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Latest Celiac Disease News & Research:
Everything posted by Greg Rappaport
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ARCHIVED Stress !@#$ And Celiac Disease
Greg Rappaport replied to Greg Rappaport's topic in Coping with Celiac Disease
You are so much more optimistic than I am. I admire that in you, and often wish I could possess this admirable trait myself. I am just too damn hard on myself, and often find it difficult to ignore the little things in order to allow me to enjoy the more important things. For example if I'm having a good time playing with the kids and they wind up spilling... -
1. What does the "mark board as read" button do? 2. What does the number of circles underneath my picture/avitar signify? 3. My status keeps changing... Member, Advanced Member, Community Member... is there a key somewhere that will explain the differences to me? 4. What is a topic poll? Thanks!
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ARCHIVED Diagnosed Celiac, But Not Allergic To Wheat?
Greg Rappaport replied to Greg Rappaport's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I did allergy testing for the first time last year, and of all the foods tested, the only one I came back positive for was soy. Indeed, as I stated in another post, I eat soy (like edamame) frequently, but have never had any form of rash, breathing issue or other problem. I guess I'll have to ask my GI doc. about being tested for soy intolerance. Intersting... -
ARCHIVED Celiac, Caffeine And Sweating
Greg Rappaport replied to Greg Rappaport's topic in Coping with Celiac Disease
Had been off caffeine now for nearly two weeks (no soda or coffee) and broke down today and got a small diet coke at Wawa. Stomach felt horrible all evening until I came home and ate an Udi's gluten-free bagel. -
ARCHIVED Stress !@#$ And Celiac Disease
Greg Rappaport replied to Greg Rappaport's topic in Coping with Celiac Disease
So I have been gluten-free now for some 12 years, and have not visited the gym for 2 years (ever since my son - third child - was born). So I keep thinking that I really need to once again incorporate exercise into my daily life, but you seem to suggest that having a gluten-free diet is more important, yes? Obviously both would be ideal. My problem right... -
ARCHIVED Stress !@#$ And Celiac Disease
Greg Rappaport replied to Greg Rappaport's topic in Coping with Celiac Disease
I can definetley relate at times, although I cannot say my feelings are as pronounced. I easily get caught up in what I envision to be my future success: promotion at work, completing graduate school, or simply raising my three children without them getting hurt or sick (yea, like this is ever going to happen!). But that's the problem: I often take things... -
ARCHIVED Stress !@#$ And Celiac Disease
Greg Rappaport replied to Greg Rappaport's topic in Coping with Celiac Disease
Cannot even imagine being so young and going through this. How are things for you now? Any better? I was about 29 years old when I was diagnosed. Three explanations were posited: Celiac was caused by a major trauma, surgical event or a period of traumatic or prolonged stress. The first two were (of course) promptly ruled out. At that time had... -
ARCHIVED Stress !@#$ And Celiac Disease
Greg Rappaport replied to Greg Rappaport's topic in Coping with Celiac Disease
Looks like quite a few people have read this, but few responses. Is it just me or are there any other celiacs out there living a high stress life?! Perhaps I just need a therapist. -
ARCHIVED Diagnosed Celiac, But Not Allergic To Wheat?
Greg Rappaport replied to Greg Rappaport's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thanks. I have never had any of this, but I imagine you will stil need some time (1-2 years) to see the results of your gluten-free diet and any net positive results. Good luck to you as well. -
ARCHIVED Cracking Skin On Fingers
Greg Rappaport replied to Greg Rappaport's topic in Dermatitis Herpetiformis
I don't believe I'm as strict as you. Definitely not, but I do a pretty good job with my diet. I buy a great deal of my gluten-free items from Wegmans or Whole Foods (almost all of which is labeled gluten-free). I also label my containers so if my wife uses these items for the family, she knows not to double-dip . My foot problem is simply put:... -
ARCHIVED Cracking Skin On Fingers
Greg Rappaport replied to Greg Rappaport's topic in Dermatitis Herpetiformis
Oh, fish food is almost entirely gluten! But this brings me to my other post where I questioned the difference between celiac disease and standard allergies. I am not allergic to wheat and some other grains by way of my allergy testing, but do have the autoimmune response to these same grains. So I'm guessing that my skin acts as a sufficient barrier when... -
ARCHIVED Celiac And Joint/bone Inflamation
Greg Rappaport replied to Greg Rappaport's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Wow. Again I don't know what to say. I don't want to come across as if I'm complaining too much, but really do appreciate getting all this feedback from various people. The engaging conversations alone are quite ameliorating. Most of my doctors give me 10-15 minutes - not even a dollar a minute per copay! I often wonder if they really care. As much... -
ARCHIVED Celiac And Joint/bone Inflamation
Greg Rappaport replied to Greg Rappaport's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
