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Nannu

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Everything posted by Nannu

  1. Nannu
    Thankyou Skylark.
  2. Nannu
    Hi Maximoo, That's really nice, i am so happy for you. My DD is 6 yrs and she is 3 ft and 8". She is not into milkshakes but she enjoys milk with pediasure. Nannu
  3. Nannu
    Hi All, I am back with a good news. My DD has shown significant growth (115 cms now). Thank you everyone who had posted, for their support and guidance. For the benefit of others, let me just add the additions that we have done in her diet, supplements etc.: Probiotics multivitamin syrup Brown rice intake increased Half boiled eggs intake increased...
  4. Nannu
    That's great dear. For us, we did the testing only in Feb this year and Dr has asked us to repeat the tests after 6 months. We are continuing as it is as of now and will see which all tests can be done after six months. I guess i did browse through the catalogue of the lab here to check if this test was available but it wasn't may be they add this test in...
  5. Nannu
    Hey StephanieL, We have had discussions earlier, this time you mentioned, which specific test did your Dr order which came back normal? Sorry for interrupting this thread. Even we did anti gliadin IGA test and that was absolutely normal, but later on we discovered that its not very sensitive and TTG levels in the only ultimate measure. Thanks Nannu
  6. Nannu
    Hi, I had read your post earlier itself but had to rush out station for some family emergency. I wish to share with you that my case is exactly similar to yours, below is my thread that you might be interested to read and get some information. I am sure it will help. Sorry for keeping the reply really short, if you have any specific questions, please feel...
  7. Nannu
    Thank you all for replying. My DD's feet size is definitely growing, just changed her school shoes. Started her on a multivitamin also. Hope all that helps. Completely agree with xjrosie also, not everything is related to celiacs, i have exerienced this myself and our kids will also go through same kind of sicknesses as all other normal kids. Look forward...
  8. Nannu
    Thanks maximoo, you are so right. Now i am able to connect, she was on multivitamin 1st six months of gluten-free diet and then, we told doc that she is eating well, lots of fruits and vegs etc, and then we stopped supplement. i guess i'll start it again right away. Thanks once again. Hope you see your DD gaining more height soon.
  9. Nannu
    Hi all, Well, not making my post very long, a bit of background about my 6 yr old DD. She was diagnosed a year back. Her symptoms were short stature, aneamia, vitamin deficiencies, low weight gain, unexplained D. As soon as we started her on gluten-free diet, her height and weight gain were very fast. From 101.5 cms to 112 cms in 1st 9 months. From 10th...
  10. Nannu
    Yes Skylark, Thanks for those links. I checked all of them. I am amazed about the knowledge and perspective that you have in this area. Today we went to see Hematologist also. And he suggested that thal minor has nothing to do with high ttg levels. i guess i don't have a choice but to just wait and watch when exactly levels start showing a drop. One...
  11. Nannu
    Skylark, For adults the report mentions as follows: Sensitivity - 31-100% for adults Specificity - 85-100% for adults I feel it is the anti gliadin test only.
  12. Nannu
    Skylark, Thanks for the reply. This is what lab report mentions about the test: Sensitivity - 90-100% for children Specificity - 86-100% for children Other than this, we were in touch with the senior pathologist in the lab who was aware of her ttg and EMA results. So, on his own he did a repeat TTG and repeat AGA to give us sure reports. He also...
  13. Nannu
    Hi All, It would be nice to get some views on this entire testing episode. Is my doctor's belief alright? I am still thinking why the ttg levels have not moved at all from 296. They could have shown little change at least. Somehow, i am not getting my belief in place that we will be able to see a fall in ttg after 6 months also. As far as i know, levels...
  14. Nannu
    Hi, I am also not so old in this forum, but from whatever i have in posts here, may be it is worth trying GFD for a while, and your DD feels better with her symptoms. Sometimes, people have benefitted within one week of starting GFD. May be more experienced people here are able to give a better view. All the best and i hope you are able to get your answers...
  15. Nannu
    Hello Everybody, Finally the results are out. My DD's anti gliadin IGA are well within normal range (negative). We were delighted that at least gluten contamination issue is sorted out. But, our doctor said, she doesn't really consider AGA iga results as the test sensitivity is low and it is loosing importance nowadays. She has asked us to continue with...
  16. Nannu
    Hi tennisman, Happy to know that you are having great time with nicely prepared gluten-free meals, i guess you are mentioning Indian restaurant outside India. where is this located. Thanks Nannu
  17. Nannu
    Hi, My 6 yr old was diagnosed a celiac with positive ttg levels and positive biopsy. There were no major symptoms other than occasional D, but our main issues with regards to her health were iron deficiency aneamia, low Vit D, poor growth in terms of height and weight. Since birth, she used to throw up a lot and i mean really a lot, but doctors dismissed...
  18. Nannu
    Hi, This is the reply i got from Orgran. I thought it would be worth posting it for our fellow celiacs. "Thank you for your email inquiry. As oats contain gluten we do not use them in our products. We suggest you talk to your child
  19. Nannu
    Hi T.H., As i was going through this post, saw your reply above and thought if you faced same thing what i am facing with my DD. Below is the thread that started to discuss the my DD's condition: My link Just one question, did you make any progress on your TTG levels after 6 months or no progress? Was just curious to find out, may be it could help in...
  20. Nannu
    Thank you so much Skylark and StephanieL. I do hope something comes out from anti gliadin tests which are awaited next friday. Will update after the results.
  21. Nannu
    Hi Skylark, Our biggest drawback at the time of diagnosis was that the best of doctors here in India conducted only TTG and no other blood test. Now, i don't have any other baseline readings for any other tests and right at that time we didn't know so much about celiac and all related testing. I was not expecting a 0 TTG but it should have reduced a little...
  22. Nannu
    Finally, i have the results of DD's EMA AB IGA : ENDOMYSIAL ANTIBODY, IgA IN DILUTIONS (IFA) ENDOMYSIAL ANTIBODY Positive TITRE 1:10 Positive 1:20 Weak Positive 1:40 Negative anti TTG IGA - 296 (ref range 0-20). Is there a...
  23. Nannu
    Hi Skylark, Lab confirmed that their ttg testing can detect even higher values and that these are actual numbers. Will keep updating. THanks Nannu
  24. Nannu
    Thanks for explaining Skylark. I have registered a request at the lab to get a clarification on this. Lets hope that they get back. Thanks again. Nannu
  25. Nannu
    Skylark, Thanks again. What do you mean exactly? I feel this lab is able to read the numbers upto 300 atleast. Mine has always been below 300. I guess i didn't understand your question well.
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