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anniej55

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Everything posted by anniej55

  1. anniej55

    ARCHIVED Mass Doc

    anniej55 replied to anniej55's topic in Doctors

    Hmmm ... I see Dr. Crimaldi also. He did the correct blood tests and wanted to do a biopsy, but I opted to put it off due to other pressing medical conditions. I find him very thorough, knowledgeable, supportive and caring. He explains everything - to the point of going over the allotted appt time - and even called me on a Saturday to give me the results...
  2. anniej55
    Hi, I have a biopsy scheduled for September. I don't know about the EGD - it was mentioned. I haven't had any problem eating normally ... but I know that it might not be affecting my stomach at this point in time. I think my biggest mistake was taking my primary care's diagnosis and not calling the GI for the blood results (in May). Come to find out...
  3. anniej55
    I had actually been considering doing that before the GI doc told me it wasn't celiacs. It was definately something gluten-free doing it to me .... I was eating the english muffins and corn muffin (George's). Rest of the time it was meat, potatoes, etc. Normal stuff. Feel way better now .... either that or I'm trying to convince myself of it
  4. anniej55
    I stand corrected - she gained when eating gluten. Thanks for pointing that out. I gained when I ate gluten-free .... and got bloated. Now that I'm eating normally the bloating is gone ..... leave it to me to be weird.
  5. anniej55
    It wasn't that he wouldn't diagnose it - he felt that the Ttg was too low to diagnose it, but would do the biopsy to double check. He was confident that it was not celiac disease ....
  6. anniej55
    Have I missed something - why would gaining weight when eating gluten-free indicate anything? Other then the fact that I was hungry all the time, so I ate more.... and I ate worse. Potatoes to fill me up (fattening, I know) .... hate fruit, so candy .... I was thinking IBS too, since I've always had a touch of constipation/diarrhea at different times...
  7. anniej55
    Alison, My tTg was 3 ... he said low, so no celiac. And yes, something is probably up. Maybe an intolerance. EmA - I'll have to look that up. I've had a battery of blood tests (9 vials at one time! - usually 3 or 4 is once every 3 weeks or so) so I'm sure I've been tested for everything. I'm on gluten for the biopsy .... but I really don't eat that...
  8. anniej55
    Isn't the Ttg the bottom line for diagnosis? (other then biopsy). And that was low, which is what he made his diagnosis on. And would the other numbers be high due to another autoimmune disease? Just curious. Sigh. I dont know what to think/do now. This doctor was recommended as a celiac doctor. Ann
  9. anniej55
    Hi All, I was told by my Primary Care (in May) that I had celiacs; this was from bloodwork the GI did and I assumed that they conferred (they are colleagues and she got me in to see him). I never called the GI for test results because of what the PC told me. I had follow up appt with GI on Monday and he informed me that I DO NOT have celiac disease....
  10. anniej55
    Hi, I come from this from both sides. I was just diagnosed with celiac disease and can very VERY angry sometimes. I'm almost 50 and finally have money to go grocery shopping, buy what I want and not worry about the cost .... and now this? Who the hell thought this joke up? I call those times my "pity parties". Cause I'm definately feeling sorry for...
  11. anniej55

