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ukdan

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Everything posted by ukdan

  1. ukdan
    Before you start suspecting other foods and cutting them out give it another day or so. Garlic and chickpeas are both gas producing foods (especially when your stomach is vulnerable) and it can take more than a day to clear from your system.
  2. ukdan
    I've had similar problems with sugars and have found following a low FODMAP diet helps, I haven't got any links to hand but there is plenty of stuff online if you search for it. I've found it is still a bit trial and error as not all foods listed as 'safe' are suitable for me personally but it has helped a lot once you figure out the main culprits of the...
  3. ukdan
    I'm self-diagnosed but I did find I was the same, not only my legs but all over even with a cold room in British wintertime! It has improved since going gluten free so hopefully it will be the same for you.
  4. ukdan
    I am also self diagnosed and currently on citalopram- whether you stay on them is entirely up to you and how you feel so I don't personally think anyone can tell you when it is the 'right' time to come off them. For me personally I'm giving the diet a chance to settle in before putting my stomach through the withdrawal symptoms but at the end of the day...
  5. ukdan
    No, you're not crazy- either that or we both are! Apart from anxiety and dizziness I haven't had many neuro symptoms like yours (although those are related to celiac) but I've had all the stomach problems. I have been similarly lumped into the 'ibs' category (pending upcoming biopsy results) but found I have been much better off gluten, dairy and soya...
  6. ukdan
    I finally got *most* of my results from my bloods (full count, TTG and thyroid) and endo/colonoscopy and was told I had no evidence of coeliac/crohns. This should be good I suppose except it doesn't make sense in that coeliac fits all my symptoms and since the tests were done I've been back off gluten and feeling better if not completely 100% yet. The...
  7. ukdan
    I wasn't put to sleep for mine but they gave me a mild sedative and local anaesthetic and apart from the initial 'swallowing' (which is just weird rather than painful) it was fine. As long as you have someone to take you home you're discharged a few hours after the test. Really nothing to worry about!
  8. ukdan
    Have you had your thyroid checked in any tests? That can stop your body regulating temperature properly (hence the sweating) and is also linked to anxiety and depression. Not saying this is definitely the cause as I am by no means an expert but was just a thought.
  9. ukdan
    Hi Helene, I can't really add much more than what has been said already but I can point you in the direction of a good bread recipe (in my opinion anyway) Open Original Shared Link It is also dairy and soya free should you happen to be avoiding them like me. Despite what it says I don't use all the flour mixtures and make up the quantities with just...
  10. ukdan
    I was advised the equivalent of 3-4 slices of bread for 6 weeks, I'll find out soon whether it was enough as I've also heard it should have been longer.
  11. ukdan
    The TTG tests for antibodies that are produced if the body reacts to gluten (which in turns causes damage to the small intestine) so it sounds like your results were within the normal range if they have said negative for celiac. It might be worth asking for more details just to be sure, and also to bear in mind that false negatives can occur with these tests...
  12. ukdan
    The scopes went fine and the gluten free diet (take 2) has started! The doc said it all looked clear but took biopsies to look at 'just in case' *rolls eyes*. Will see if they say the same when they actually look at the biopsies properly, although apparently that may not be for another month- the wonders of the NHS!
  13. ukdan

    Is your avatar pic a (wheat) cracker coming to attack you? hehe, it's funny whatever it is!

  14. ukdan
    I definitely understand what you mean youwillrise about control which is probably why I'm hoping for celiac/gluten sensitivity rather than anything else! I had my blood test earlier in the week, my doc has been very understanding and arranged all the tests around the same time to limit the inconvenience so in theory I'll get all my answers in one go. Will...
  15. ukdan
    I don't know if it is common but I've just finished a challenge (being tested later today) and I can say for me it was the same. I did start to question at times whether I did really have a sensitivity or not when my symptoms lessened occasionally. All I can suggest from my understanding is that intolerance (whether it is full blown celiac or not) is sensitive...
  16. ukdan
    So after what feels like two long months my endo/colonoscopy is tomorrow and to be honest I can't wait! This challenge alone has been enough to convince me that gluten obviously doesn't agree with me and I fully intend to remove every trace of it whatever the results. I'm not really seeking advice, more just sharing my experience for anyone in the same...
  17. ukdan
    I'm afraid I don't know much about gene testing but by the sound of it you're obviously reacting to gluten and also have been shown to have damage via endoscopy (even if they didn't do the right biopsy). Out of interest what explanation did they give for the inflammation?
  18. ukdan
    Celiac is very difficult to diagnose and the tests are notoriously unreliable. This is why if the tests do come back negative they tend to suggest taking out gluten anyway to see if you feel any benefit. It sounds like you have felt better without gluten so it looks like you are at least gluten sensitive. The only difference between sensitivity and celiac...
  19. ukdan
    Just a thought about the imodium, I started off using the standard range until I realised that they have lactose in them. If you are sensitive to it (you mentioned cutting out dairy) then that might be causing some problems. In the UK Imodium Plus (not sure if it has the same name elsewhere) doesn't have lactose and also contains simeticone which might help...
  20. ukdan
    Sorry, I used to live on bread so it's easy for me to think in those terms! However by the sound of it if you're eating glutenous cereals/grains/pasta on a regular basis you're getting enough. Gluten is hidden in loads of food as well so unless you're eating gluten free substitutes you may even be eating more than you think! Good luck, from your reaction...
  21. ukdan
    My understanding was that RLS can be caused by iron deficiency which is a symptom of celiac so indirectly yes! Although I am also waiting to be tested so not confirmed celiac I had the same but did notice my legs calmed down once I started taking iron supplments.
  22. ukdan
    Thanks for the reply, based on how I've felt since I've been back on it I believe I'm gluten sensitive at the very least. However, having been previously diagnosed with IBS purely based on a blood test and stool sample (only to check for infection) I want to at least rule out anything more serious. To be fair, although it took a while to get the appointment...
  23. ukdan
    The advice given to me was the equivalent of 3-4 slices of bread a day for at least six weeks (I am currently just over 4 weeks in myself) but I have heard longer. I think it comes down to the person and how your body reacts at the end of the day!
  24. ukdan
    I'm new here, largely suspect that I am coeliac but still being tested. My short history is mainly stomach issues for the past year with anxiety problems as well, these improved with being gluten/dairy free for 4 months but not enough to convinve me that I was definitely coeliac without proper testing (I realise this may not have been long enough but it also...
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