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steve-o

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by steve-o

  1. steve-o
    Hang in there Dave, it'll get better. I've been gluten-free for almost 2 months now, and I went through all the same stuff you're describing. I went through a "gluten withdrawal" period of about a month, where I felt really rotten...but then it got much better, and has been ever since. If you're still having issues with nausea, you might try cutting out...
  2. steve-o
    I've read that several people here have benefited by taking a digestive enzyme, so I recently decided to give them a try. I took the Vitacost brand - NSI Vegetarian Digestive Enzymes. I took one capsule as I started eating dinner. Shortly after dinner, I started getting some serious reflux and heartburn (I hadn't had reflux problems since going gluten...
  3. steve-o

    ARCHIVED Brain Fog

    steve-o replied to a topic in Related Issues & Disorders

    I'm sure this sounds like a lame, overly simple answer... but are you getting enough exercise? I used to have a major problem with brain fog, and the one thing that made the biggest difference for me, was getting daily exercise. You don't have to run a marathon, just taking a 30 minute walk each day will help. When you feel horrible all the time, it...
  4. steve-o
    I was sooooo mad when I got the pathology report from my biopsy, and I saw that the doctor only took one tissue sample. Big surprise....I was "negative" for celiac sprue. You don't need to be a rocket scientist to understand sampling error. I asked the doc why he only took one sample, and he basically threw down the "I'm the doctor, don't question me"...
  5. steve-o
    My servings actually are pretty big...but obviously not big enough, so I'll be adding some more calories to my meals & snacks, as suggested. I have huge servings of rice and potatoes, because I haven't found a gluten-free bread I like, so these are the only carbs I get. But I'll definately have to check out those Kinnikinnick bagles. Even if I don't...
  6. steve-o
    Thanks everyone, for all the advice. I'll definitely be trying some of your suggestions in the coming weeks. As far as how I eat, most days are like this: Breakfast: Gluten free corn flakes with silk soy milk, banana, orange juice snack: planters mixed nuts lunch: Slices of Boars Head turkey lunch meat, bowl of rice or potatoes, gluten-free cookies...
  7. steve-o
    I'm in the same boat you're in....high Anti-Gliadin, but all other tests negative. I've been looking high and low for a concrete answer, but still don't have one. Everything I've read or heard, says that anti-gliadin alone doesn't indicate celiac disease. Some sources say it means you "might" have a gluten intolerance, but it may also mean nothing...
  8. steve-o
    I've read that some celiacs with malabsorption issues have been able to absorb nutrients better, and alleviate some of their uncomfortable gastro symptoms, by supplementing with digestive enzymes. I've only been gluten-free for a month, and am still experiencing some symptoms, so I was hoping this might be helpful during my "recovery" period. Does...
  9. steve-o
    Liliane, I've been considering enterolab, and have the same concerns you do about the validity of their tests. My blood test was somewhat inconclusive, and my biopsy was negative (but they only took 1 tissue sample), so I'm hoping enterolab can give me a definitive answer as to what’s ailing me. I'm really underweight, so I'm primarily interested i...
  10. steve-o
    I had some major withdrawal problems too. It put whole new meaning to the phrase "carbohydrate addict". For me, the withdrawal lasted about 3 to 4 weeks. I was also really tired all the time, but I found that I felt much better after I started to take a good multivitamin. Getting some exercise also helped quite a bit...it's hard to get started with exercise...
  11. steve-o
    Hi all, I weighed myself this morning, and almost died when I saw that I weigh 127 pounds (I'm 6 foot tall). Before going gluten free about a month ago, I weighed in at a brawny 140 pounds. If I loose any more weight, I'll probably disappear. I imagine the problem is that I'm not getting enough calories on the gluten-free diet. It's been tough, because...
  12. steve-o
    This was on the www.msnbc.com website today... Open Original Shared Link A must read for parents of an infant / newborn
  13. steve-o
