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TJSpin

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Everything posted by TJSpin

  1. TJSpin
    Search for "deamidated gliadin". My understanding is that the wheat in the US has deamidated gliadin and that Europe doesn't allow for the import of our wheat. I believe Dr. Davis, from Wheat Belly, stated that on an Underground Wellness podcast.
  2. TJSpin
    [quote name='Skylark' timestamp='1307861997'] ... there were people in Fine's data who were negative for anti-gliadin and still felt better gluten-free. [/quote] Also, Dr. O'Bryan states that up tp 50% of those tested will test negative with anti-gliadin. That is why they have their new test which test for about 9 or 10 other...
  3. TJSpin
    This is what you stated earlier: "And she had allergy test at 1 that just showed some egg/peanut sensitivity". I would recommend completely removing any foods that she has any response to. Maybe not a dairy issue at 1 because she hadn't had any yet?? I am not sure how that works. Dairy issues, as others have said, can go hand-in-hand with gluten sensitivity...
  4. TJSpin
    Did you see the results on paper? I would double check to see how many samples they took. They should have taken 4-6 different samples because the false negatives go way up if they take fewer. Might want to ask. Also, I heard that the anti-gliadin (I believe it was anti-gliadin) isn't useful for kids under two. They don't produce the anti-biodies...
  5. TJSpin
    What are your thoughts on this post by Dr. Ford regarding the time off gluten and accurate blood testing? Daughter off gluten for 1 month with 2-3 "mistakes". Could the results sitll be accurate....as far as blood accuracy goes? --------------------------------------------------------------------- Antibody tests: tTG, EMA, DGP, IgG-gliadin, IgA-gliadin...
  6. TJSpin
    Just to add another positive anti-tTTG test from Enterolabs. My 6 year old daughter's test read 19 units with <10 being normal.
  7. TJSpin
    [quote name='Lori2' timestamp='1309641256'] A year ago, when my celiac panel came back negative, I did the Enterolab stool testing. My anti-gliaden was positive (219, normal less than 10) but I do not have the DQ2 or DQ8 gene. Since I could find no understandable information about anti-TTG, I had to ignore it. How significant is my anti...
  8. TJSpin
    All I meant is that people dismiss the information. I meant nothing else by the comment and I certainly didn't mean it as a disregard to your opinions! I'm not that kind of person to be that way on a forum post. I was mad when writing because I had just spent money on something that I am now thinking was the wrong choice (that I didn't know at the time...
  9. TJSpin
    Oh, and I am aware that there is no test for GS. What I meant is that I probably will not go as far as a biopsy for my 6 year old since those can be false, as well. If I can get "closer" to a positive, then I will be done testing!
  10. TJSpin
    WOW. New to this forum and really stressed about this situation. Thanks for the support! I wasn't asking about anything I had previously asked about. I was asking if I should wait for the Transglutaminace BEFORE I get the blood test at my docs. I guess I will find another forum to post my questions so I don't offend anyone.
  11. TJSpin
    I just ordered the Anti-Tissue Transglutaminase Antibodytest through Enterolabs (did the GS testing so they already had the sample). I am now interested in the Cyrex Labs Array panel 3. Should I wait for the Enterolabs report to come back or do people poo-poo that test, too? I cann't keep "wasting money" if that is what I am doing by ordering these Enterolab...
  12. TJSpin
    Thanks, will do!
  13. TJSpin
    I listen to Dr. Tom O'Bryan and he states that only 1 in 8 have the gastrointestional symptoms- 1 of 8 have the silent signs. This is theOpen Original Shared Linkfrom the New England Journal of Medicine that got me interested in testing. There seems to be a possible link. Also, I have read that it can be caused by a Vit. B12 deficiency. So, my thought...
  14. TJSpin
    Thanks everyone. I had her tested for gluten sensitivity through Enterolabs because of the ease of the stool test. She's 6 and if I could avoid a blood draw, I would. I am talking to my doc about the blood test but don't we all know how unreliable that is, at least for celiac diagnosis. Is the blood test more reliable for gluten sensitivity testing? ...
  15. TJSpin
    I got my daughter tested for gluten sensitivity through Enterolabs and she came back positive (73 units, <10=normal). I'm reading a lot about the stool test debates. Is it just that some think it is a test for celiac when it's actually for GS? OR, is it the test altogether? Do some think a positive gluten sensitivity test could actually be negative...
  16. TJSpin
    If my daughter has eaten gluten about 2-3X/month, and now 100% for two weeks, would she have to eat gluten again for the test to be accurate? If so, would she have to eat it as much as they say for the challenge (2-4 slices of bread for 6+ weeks)? Tori
  17. TJSpin
    Open Original Shared Link (or Cyrex Labs, not sure who states it) state that for their blood test, "One must consume gluten containing food at least once two weeks prior to taking this test." This is so different from everything I have read. Is this for people eating gluten anyway?
  18. TJSpin
    but what if the 29% of the healthy volunteers actually had atypical symptoms...those that are unnoticeable. dr, Tom O'Bryan says that only 1 of 8 actually feel the "typical" symptoms of bloating and other tummy problems. What if those 29% had issues that weren't noticed yet. Also, how is someone supposed to do a gluten removal test when...
  19. TJSpin
    Yes, I noticed the dates. It is very old, for sure. This is just all so confusing. I guess I'll wait for the transglutaminaswe test to come back and go from there. Just reading that made my heart sink for my little gal....although nothing different will occur.
  20. TJSpin
    I haven't asked her doc yet. She's been mostly gluten free for about 3 weeks now. I am so confused about what test to do next to make an accurate diagnosis. I REALLY do not want her to go through a biopsy at 6. I'm having Enterlab do the transglutaminase testing in hopes of getting some more answers. I guess what I am wonder is whether the IgA anti-glidan...
  21. TJSpin
    According to this article on celiac.com, it states that if one has a positive anti-glidan IgA test, there is a 97% probability that they have celiac disease. Is this really the correct figure? Am I reading this correctly? Is there much of a reason to do any more testing for a 6 year old? Anti-glidan IgA 73 units.
  22. TJSpin
    If you listen to Dr. O'Bryan in Open Original Shared Link, you'll hear him say that only 50% of celiacs react to Transglutaminase, the other 50% react to another protein. You may still be positive and have a negative Transglutaminase result.
  23. TJSpin
    Susan, Just curious....after your guten sensitivity test at Enterolab, was the malabsorption test the next in line for your celiac diagnosis? Did you consider the stool test for transglutaminase? My 6 year old just got her gluten sensitivity test back and I want to test for celiac but do not want the biopsy for her. Based on your experience with Enterolab...
  24. TJSpin
    She had the gluten sensitivity fecal test from Enterolab. I'm now thinking about doing the Anti-Tissue Transglutaminase Antibody fecal test for her. they already have her sample so it would be fairly easy. Would that be testing for the same antibodies as a blood test for celiac?
  25. TJSpin
    New here as my 6 year old just got her positive gluten sensitivity test back a few days ago. My quick question (that probably gets asked a lot her but I can't seem to find it) is, why do the blood test for celiac if the recommendation for GS is 100% gluten free anyway? I think I am going to do the blood test but I am not sure why I feel I need it done....
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