now - I normally reply on the hospital restaurant for my breakfast and lunch (I...

Having only just being diagnosed I'm still trying to come to terms with things and preparing for a gluten-free lifestyle after my skin biopsy on the 14th. All the people I work with and my family have been great, really supportive, asking lots of questions and looking round the supermarket for food they can prepare for me when I go and visit them - at...

Hi there, I'm a scientist researching RA and even though your bloods are negative it's still possible to have "seronegative" RA. but there is a classification system that rheumatologists follow to aid in a diagnosis. This includes morning stiffness, multiple joint swelling, changes on xrays, presence of nodules, positive rf factor in the blood etc. You...

So I'm guessing then that the likelihood is I do have coeliac and this awful 11year old rash is the associated DH? Found out today (unofficially as I work in the building where the labs are based) that my coeliac bloods are highly positive :-( Feeling somewhat elated that after 11 years I have an aswer but then downhearted that after my biopsy in two...

Hi everyone, Since joining this forum a few days ago I've found it to be so so helpful. Lots of information and guidance and helpful advice. Well my RAST results (wheat allergy) and coeliac antibody panel test results are slowly starting to filter through. Only one that's on the system so far is anti-IgA which was 1.7 but at present there are...

I'm new here so still navigating my way around the boards. I have been suffering with my skin for 11 years (along with other symptoms) and have had many diagnoses including eczema, latex allergy etc. My skin is at the worst it's ever been and the intense, painful itching is driving me mad. My GP looked at the rash and said he thinks it's linked with...

I'm not yet officially diagnosed but it's likely that I have coeliac and DH. I was diagnosed with a form of rheumatoid arthritis earlier this year. When I eat food containing wheat/gluten my skin starts to burn/tingle. Within 12-24 hours the rash covers my arms. A further 24 hours later and I get a bad arthritis flare. The last bloods showed my inflammatory...

Thanks so much for your replies. I have been to see my lovely GP this morning and he can't decide if it's an intolerance to wheat or if it's coeliac disease. So I've had my bloods taken to test for both wheat allergy and coeliac antibodies - I also have an appointment with a dermatologist on the 14th July to have a skin biopsy done. He wants me to go...

Hi everyone, I'm new here and found this site after googling for more information. I have not yet been diagnosed with Coeliac disease however it's looking more and more likely that this is what I have. I'm off to the Docs in the morning with my food and symptom diary with a plan of having my bloods done. Basically here's a little about me: I'm...