Jump to content

maramelia

Advanced Members
 View Profile  See their activity

  • Posts

    28

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by maramelia

  1. maramelia
    Dear friends, my boy ended a period of 3 months with gluten free diet, and during the first two months, we were happy, because he gained 1,5cm in height... but this last month, he stopped, and lost 400g... i now it is so early to be sad, but he improved a little to eat, but we need almost always to give food to him, because he is difficult to eat. and...
  2. maramelia
    the best thing to do is to mantain the gluten diet, at lest to do the rest of celiac panel - antiendomisio, bowel biopsy, and probable repeat the TTg... then, you may start the gluten free diet. take the gluten out now will be bad, because the biopsy may come negative... u need to understand, wait just more few days, till your son have done the...
  3. maramelia
    ctenny, the case of my boy, 6yo, is "better"than yours: 6yo - so young short stature few gastrointestinal symptoms almost no diarrhea anemia hypothiroidism (no congenital, appeared last year, concomitant with short stature) decreased growth velocity - dropped in growth chart percentiles just TG antibody slithly positive no antiendomisio / no...
  4. maramelia
    Cynnlynn, my 6yo boy started to go to many doctors because of a short stature, just like your girl. he was ever at 25-15%, and dropped to 3% last year... he had few gastrointestinal symptoms, no diarhea, some abdominal pains, mostly when he ate food. he had no hungry... very thin, just 15kg for 5 yo of age...very small. we started at an endocrinoped...
  5. maramelia
    sorry, kaity, i dont understand. is your son with confirmed celiac disease? did you change his diet with medical supervision?
  6. maramelia
    anthony, great news!!!!!!! hope that your son will improve more and more, in everything that the gluten had done to him all these past years... This is just the beggining... Congrats to all!!!!!
  7. maramelia
    good news. im glad about you. PS. i want to inform you that my son is on GFD since nov 18 this year, and his growth velocity appears that is improving a lot!!! we here in brazil usually uses metres and cm to metrics... the normal growth velocity is 4-5cm/year, for a child at 4-6y... we went to an appointment with our nutricionist, and my son had a...
  8. maramelia
    Hi TJ. Usually, in the AP report, the most important part i that of the duodenal biopsy --- and usually the doctors / pathologists describe those duodenal biopsies with more exactly numbers, to better understand if you have or not an enteropathy: "areas of villious blunting" - usually they write if the ratio vili/cripts is 3:1, 2:1, or less than this,...
  9. maramelia
    i read the abstact, didnt read the hole article, but i have some considerations: - methodology = in the 10,000 pts article, did they use the EMA as the celiac disease confirmation? in my opinion, this is not a good accuracy method to compare the HLA tests... - in my opinion, the best would be to compare people with a kind of multiple dignostic...
  10. maramelia
    Dear julie, its really lovely to see you with this care to your love. And ill pray to have a girlfriend like u to my boy in the future... ))) he is now just 6... )) rgds mara
  11. maramelia
    my boy, 6yo, is on gluten free since nov 18 (1 month)... he growth 1cm last month (so good for his age), and his problem is short stature... and is doing very nice about his abdominal pain and distention that his had ever and ever, no more GI symptoms since gluten free. thanks god!
  12. maramelia
    anthony, i studied a little about your sons case... there is a thing called Hypogonadotropic hypogonadism... which leads to delayed puberty and low hormones, including what u have mentioned... please, go to internet to study / to read about this and to see if there are some aspects about your boy. i just want to help. good luck all you. take care....
  13. maramelia
    hi kb!!!! in the case of my boy, he is 6, and we discovered last month... he did the biopsy, because his case was very difficult to screen, few GI symptoms, short stature as the main symptom, some other symptoms (persistent anemia, a strange acquired hypothyroidism... ), and I'm a doctor, i do neurology, and i do know that the biopsy with endoscopy is...
  14. maramelia
    meggie, sorry for my question, I'm not from US, and english is not my native language. It was not clear for me: first: DID YOU DO OR NOT THE GLUTEN FREE DIET? second: if you did it, for how long? did you fell better with NO GLUTEN?
  15. maramelia
    by the way, I'm one who answered your poll / research!!! my pacient (my boy) is a negative HLA and positive Biopsy... i don't know if he is celiac, but he is doing very good on GFD. We know biopsy results are not so specific for celiac disease, they may show just an inflammatory enteropathy... but... whatever!!!!
  16. maramelia
    researchmomma, i loved your poll!!! for our knowledge: my boy started this year to decline on growth, achieved 2.5% of growth chart curve >> short stature >>> began investigation >> ferroprive anemia + hypothyroidism + short stature + inconclusive GH deficiency blood exams >> TTG mild positive >>> EMA negative >...
  17. maramelia
    people, the genetic test is not everything like many and literature always says... sometimes it is negative, and the person do not have celiac disease, but some type of intolerance, sensibility, or whatever you want to call this thing... my son example: short stature, few GI symptoms, always very small for his age, now 6yrs, wears 4T-5T clothes, and...
  18. maramelia
    anthony, its very important those results, the hormones, and if you have other blood samples before (like a laboratorial evolution, you can do this very easily of an excel chart... ) to see how this evoluted over the time... im just brainstorming here, you know... all those hormones are lower. No doubt. do your son have a MRI of the brain? (magnetic resonance...
  19. maramelia
    anthony, i recommend that you go to see the endocrino dr., if possible someone with expertise in delayed puberty and all its causes, including celiac disease. Because i do not know if this - your case is a case where i will be necessary a reposition of hormones (maybe im talking some boos$#&... i do not know...)... Take care. Mara
  20. maramelia
    antony and you, the son, the 15yo boy... i want to tell you a story: am 37, i have two boys, one 6yo, the younger 2yo... this year, my 5 almost 6yo boy fractured his umerus during, believe!, a phisical activity at school. i runned to doctors... and im a doctor (am neurologist)... his growth chart was terrible: born with 25-30%, then declined do 10-15...
  21. maramelia
    roda, your son case seems like my son: my boy is 6, he is on percentil 2.5%, very small for his age. my doubt: doing GFD, how long do we need to wait to see changes in weight and height? Thanks, Mara
  22. maramelia
    hey all moms and dads of children with celiac disease and this symptom: short stature. i have a question for you: since we start the gluten free diet, how long does it take to start to grow at a normal velocity? my son is 6yo, he is on the 2.5 percentil of the curve (normal range for him is 50%). i ask this because this will be the most important...
  23. maramelia
    raven, the history of my son started with the failure to thrive - percentil 2,5 in gowth chart >> then a pediatric endocrinologist, and the blood tests to see GH deficiency were "unconclusive". then this endocrinologist wanted, even with unconclusive tests, to start growth hormone, but at this time the TGG AB appeared, and then the hypothiroidism, and...
  24. maramelia
    kitagrl28, if there is some chance in your case to be celiac, you must do, in the future, what mushroom said, to wear some sort of mask and individual protection, when your dealing with flour... In the case of doing a gluten free diet in your house, keep in mind it is common that someone of your family (some of your children) to have what you have. If...
  25. maramelia
    Desi83, dear, i dont know if i understand the right thing, but i need to tell you that celiac disease may cause many gastrointestinal and extraintestinal symptoms, including also psychological ones, but the most common youve mentioned are the weakness, and irritability, and also cognitive symptoms (tethargy, memory losse, etc.) its important that you go...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.