Jai

No. I'm the only one in the house. So, the test should be accurate....as accurate as they are, anyways!

My daughter is now 5 1/2 and I have suspicions of celiac disease. My mother has it, and I have "suspected" celiac and have been 100% gluten free for a year and half. My daughter was tested at 2 years old due to family history and her small size, but the bloodwork was negative. She is still extremely small for her age, maybe moreso now than she'd been...

depends how long you have to wait for the biopsy. However, a false negative biopsy is more common than a false positive blood test. Depends on the severity of villi damage....you can have symptoms even before the villi are severely damaged...

oh well, if you weren't eating gluten, then there you go! You have to be in order for the biopsy to be accurate. And do you feel better when you stop eating gluten? Do you need more of an answer than that? I've had a top GI tell me that clinical results are worth way more! He said negative biopsy and all, he considers me celiac...

Well, I had an "inconclusive" blood test and negative biopsy (of course this was done several months post gluten-free) We had suspicions and there was no way I could continue to eat gluten while waiting for the biospy (gotta love Canada's healthcare system!) My mother has celiac and I had 100% the same symptoms as she had. I eliminated gluten and s....

Hi Sorry about your struggle. I was in a similar situation where we did not have the 100% YES you have celiac diagnosis. Luckily, my husband was supportive none the less and often believes it more than I sometimes do.... I also have to family history, and symptoms, but inconclusive blood tests. Do some research on the internet about false-negatives...

I'm looking for a gluten-free OTC sleep aid...besides melatonin, since I'm taking 9mg and still lie awake for hours. I used to love Nytol, but they say that although no gluten is added, it's not certified gluten-free. I was actually on oxyzepam to help me sleep, but it no longer works. A bit of history....prediagnosis I slept fine, the first couple...

well, it is low, but not enough to treat...and it's always been low. I think that as I continue to recover/heal, it will go away, too....I hope anyways.

I'm so tired of being out of breath. I've been gluten-free for 5 months now and it has definitely improved, but still randomly, I get so out of breath from very simple things...sometimes for no reason at all. I used to be an athlete and now 1 flight of stairs and I'm winded. I'm 33 years old, healthy, non-smoker. I'm tired of this. Am I alone?

I need to have the colonoscopy done anyway, so I called the Dr today, and they said that he would see it, so just wait the week until the colonoscopy and "while he's there" he'll keep an eye out for worms, too. Then we'll proceed from there. I guess if I do have them (please no!), what's another week?! the joys...

I will discuss with my Dr next time I see him for sure. It's just that I'm having a colonoscopy done next Thrusday and that's when I'll see him next...I didn't suspect worms (or at least not as seriously) when the colonoscopy was planned...

it's terrifyting to get get sick after getting better. I had what turned out to be a virus mid-October and I absolutely freaked out...thinking that I was headed back to where I'd been before eliminating gluten. It really messes with the mind. Hopefully rest and time will put you back on track.

Didn't know which category to put this in..sorry. I'm just wondering if a colonoscopy can detect worms/parasites? Or will the cleanse before get rid of them? Or will it cause them not to show in the colonoscopy, but still reproduce after???

Wow. What a story. My understanding is that to do a gluten challenge you must eat gluten for 8 weeks. 8 weeks is long enough to get very sick again. That is why, in my case, my Drs agreed that this was unnecessary. My bloodwork, which was done while technically still on gluten (although, I'd hardly eaten for a week, had diarhea 8x/day and was dehydrated...

SO good to read this! I've become a hypocondriac (no idea how to spell that!). Some things have been real and terrified me thinking that something else was wrong and some things I think I'm bringing on myself with all the anxiety. Right now, when I'm being logical I know that I feel fine, my only symptoms are caused by my own anxiety about not feeling...