researchmomma
-
Posts
297 -
Joined
-
Last visited
-
Days Won
1
Content Type
Profiles
Forums
Events
Blogs
Latest Celiac Disease News & Research:
Everything posted by researchmomma
-
ARCHIVED Could It Be?
researchmomma replied to researchmomma's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Another symptom is that she has broken her wrist twice and had trouble healing the second time. Both times happened when most kids would not have broken their arms. My physical therapist friend thought her bone density should be checked but I was denied that. -
ARCHIVED Could It Be?
researchmomma replied to researchmomma's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yes, even my girlfriend who referred me to her (she and her son are Celiac) was shocked that she didn't tie in the IgF-1 growth hormone deficiency and low BUN. So strange. My girlfriend's son was negative on the bloodwork as well but positive by biopsy (which was not done for celiac but the pathologist caught it!). He was being checked for ulcers... -
ARCHIVED Could It Be?
researchmomma replied to researchmomma's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
One other note IrishHeart, I would LOVE your recipes and shopping list. Also, thank you for sharing how un-dxd Celiac effected you. This is exactly what I am trying to avoid with my daughter. I explained that regardless of the test results we should go gluten-free just to see if she starts growing. I don't want her to be 4 ft 7 inches her entire life... -
ARCHIVED Could It Be?
researchmomma replied to researchmomma's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
One other note, she was diagnosed with anxiety and they are prescribing Prozac. However, her MD agreed that we should wait for the Celiac testing to be complete before we start meds because he realizes that could be the root cause. I was very happy he was onboard with waiting. Most of these docs are treating her symptoms individually and it is driving... -
ARCHIVED Could It Be?
researchmomma replied to researchmomma's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@ Maximoo, my daughter is 4 feet 7 and 70 lbs. She has been 70 lbs for over a year. I read your reply to my DD and she just smiled and said "wow, maybe it will be a good thing if I am celiac because I will grow and be like my friends". She is very stressed out about giving up certain food items but i told her that she and I will bake together and learn... -
ARCHIVED Could It Be?
researchmomma replied to researchmomma's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
First of all thank you all for your replies. I was beginning to think that I am crazy and my daughter a hypochondriac. I am not sure what sure what I will feel if the test for genotyping is negative. I swear we could be one of those people that are gene negative but still have celiac. That is our MO, lol. Thank you for feeling my pain and making me feel... -
ARCHIVED Could It Be?
researchmomma posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi, I am brand new here but I have been lurking for about a week. I need some support. I can't stand the waiting anymore and neither can my daughter. 6.5 years ago, at age 6, she had a seizure that was based in the occipital lobe. She had two back to back and then didn't have another for 4 years. However, during that 4 years, she has had countless digestive...