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TTNOGluten

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  • ChristianGrey

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  1. I worded that previous post wrong, I meant to say it feels like someone putting their fist through my upper belly into my midback, not my butt, it extends right along the rib cage on the right. I have had a look at my back as the source which was unremarkable with exception of slight thoracic deg. disc at age 42. They even tried to do some steroid back...
  2. I really do not eat any spicy or acidic foods, I have had PH probe testing acid and they say everything is fine, this doesnt really burn , it is like someone is putting their fist in my but and I have extreme mid back pain into my right flank, gallbladder is out, last EGD 6 months ago they say is OK, pain is incredible, constant, relentless pressure twisting...
  3. I have not posted anything in quite awhile, I guess I just need to vent again. I am have been looking for that miracle of health for 1 1/2 years and according to Gi doc, he really doesnt know why I feel no better. I have been strictly gluten free for this time frame, and according to my last few sets of labs my TTG Iga has been back to normal and my biopsies...
  4. I have not been taking either. Guess I have been reluctant to add another variable to the mix, maybe it is something I should consider, honestly most days I feel so ill I have a hard time even thinking. I guess I am frustrated with why this has been such a long process, especially if my celiac disease according to the GI doc has healed.
  5. I have not posted for some time out of frustration with my ongoing issues. I have been gluten free now for over a year with virtually no improvement in any of my symptoms with the exception of bloating and belching. My pain from day one has been through into my mid back and around into my rib cage, even in the past year prompting my gallbladder removal...
  6. Sometimes when I read these responses I get a little choked up as corny as it sounds. I cant believe the outporing of help and suggestions that come from many of you who have walked a similar path. It is a lonely place to live many days, sometimes I think I am being punished somehow for my youthful stupidity. thankfully I am blessed with a wife that is...
  7. My home is as gluten free as I could possibly imagine it being, I have different toothpaste, soap, utensils, different grill. I cross reference all my own meds as does my pharamacist. No pets, had to put dog down last year, never smoked, drink very little other than water or almond milk, once a month I will have a gluten free beer but can only handle about...
  8. I have not posted with the exception of yesterday in quite some time, mostly out of my own frustration and battling some of my ongoing demons. I found quite honestly with my lack of improvement that I was getting depressed reading all of the posts about the debilitating nature of this disease. In the past year my life has been stolen, going from an active...
  9. I have not posted in quite some time out of frustration, mostly because I have been depressed about my situation and lack of improvement. I have been gluten free for nearly a year, and have had more tests than humanly possible in one year, including 4 EGD's, my biopsies and labs have normalized more than 6 months ago, yet I have been left with persistent...
  10. Boy do we ever have a similar story. I have been on a 8 month quest to define my illness after previously being perfectly well until august 9th, 2011, then got ill and have not right since. I think I have had virtually every conceivable test and have three docs daignose me with celiac disease including four biopsies and labs, one loacal, two a Mayo clinic...
  11. AVR, Your symptoms sound very suspicious for hyperparathyroidism. It is frequently missed by many docs due to fluctuations in your calcium levels and not putting the whole picture together. Do yourself a favor a go on parathyroid.com and read Dr. Norman's site info, he is the world's foremost expert on this. I think it would be worth your time. Best...
  12. I have removed the dairy(casien) from my diet as well. NO real change
  13. Well the past few weeks have been interesting for some new diagnostic studies, was hoping that all the veteran celiac folks could shed some insight. I have been seeing a gastro for 2 months now who I really like, he takes time and is very thorough. I had another EGD 2 weeks ago and an entire battery of celiac labs completed again, which shows normal biopsies...
  14. I have had so many tests it seems that it is making me confused at times. Most of them continue to come back negative, yet the nausea, back and rib cage pain, and dizziness in the morning continue. Starting to feel helpless with finding an answer as I just want to feel better. Prior to August 9th I felt great and then bam overnight all of m symptoms came...
  15. Well after a follow up to see the gastro, got some interesting news, I have been gluten free now for over five months, my epigastric discomfort and back/rib pain continue, but after a EGD on tuesday my biopsy is now reported as normal and my labs are also normal. So I guess I am happy, just still trying to figure out why my symptoms seem the same. Curious...
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