    ARCHIVED Rebelling

    anniej55 replied to a topic in Coping with Celiac Disease

    Hi, And I thought I was the only one what wanted to rebel. I've got a major case of "why did this happen to me - screw it" .... and have been fighting off a major urge to eat what I want. It's been very difficult these past two weeks and I don't know if I'm over it just yet ... My biggest problem is that I didn't really get as sick as you all. Sorry...
  12. anniej55
    Hi, I'm taking the plunge and will be buying some Kinnikinni (sp) online. I've read that their chocolate donuts are great - what about their bagels? My GI doc said to have some cream cheese on rice cakes - I would have laughed long and hard if I hadn't been on the table waiting for my colonoscopy. Rice cakes - you have GOT to be kidding Anyways...
  13. anniej55
    Hi, OK - I have a (maybe stupid) question. I was diagnosed about 2 months ago -and didn't really have any symptons other then being tired. No stomach problems at all. Around the time that I had routine bloodwork (and it came back abnormal) I did have the bloating/cramping that people talk about .... and then the, um, physical response to that. So...
  14. anniej55
    Peter, No endoscopy - I was just told that I had celiac because of blood work. Colonoscopy was because of my age (50 soon), family history and the new diagnosis. Too late for endo now; have been gluten-free for about 2 months. I doubt it would have come back abnormal ? ?? I only had physical symptons for a few days; I honestly think this whole thing...
  15. anniej55
    Hi, I had my colonoscopy a few weeks ago and I was a nervous wreck; it was a week of tests and had had a bone marrow biopsy two days before. But I was nervous about what they would find ... not the procedure. The nurses were wonderful and I slept through it all. I, too, woke up in the recovery room and then slept most of the day away. Or at least...
  16. anniej55
    Hi, I have a Vitamin D deficiency and am on supplements - 1500 units 3X a week. I have a check up at end of month, so I'll let you know what happens then. Probably more blood work! I was also diagnosed with ITP, an autoimmune blood disease. Essentially, my platelets are being eaten up by my immune system. When they go lower then low I bruise easily...
  17. anniej55

    ARCHIVED Mass Doc

    anniej55 replied to anniej55's topic in Doctors

    Ruth, Well, well. Dr. Crimaldi IS my GI .... I just haven't seen or talked to him since the diagnosis. My primary care is the one who told me and said " you must follow the diet". I do have a follow up with Dr. Crimaldi on the 25th of this month. I better start writing down my questions .... he is super nice and did my colonoscopy. I thought he went...
  18. anniej55
    Another YAY - I love those potatoes, Kaiti. You are a walking encyclopedia on celiac's. How long have you been following the diet? Ann
  19. anniej55
    Hi, Thank you SO much. I kind of figured cornstarch, but had never used it before. And the stuffing may involve an extra step, but I can handle it. I usually use the box poultry seasoning ... little yellow one (forget the name of it). Would that be OK? And celery and onions and .... yummo. My biggest problem with the celiac diet is that I'm always...
  20. anniej55
    Hi all, I know it seems early ... but how does one go about making gravy without using flour? And stuffing? I always used the pepperidge farm packaged mix (and added stuff to it). I'm not even ready to figure out how to do the pies .... Ann
  21. anniej55
    Hi All, I was just glutened by my (new) shampoo. Now I'm just a little worried about my next hair dresser's appt. I have my natural color (HA) improved upon every 5 weeks (permanent dye). Is this a problem? Growing it out would be an absolute nightmare .... And do I need to ask her about the products she uses, or is my accidental glutened because...
  22. anniej55
    Well thank you all for the answer to my question - I've gained 10 pounds in about 3 days. And I was glutened by my shampoo. You would think that all the time I've spent in the bathroom would have taken care of the weight gain, but NOOOOOOOOOO. And yes, I'm bloated. I'll begin exercising when I get the OK from the doctor - I've also been diagnosed...
  23. anniej55
    Mandigirl - the anger has passed. I'm still at a loss as to what to eat for lunch (besides butterfingers, the only thing I really want) and my stomach was feeling well enough tonight to have some chicken and a baked potatoe. Although I tend to stay away from the taters; I gain weight just looking at them and can ill afford that. I thought a salad would...
  24. anniej55
    Hi Sharon, Eating the wrong food was taken out of my hands .... I changed shampoos and, you guessed it, the new one has wheat in it. I have been in the bathroom for the past two days. So YES - I do believe I have Celiacs and NO - I will not intentionally eat the wrong foods. I was feeling so darned good up until two days ago ... and now I'm sleeping...
  25. anniej55
    Discouraging isn't even the word for it ... lunchtimes are the worst. I am so freakin hungry ... all I want is a BLT on Wonder Bread. I cannot tell you how close I am to giving in. I think that if my 22 year old daughter wasn't here - she would be SO upset if I ate the wrong food - I would say the heck with it and just chow down. She goes back to college...
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