maitrimama

Here is a little blurb from the ACDA - "If a patient’s celiac panel is only positive for antigliadin IgG, this is not highly suggestive for CELIAC DISEASE if the patient has a normal total IgA level, corrected for age. Younger children make less IgA than older children and adults. A markedly elevated antigliadin IgG, such as greater than three to four t...

My daughter was older, 15, but based on positive bloodwork and 2 rounds of stool testing they recommended endoscopy and colonoscopy. That was 1 1/2 years ago. The Dx was Celiacs and IBD. She goes back every 3 months and the IBD has been narrowed down to Ulcerative Colitis.

Whole Foods has gluten free candy canes. They also have frozen gluten free pie crusts which make my daughter's favorite pumpkin pie a snap for Turkey Day!

Dr Hyams was not presented with a diagnosis, he was presented with preliminary test results and then ordered additional tests. No diagnosis was made until all the test results were in and analyzed. It turned out to be a complicated diagnosis and I appreciate his concervative approach. Though my experience with Dr Hyams may be coming from a different side...

I totally disagree, Dr. Jeffrey Hyams and his team at Connecticut Children's Medical Center are fantastic!We are very grateful that he was put in our path and I think I mentioned Dr Hyams by name in a post ~1 year ago. Based on our experience I would recommend Dr Hyams to family and friends of ours. In July of 2011 my teenage daughter (15 at that time...

My 15 yr old daughter was Dx with Celiacs and IBD last September her GI doctor (a well known and respected Pediatric GI) and he and the nutritionist made it clear that all gluten had to be removed from her died but dairy was fine, even encouraged, unless the dairy began to cause problems. That infact she needed the nutrion, calcium and calories, from dairy...

It is the Paleolithic Diet that I was reading about. It is gluten free and then some.

I will reread the article and let you know what I figure out. In thinking back it may have said that it is best to be gluten free and remove legumes from your diet as 2 seperate things. Somehow linking the protein in legumes with leaky gut.

Thx for the info. Don't have to worry about eggs because all of a sudden they taste disgusting to me. I will go ahead and reduce iodine where I can. Since you have been a wealth of knowledge I have another question for you... What is the celiac/gluten free stance on legumes? I have always thought that legumes are a great source of protein and fiber. The...

Yes, I have been gluten free for almost 3 weeks. An odd thing is that, other than dairy & legumes, protein sources have all begun to taste like yucky fish. I am already worried about the decrease in protein in my diet. Does all dairy have iodine?

Have had rash since July and GP thought it was shingles. In Sept I we t to dermatologist who barely looked at it and said "dermatitis with some fungal thrown in for good measure. He gave me steroid cream and antifungal cream. The first 2 days the rashes improved then was kind of neutral for a bit. Now the part where the rash has always been is paler pink...

KM - I like your attitude. My daughter is doing okay. Her best friend has gone gluten free with her! How sweet is that!!!

So far everything is going well. My daughter really is a good kid & well liked by teachers and staff. It helps that the middle school (where her sister is) and high school are separate parts of the same building & she has had the same guidance counselor since 7th grade (she is now in 10th). Not only did they agree to universal bathroom pass, seating...

Does anyone know of a MS Forum that is similar to this one? I figured since they were both autoimmune diseases , and I have already gotten so much good info from all you people, it was worth a shot - thx

Thx so much for your help! It is my goal this weekend to put together some quick reference cards, including the various gluten-free food symbols for her. I'll laminate them and she can stick them in her wallett!