    I'll have to jump on this bandwagon too... Tinkyada is all you'll ever need...don't even bother with other pastas! It's that good. I tried Mrs Leapers and had the same result you did...it turned into a mushy mess.
  14. steve-o
    I had a big problem with reflux, but since going gluten free, it has totally disappeared. Officially, I don't have celiac disease (negative biopsy & bloodwork only showed elevated IgA Anti-Gliadin), so I've "challenged" myself a couple times, just to see what happens. As soon as I re-introduce gluten into my diet, the reflux comes back.
  15. steve-o
    Hi everyone, I was sick today, with all the same symptoms I get when I eat gluten...so I've been racking my brain, trying to figure out what is it that I've eaten in the past day or so, that could have made me sick. High on my list of suspect foods is "I can't believe it's not butter" spread. I had a pretty generous portion on my baked potato last night...
  16. steve-o
    June, Thanks for the info. I'll be seeing an allergist next week, so I'll be sure to ask him about mold testing. Thanks again, Steve
  17. steve-o
    Hope you're feeling better by now...it's bad enough having just one food sensitivity. I've never heard that mold can cause anxiety, or that there was a blood test that can measure mold antibodies. This really peaked my interest, because I have a mold allergy, and I have problems with anxiety too...but I never knew there was a connection. Would you...
  18. steve-o
    Well, I finally saw my doctor today to get the results of my blood panel. I'm sure lots of other people have similar confusing results, so I wanted to share my experience and insight: I had an IGA Anti-Gliadin antibody reading of 53 (over 25 is high), but my TTG was only 3, which is a low/negative number. My biopsy was also negative, BUT....he only...
  19. steve-o
    Thanks for all your replies and insight. I checked the ingredients on two of the mixes which bothered me: 1) INGREDIENTS: Maize Starch, Rice Flour, Potato Starch, Guar Gum, E 464 (Thickener), Dextrose, Monopotassium Tartrate, Sodium Bicarbonate, Salt, yeast 2) Ingredients: White Rice Flour, Potato Starch, Corn Starch, Soy, Sugar, Xanthan Gum, Salt...
  20. steve-o
    I'm still waiting on my blood test results, but a family member of mine was recently tested, and is pretty confused about their results. Their doctor is confused too! Here's the results: Gliadin AB IGA - 57 (anything over 25 is high) Gliadin AB IGG - 3 (anything over 25 is high) Endomysial AB - negative Tissue Transglute AB - 8 (anything over 2...
  21. steve-o
    I've been gluten free for a little over 2 weeks, and have been doing pretty good so far. I haven't had any gastro-intestinal upsets since going gluten-free...until today, that is. I had a snack size bag of original Fritos corn chips around 4 pm, and about two hours later, things got real ugly. Nausea, gas, bloating, and then diarrhea. Everything else...
  22. steve-o
    Stephanie, Thanks for your reply....I have a follow up with my doctor next week, so I'll definately ask for a GTT and make sure he checks my insulin levels as well. I wasn't aware that there was a separate test to check insulin, I just assumed they did this as part of the GTT? I guess this explains why so many people have a negative GTT result, when...
  23. steve-o
    I've been gluten-free for a little over 2 weeks, and I am having sooooooo many hypoglycemic symptoms, it's not even funny. I've had these symptoms for the past few years, but it seems like they've become much worse since going gluten-free. I bounce back and forth all day long, between feeling (relatively) good, and feeling dizzy/shaky/lightheaded. Sometimes...
  24. steve-o
    Over the past couple weeks, I've made 3 loaves of gluten-free bread, using various gluten-free bread mixes. The mixes have all been dairy free too. Every time I eat any of these gluten-free breads, I get really tired, really bad brain fog, some mild nausea, and a ton of gas pressure in my tummy. I've also noticed that these symptoms are worst when...
  25. steve-o
    I had my endospcopy a couple weeks ago. I requested a copy of the pathology report, and it shows that I have "chronic non-specific gastritis". I guess this explains all the heartburn I get when I have gluten in my diet? I'm glad to hear your doctor will be taking several biopsies. My genius doctor only took one biopsy sample from my small intestine.....
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