
baggotlane
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by baggotlane
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ARCHIVED Gluten Challenge Survival
baggotlane replied to baggotlane's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Monica, If you do not feel well fter glutenthen celiac disease may indeed be the cause. For me it is a little different. I get the bloating, diarrhea etc. no matter whether it is gluten or non-gluten food that I eat. Yes, as I said, I ate gluten foods for all those seven months and the 'good' news (if you can call it that) is that I felt no different than... -
ARCHIVED Gluten Challenge Survival
baggotlane replied to baggotlane's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
It's OK. Statements made over this medium can sometimes give false impressions. Regarding your question I do suffer from bloating. On its own it's not too bad but, as is sometimes the case, the bloating occurs in the evening time. The temporary non-diegestion of food makes the blood glucose level fall (in a diabetic, I mean) because the food anticipated by... -
ARCHIVED Gluten Challenge Survival
baggotlane replied to baggotlane's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Yes, I was thinking about Lapps who, I had heard used to have diet og fish, reindeer mwet, berries in summer. I other words, no gluten. I'm sure that has all changed in recent years but the cited article was for 16 years ago for a patient for whom the data would have been collected years prior to that. Tanks for your comments. Andrew -
ARCHIVED Gluten Challenge Survival
baggotlane replied to baggotlane's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Where do you see hostility? I think you might need to review the messages - all of them to get the background. Anyhow, I 'm sorry to hear you're having difficulties. It sounds like a possible sensitivity you may have. There are tests to isolate a variety of foods but it is a lengthy business. But you may be lucky. At least it's worth a try. If you believe... -
ARCHIVED Gluten Challenge Survival
baggotlane replied to baggotlane's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
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I have recived the same message. It showed up in a different format here, overriding all other messages. Can Celiac.com junk mail software not cull out these items? Andrew
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ARCHIVED Gluten Challenge Survival
baggotlane replied to baggotlane's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thank you for suggesting me to read this article. I had seen it already. It did not sway my conclusions on the subject. Sure, a Finn boy sixteen years ago, after returning to a glutenous diet provided a negative biopsy up to five years later. I don't think that proves anything. There are plenty of people who live in countries (including Finland) where consmption... -
ARCHIVED Gluten Challenge Survival
baggotlane replied to baggotlane's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
\ Yes, I have been tested (two weeks ago) for colitis (including the types indicated). This was also done 8 monthsago. Absolutely no signs. Chron's disease has not yet been tested for. Of much higher probabilities are bacteria (one type was found that might be contributory but we shall see) or a long-term diabetic condition known as Gastroparesis - nasty... -
ARCHIVED Gluten Challenge Survival
baggotlane replied to baggotlane's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thank you, MaryAnn for a pleasant reply. I fully ascribe to what you are saying. Most people here do try to be helpful to each other but avoidance of reality checks is not being helpful. I recall being told here before I decided I had to get off gluten-free to get endoscopy done that one month to wait would be OK. Then it was 2 months, then 3. So, I gritted... -
ARCHIVED Gluten Challenge Survival
baggotlane replied to baggotlane's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thank you all for the replies. They were not what I had expected. You seem to think that just because of genetic factor and chemical tests (full battery of them by two doctors), little to no improvemennt under a gluten-free diet, followed by 7 months of a full gluten diet, followed by recent surgical biopsies, that I may still have celiac disease or, as a... -
ARCHIVED Gluten Challenge Survival
baggotlane posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
It is good to be back here again! Last time, June last year, it was all gloom and doom. In May tests for celiac disease were all negative even though genetic indicators and Type 1 diabetes since a teenager made me highly disposed. There was nothing else for it but to go back to a full gluten diet. I did this for over 7 months to make sure the results of endoscopic... -
ARCHIVED Test Results Lost
baggotlane replied to baggotlane's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Well, The problem is worse than getting things lost. Getting things lost is just when the problems are seen. But, what percentage of cases are mishandled or mixed up internally? We will never know. I have had another experience of late with this lab. They had to do special tests, not commonly done for my blood analysis (nothing to do with all the typical... -
ARCHIVED Test Results Lost
baggotlane posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Dear All, The lab that did my initial stool testing now says 10 weeks later that they lost the results! The lab is a well-known nationwide corporation - LabCorp. I have called for the results every week after the first and they said they were still working on it. Now they admit that they lost them. The trouble is not simply redoing them - I was on gluten... -
ARCHIVED Testing Is Finished
baggotlane replied to tiredofdoctors's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You may indeed not be celiac. There are other ways that similar (intestinal and neural) symptoms can occur. You mentioned the vertebra. I'd suggest you look there. Having problems in the upper vertebra (cervical section) is well-known to be a cause of pain in the arms, shoulders adnd hands. But it also affects the neural system in the stomach, leading to... -
ARCHIVED Blood Panel
baggotlane replied to steve-o's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I think you made the better choice Steve, even if it's not an open and shut case. As long as the reactions are not violent, which they do not seem to have been, it is worth taking gluten for several days. From what I understand a short time gluten-free for blood tests does not much much difference but you will at least have helped remove a cause of a possible... -
ARCHIVED Enterolab - What Does It Do Better?
