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Chuck1004

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Everything posted by Chuck1004

  1. Chuck1004
    Hi all, In trying to determine the cause of a slightly elevated liver enzyme 18 months ago, I discovered I was a celiac. I had not experienced any symptoms to that point and the biopsy showed white blood cells in the area but no damage to the villi. I suspect I caught it very early. As my wife is slightly gluten intolerent, we went all out eating gluten...
  2. Chuck1004
    Thank you so much for that, Lisa! I've been incredibly diligent about keeping any trace of gluten out of my foods because I am concerned about doing more damage that I just don't want to miss the possibility that it was anything else. Thanks for putting my mind at ease! I have a fatty liver diagnosis and am a carrier for Alpha 1 antitrypsin deficiency...
  3. Chuck1004
    Thanks for replying Lisa! Just to ask the crazy-man question I was dreading with my results this morning - given the biopsy results - it couldn't be misdiagnosis and that I had some other type of autoimmune disease, in your knowledge? With the lack of symptoms and now that the ttg iga was normal I was freaking out a bit. That's great that your...
  4. Chuck1004
    Hi all - I posted on these boards six months ago when diagnosed with Celiac. In preparation for my six month followup I got the blood work done in advance of the appointment and I have a concern as I sit here a week out. I'm hoping you can help! First of all, I went to the GI doc initially because of an elevated ALT enzyme level. They did the Celiac...
  5. Chuck1004

    ARCHIVED First Gi Doc Appt

    Chuck1004 replied to Christine0125's topic in Doctors

    Your TTY levels are similar to mine. I believe the endomysial reading is the genetic test for Celiac Disease (I did not have that test) but at the very least is as clear cut and accurate as you can possibly get. Best of luck on your endoscopy (It is a snap) and let us know your results!
  6. Chuck1004

    ARCHIVED First Gi Doc Appt

    Chuck1004 replied to Christine0125's topic in Doctors

    I recently had a positive blood test for Tissue Transglutaminase antibodies, which was reported on the test as TTG AB IGA, and my understanding is that virtually all Celiacs will have a positive hit on this particular test, but not all positive hits as necessarily Celiacs, as it can indicate other autoimmune issues. They will follow up with the endoscopy...
  7. Chuck1004

    ARCHIVED First Gi Doc Appt

    Chuck1004 replied to Christine0125's topic in Doctors

    Hi Christine, Which specific blood tests did you have?
  8. Chuck1004
    Thank you everybody for the information. That was exactly what I was looking for! I'm about to go and restock the shelves with gluten free products so I'm not walking around the house drooling. Plenty of gluten free wraps and buns so I can at least look at the local burger joint without tearing up.
  9. Chuck1004
    Hi all, In terms of the DH, it was something my wife looked at when she was trying to figure out her skin issues. When she looked at pictures of DH, it looked nothing like what she had, which appeared more like eczema, although I'm sure that's not the most reliable way of doing things! Matters were made worse for her because before we got to a dermatologist...
  10. Chuck1004
    And followup stupid question of the day, but do the symptoms generally follow villi damage? I wondered if the normal villi was why I might be asymptomatic.
  11. Chuck1004
    Thanks Lisa! My TTG IGA was 45.62, with the normal range being 0-15. My antigliadin antibodies were both normal. When that was the only result I had back, I had read online that, "TTG false positivity has been described in patients with both type I diabetes and autoimmune hepatitis. Theoretically, it can also be falsely positive in other autoimmune...
  12. Chuck1004
    Thanks - that's good to know that I'm in good company! I did receive my results this morning.
  13. Chuck1004
    I can't thank everyone enough to for the feedback they provided over the past few days. It's really help me come to grips with my new diagnosis. Speaking of, I received the results in the mail. Can I get some feedback again on specifically what it means? I asked the Doctor yesterday if there was a Marsh level for me and she indicated they didn't specifically...
  14. Chuck1004
    I spoke to the Doctor tonight as I won't have the results until this weekend. She indicated they performed the biopsy which confirmed Celiac Disease but they don't perform a test for the March scale. Is that normal? She described the degree of damage as "mild."
  15. Chuck1004
    I'm laughing because we just had the kissing question before you posted that as I am surrounded by cats! Whoops. She eventually switched to a different lotion that she uses more frequently throughout the day and her rash and itch are both gone. A point she raised was if it was a gluten issue would she have the rash more on her hands than her legs and...
  16. Chuck1004
    I'll propose the strip search idea tonight and hope for the best!!!!!! :-p
  17. Chuck1004
    Thanks for the excellent replies! A concern is my wife is a pastry chef and works with flour all day long. The concern now is will she be "tracking" it home even if she doesn't use it at home? In the event she does use non-gluten free materials in the kitchen is it possible that scrubbing the heck out of the area will suffice or am I going to get contaminated...
  18. Chuck1004
    Hi all, I was diagnosed yesterday as a Celiac. I'm waiting for the biopsy report in the mail and wasn't told anything as to the extent of the biopsy findings, other that the biopsy and the blood test results led to the diagnosis. The only blood level on the panel that was elevated was the ttg iga at 45. The doctor told me over the phone to look up...
  19. Chuck1004
    Thanks for the reply! What concerns me is it wasn't a nurse but the Doctor who did the endoscopy! I've done some reading since I posted this and I see that she should have had more information for me, so I'll look forward to getting those results in the mail in the next couple of days and will post them here.
  20. Chuck1004
    I heard from the Doctor today. Test results are in the mail, but it's positive for Celiac's Disease. As I've had no noticeable symptoms and am in a position to more easily adapt to a gluten free diet, I'm actually a bit relieved. If the biopsy came back negative I was fearing more tests for autoimmune conditions or something that would require medication...
  21. Chuck1004
    That's what I'm finding now! It's very strange to micromanage your day and see if your definition of "normal" has been off for all these years! If my testing comes back negative, I'll definitely request the second test. Thank you! I've read that Celiacs and autoimmune diseases can go hand in hand. Is it likely if they confirm a Celiac diagnosis...
  22. Chuck1004
    About two months ago I ate less gluten than is normal for me, but did not eliminate it from my diet. My wife was testing to see if she had a gluten allergy so most of our lunches/dinners had no gluten for a few weeks (she's a chef and was sampling a lot of gluten free dishes), although I never gave it up. I didn't notice a difference when I cut back on...
  23. Chuck1004
    Very much appreciated! Any help anyone can offer would definitely help take the edge off until the biopsy on the 22nd. Specifically, 1) Could the elevated ANA be related to Celiac? 2) Is it common for the anti-gliadin to be negative? My fear, with the ANA and only the TtG IgA being positive out of the panel, is that it's a more serious autoimmune...
  24. Chuck1004
    I heard back this morning. My gliadin ab IGG came back at 1.05 and the Gliadin iga at 2.35, with 0-15 being the normal range. The TGG IGA again was 45.62 and the TGG IGA was 4. Despite only having that one positive test the GI doc suspects celiac disease and is scheduling a biopsy. I asked if there could be anything else it could be and she indicated...
  25. Chuck1004
    Mind if I butt in with a question? I am slowly waiting for a drip of blood tests come back in and I am doing as much research as possible on celiac's disease and autoimmune disorders of the liver after a high ttg iga count. Last year I had an upper GI, endoscopy and colonoscopy. Celiac's was not on the radar at that point. I understand that biopsies...
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