My foot is still the same! Just refuses to get any better. In the morning it's good, but as the day progresses (depending on how much I am using it) it worsens. The fact that it only gets worse during weight-bearing activity (walking) tells me that the inflamation is not likely to be the result of anything autoimmune going on in my body. But who knows... -
Perhaps this is not the best forum to discuss this in, but I'm wondering if anyone has come to any conclusions about the relationship between those individuals diagnosed with celiac disease and being simultaneously burdened (behaviorally) with a high-stress lifestyle. I welcome any discussion here. Thanks. -Greg
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ARCHIVED Celiac And Joint/bone Inflamation
Greg Rappaport replied to Greg Rappaport's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thanks for sharing your story. Reassuring to know that I'm not the only one with "mysterious" symptoms that none of my doctors can seem to get to the bottom of. Praying that things work out soon, and wish you the best as well. -
ARCHIVED Celiac And Joint/bone Inflamation
Greg Rappaport replied to Greg Rappaport's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
You are the second person to mention nightshade foods. I had never heard of this before, and another member mentioned them under another post of mine. I'll discuss this with my doctors to see if there anything. I don't feel terrible, just really getting frustrated that I cannot seem to shake the inflamation and (periodic) pain in my right foot. Really... -
ARCHIVED Celiac, Caffeine And Sweating
Greg Rappaport replied to Greg Rappaport's topic in Coping with Celiac Disease
Thanks for the response. What are "nightshades"? Not sure I have ever heard of this as a food group. I am going to discuss soy with my doctor - going to see a rheumatologist next week, and will reconnect with a GI doctor soon. -
ARCHIVED How Can I Watch/manage My Topics?
Greg Rappaport replied to Greg Rappaport's topic in Board/Forum Technical Help
Thanks so much for the tips, Janet. I have found them, and now use them. This is what I was looking for initially, but being a new user, was not yet familiar with the territory. Regards, Greg -
ARCHIVED Celiac, Caffeine And Sweating
Greg Rappaport replied to Greg Rappaport's topic in Coping with Celiac Disease
I'm guessing it is all caffeine. Sometimes when I drink a soda I get a rash on the back of my hand. Anyway, definitly ruled out RA via blood-test. I am asking my doctor about Sjogren's Syndrome next visit. Not sure about Lupus yet. My sister-in-law has Lupus... I'll ask her some questions first. Not sure if you've seen any of my other posts, but I... -
ARCHIVED Diagnosed Celiac, But Not Allergic To Wheat?
Greg Rappaport replied to Greg Rappaport's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Very nice explanation. Thanks. Can't say it is as clear as mud, but perhaps I need to start doing more of the "dirty" work in pursuing my symptoms. Thanks for the feedback. I'll also look into the soy thing. I guess I need to determine if I am having an autoimmune response to soy, yes? Do you know if there is a simple bloodtest for this? Regards... -
ARCHIVED Celiac And Joint/bone Inflamation
Greg Rappaport replied to Greg Rappaport's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I read both of your replies. Thanks for taking the time to respond. I don't know what to say... Your issues make me seem like a complaining pest! I can totally appreciate you issue and concern for your children. I too have children. Three, two girls (6 and 4) and a 2 y.o. son. Neither girl has any allergies or gluten intolerance (at least for now)... -
ARCHIVED Celiac And Joint/bone Inflamation
Greg Rappaport replied to Greg Rappaport's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I have been taking Flax Seed Oil (Omega 3,6 & 9) for about 3 months now, and have noticed no difference. I just started taking chelated forms of calcuim, zinc, magnesium and other minerals as well as the Biosil another person recommended as well as an herbal joint-relief supplement called Zyflammend. My cousin, who is a Jefferson graduate and anesthesiologist... -
ARCHIVED Celiac And Joint/bone Inflamation
Greg Rappaport replied to Greg Rappaport's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
What are salicylates? How do I know if I am ingesting them? Are they an ingredient in NSAIDs? I usually don't take too many OTC medications. -
ARCHIVED Diagnosed Celiac, But Not Allergic To Wheat?
Greg Rappaport posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
OK... Somebody please explain this one: I have been diagnosed with celiac disease now for 12 years. Gastroengerologist confirmed via bloodwork and biopsy, as well as recovery following gluten-free diet with multiple rechecks (biopsies) over the past 10 years. So I go to an ENT doctor last year to get tested for seasonal allergies (prompted by... -
ARCHIVED Cracking Skin On Fingers
Greg Rappaport replied to Greg Rappaport's topic in Dermatitis Herpetiformis
It's comments like yours which lead me to believe I am not being as vigilant with my gluten-free diet as I need to be. I have been gluten-free for 12 years now, and am pretty comfortable all around... Perhaps too comfortable though (i.e., cross contamination, food preparation, gluten in mass food preparation, etc.) I have every reason to believe that my...