baggotlane replied to baggotlane's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks. On looking around I found several sites where stool testing of the fat content has been used. Many people seem to be under the impression that it is rarely done. It was done in my case, for instance, but not via Enterolab. It was negative also, by the way, along with all other tests. So, I am on the lookout for the differences in procedure used. ... -
ARCHIVED Enterolab - What Does It Do Better?
baggotlane replied to baggotlane's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thank you Mariann. It is good to hear of tests that have proved beneficial where others may not. Having said that, what I was really looking for was not so much testimonials as to the work done and the results obtained but rather what was the difference between the the testing methods and procedures done at Enterolab and those done elsewhere. It is more... -
ARCHIVED Enterolab - What Does It Do Better?
baggotlane replied to baggotlane's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks for the replies. You appear to have been negative on blood tests but positive on Enterolab's tests. Is that the case? May I ask which blood tests did you do? Just the IgA? or did you also do things like malabsorption. Were you also also negative on non-Enterolab stool tests? I am still trying to find out out what the differences are. I saw liittle... -
ARCHIVED Enterolab - What Does It Do Better?
baggotlane posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi! I was recommended at this site to get a set of tests done by Enterolab. I looked at the site. It seems reasonable but I would first like to know what it does that is better than other labs. I have had had a whole array of tests done already, a complete panel of blood tests, absorption tests, vitamin, carotene, stool tests etc. done by two doctors... -
Thanks for your detailed and helpful reply. This business is a bit confusing. You got the facts right. But, I am not yet doing eliminations. The doctor wants me first back on a glutenful diet. Two months from now there will be an endoscopy biopsy. I hope I'm still around for it! In fact, after one full day back on gluten I am surprised. I had anticipated...
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You're right. But he maintains that doing the gluten-free thing right may not be adequate. Better to verify it is celiac disease and not something else and then restart on, not just a gluten-free diet but a diet that goes from the really simplest of ingredients, eliminating gluten, lactose, etc. It does not sound great but the alternatives are not great...
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I thought I should add here an update. My doctor has decided not to proceed (tomorrow!) with the endoscopy. Instead he has directed me to return to the full gluten diet for two months or more. I have told him that if I get violent diarrhea something will have to be done. To be frank, the gluten-free diet is not altogether successful. It did help initially...
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ARCHIVED Shaving Lotions
baggotlane replied to baggotlane's topic in Gluten-Free Foods, Products, Shopping & Medications
I am doubly glad about checking on EDGE shaving lotion. On going carefully over my records I did nick myself on the day that began this bout with stomach upsets. Instead of ascribing the cause to Coffee Mate, as I had done on the basis that it does affect a few people, I am now believing that the more likely cause was the EDGE saving material etering the... -
ARCHIVED Antacids Etc
baggotlane replied to baggotlane's topic in Gluten-Free Foods, Products, Shopping & Medications
Hmmm! I wonder why it made Delphi but not Clan Thompson or the Celiac.com lists. By the way, the reason I was given for not using Pepto-Bismol was that by coating stomch walls it may interfere with recovering villi. Andrew -
ARCHIVED Cd People W/ Acid Reflux & Gastritis
baggotlane replied to rmmadden's topic in Coping with Celiac Disease
Well, I just found out the Prilosec is NOT on the gluten-free list. Maybe it does not affect you but I am staying off it. I am learning not to trust much, especially from doctors who do not do their homework on matters like this. Andrew