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Curlyqueen

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Everything posted by Curlyqueen

  1. Thanks. I figured I wasn't going to get a response.
  2. Ouch! Yeah I have no problem with not drinking. I'm not a fan of alcohol in the first place but I'm just concerned it is the symptom of something else or the sign of something greater( at least for me). It might be that alcohol is not for those who need to be gluten free :-(. Thanks for sharing your experience. I know I'm not alone
  3. Interesting! if you don't mind me asking how did you find out you had an issue with yeast?
  4. Hello! My 21st birthday was the last time I was able to drink alcohol. I must admit I drank too much but it was the last time I was able to drink alcohol with out get instantly drunk. After that birthday a lot of my symptoms began. My symptoms were mainly due to a b-12 deficiency and resolved with supplementation but returned and gradually turned into...
  5. Hello! I wanted to talk about Leaky Gut Syndrome. I have been told that I have Leaky Gut Syndrome and I have been doing my research and I'm working on healing my gut. Its been a struggle as I am realizing how important it is to do your research! There are lots of different plans/methods to healing a leaky gut. My doctor hasn't given me much guidance....
  6. Hello! I found this topic very interesting as I am considering that there might be something going on with my gall bladder and or pancreas. Similarly to you, since going gluten free a lot of my symptoms have gone away since going gluten free. Like you I'm still fatigue , get hypoglycemic symptoms(I have always gotten them growing up but in the last...
  7. I know this response is pretty late. But I wanted to let you know that I think you were/are right. As of right now they think I have a non-celiac gluten intolerance that may have started from taking too many NSAID pain relievers( for migraines) which can cause leaky gut and leaky gut can cause food sensitivities and new allergies. This was new info that not...
  8. Thanks for that answer. I have been eating a lot of corn. I have been doing corn tortilla chips, corn tortillas, canned corn and i have had corn at least more than once this week. I'll try cutting down the corn or completely out if I can.
  9. This past week I haven't been feeling my best. One day was worst than others and I took a brand x tylenol that I wasn't sure if it was gluten free but it cured my headache and felt ok. Then again on Friday I wasn't feeling so hot so I took one before going out to eat from my birthday at PF Chang's. My waitress had celiac so she completely understood the deal...
  10. Interesting...at first when I went gluten free it was very sudden and I didn't use gluten free substitutes. Now I'm all about Udi's bread( I love it). But you brought to light something I didn't think about. I just thought that this might be a sign that gluten isn't necessarily the enemy but something else. Is this something that I should mention to my doctor...
  11. Thanks! You"re right and you make a good point that it is important to rule out other possible conditions.
  12. Eating gluten free cuts out wheat which if its a wheat allergy then of course one is going to feel better gluten free. In my case I'm still considering that it could be a specific allergy to wheat. I guess for myself personally I'm finding that maybe its safer to rule out everything else it could be like Chron's or IBS before settling on a Gluten intolerance...
  13. It came back negative but within that time I went gluten free and felt a lot better. Now I'm seeing a GI because I'm convinced that I have a digestive issue of some sort if not a gluten sensitivity or intolerance. Is there a difference between intolerance and sensitivity? The genetic testing my GI did also came back negative so I'm thinking possibly gluten...
  14. Like many of the post/people on this forum I'm in a pre diagnosis phase where I'm trying to make sense of symptoms that makes little sense. Anyway I finally saw a GI and through genetic testing I found it was negative for Celiac or how I would like to think of it as very unlikely that I have celiac. No one else in my family has it so I have started to consider...
  15. May I suggest that you go to GI ( if your insurance allows you to go without referral). If you need a referral your doctor shouldn't really be opposed to it. I think GI have a better understanding of this. If that GI isn't familar with gluten and celiac he/she might know a specialist who would. It sounds like the doctor you are going to doesn't have the same...
  16. I'm so sorry to hear you feel this way. It sounds like cutting gluten out right away might be the best thing to do. If you are feeling this awful and its debilitating you I think going gluten free asap is worth it. Who knows how long it will take to get rid of the symptoms but as the gluten gets out of your system I would imagine you would start to feel better...
  17. Sorry it took me so long to reply but I wanted to say thanks for that pep talk! Since my initial post or question I have gone gluten free..kind of. Let me explain what has transpired over my several doctor visits. Celiac and wheat allergy have been ruled out by the blood test and genetic testing. HOwever I feel a lot better not eating gluten but I find that...
  18. I will look for the Sams Mill pasta. I had a brown rice pasta and I didn't like it very much. I've managed to slowly transition to gluten free however, I haven't replaced the cutting board and other things. So I guess I'm only partially gluten free but I'm feeling much better now that I've cut gluten out of my diet. It's getting easier as I do more research...
  19. I appreciate the advice. I actually was able to drop all the gluten on day one and from then on I've been doing ok. I get a little stressed if I don't plan what I'm going to eat ahead of time but research has given me the knowledge to make gluten free choices. I do however think I've probably eaten things contaminated by gluten but it hasn't seemed to bother...
  20. Today is my first attempt at eating gluten free

  21. I'm glad that we were able to kind of help each other. I found all the post here very helpful and I'm thankful for all of the support I've gotten here. I live on my own so I have control over the food but I'm not very good at planning on cooking. I find I eat out a lot because I forget to thaw something or wait too late to start cooking. But I will definitely...
  22. Thank You so much. I will check that out right now. I really appreciate all the support I've gotten here.
  23. I have not gotten the real diagnosis yet( i should get it today). However, regardless of the diagnosis because it could be a false negative I plan to go gluten free. The only thing stopping me is i get overwhelmed when I get to the grocery store. Even when I look in my kitchen cabinets I get overwhelmed thinking where do I begin. I think part of it is that...
  24. Just curious, could the floaters be from a vitamin or mineral deficiency caused by malabsorption due to celiac disease?
  25. Thanks for your response. I think accuracy is the biggest reason why I'm questioning the value of a "real" diagnosis. I think I've already convinced myself that gluten is the root of all my medical issues so regardless of what anyone tells me. Like you said the true test is the gluten free diet and I think thats what I'm going to do because I don't want...
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