Christine0125

Missy - I was 34 with my first bout with optic neuritis (now 43). I'm not sure I really missed anything in the 9 years as I don't have any significant symptoms and sure hope it stays that way as I hear some are symptom free for very long stretches. The things the neurologist asked was any feeling of pins and needles, lack of balance/coordination, any bladder...

I like the Neurologist ok but have had limited experience with him so I guess you could say the jury is out. I got the impression that he didn't go into a great detail as an appointment with such a diagnosis is obviously overwhelming - what I know is that 8 years ago I didn't have spots and now I do although he said "a couple" so I didn't light up like a...

I was diagnosed with celiac just over 3 years ago at age 40 but had mild symptoms for years that I brushed off. Symptoms finally intensified and I got tired of bring told I had reflux, a bad gall bladder, hormone fluctuations and asked to be tested for celiac. So darn frustrated to have yet another condition to deal with.

Anyone else have both? I had my 2nd bout with optic neuritis in late February (ophthalmologist first though uveitis). 1st was 9 years ago and at that time MRI was clear. No other MS like symptoms but MRI showed a couple inflammatory spots enough for the neurologist to diagnose. Hoping that along with the gluten-free diet (which it sounds like many MSers...

My celiac daughter goes to middle school next year. She does have a 504 but I need to schedule a meeting with the school and determine how to handle as she has some kind of "life skills" class that includes cooking. Following this topic... great ideas.

Gummy multi-vitamin and gummy probiotic. Her labs were perfect when last checked with this combination.

I just had optic neuritis in Feb/Mar which causes severe blurriness - this was my 2nd time (1st time was pre-celiac diagnosis). At first the ophthalmologist indicated it was uveitis which can also cause blurriness but when it didn't improve with drops, diagnosed it as optic neuritis. I'm not sure if it's my celiac or something else autoimmune going on with...

Great info - thanks! I take Culturelle daily. Have you found taking it at night more effective? Do you have a brand of digestive enzymes you recommend? I think I may need to add that to my regimen.

Any tricks you have for how you narrowed down your intolerances? I'm so bad at keeping a food log. I was diagnosed over 3 years ago and feeling pretty good until recently (with some ups and downs). Now I'm dealing with bloating a few times a week. My doc suggested trying the low fodmap diet but I notice that a lot of the items that many with celiac are...

Yep - I have online lab results. Like I said, mine have always been normal to high. Last labs showed B12 981 pg/mL range 211-946. Since it was marked as high, I stopped taking the supplement. Trying to be patient - no change yet (but it's only been 24 hours) with the drops.

Miralax has helped my daughter . Probiotics seem to help me with regularity. So sorry to hear she's suffering so bad and unable to get the necessary tests. What about good old fashioned prune juice?

Thanks for the link. I had been taking B12 supplements when first diagnosed but my last couple labs showed my levels in the high range and had stopped thinking that I was getting plenty in diet alone. I think I'll start that back up with the history of eye issues I've had.

Quick update for those following the topic. I just got back from the ophthalmologist and he doesn't think it's optic neuritis this time. He does see a lot of inflammation in my right eye and diagnosed it as uveitis. He says it's common to have uveitis with various inflammatory bowel disorders. I have steroid eye drops that he expects to work pretty quickly...

Will do! Can you give me a quick list of the foods that you've found to be inflammatory? Up until recently, as long as it was gluten free, I was feeling great! I'm sure coffee is at the top of the list but I'm not yet ready to give that up. EEK!

Thanks - I hope others chime in as well. Computer screens and bright neon lights (such as grocery stores) are bad. My eyes adjust and feel normal with more dim/natural light or when I'm wearing sunglasses. I did make an eye appointment for this week (I was overdue anyhow). I also happen to have a celiac followup with the GI next week. I've been having...