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RiFi

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Everything posted by RiFi

  1. RiFi
    I too have been wondering if psyllium allergy is related to celiac disease. At this point my celiac status is unknown (in the process of testing now) but about 5 years ago I developed a severe allergy to psyllium. I had chronic urticaria for over a year and it was only be sheer fluke that I finally worked out psyllium was the cause. Since then I have gone...
  2. RiFi
    Hi there, With regards your rash Dermatitis Herpetiformis, the little bumps don't necessarily have to be fluid filled. On the Open Original Shared Linksite (I'm an Aussie) it says the rash can appear 'hive-like, persisting in one area, or it may look like a pink and scaly dermatitis'. I have a small pink scaly patch on the side of my wrist as well as persistent...
  3. RiFi
    Hi there, I'm hoping someone might be able to help me interpret my celiac serology test results. I've read that IgA deficiency can make some of the other test results invalid, but how do you know if you're IgA deficient or just low in IgA? TTG IgA <1 U/mL range (<7) [Gliadin (DGP) IgG <1 U/mL range (<7) IgA 0.82L g/L range (1...
  4. RiFi
    Hi again I also should have mentioned that food sensitivities/ allergies can definitely affect sleep - some can make you feel wired, have vivid dreams, night terrors and/ or generally contribute to a restless night's sleep. Having said that, there can be many other causes for sleep problems as well.
  5. RiFi
    Hi Xjalin, In your post you mentioned sleep issues - what kinds of issues are you having? While it definitely sounds like you've got gut issues independent of your sleep, poor sleep can lead to all sorts of neurological issues, including stuttering. Has your doctor ever recommended a sleep study? Also, if you explore the celiac route and don...
  6. RiFi
    Hi Leslie, I'm really sorry to hear you've been having such a rough time of it lately. I'm sure it's been made more distressful by not being able to find an underlying cause. From everything that I've read, there definitely is an association between low Vitamin D and celiac disease. What are your calcium levels like? Often low Vitamin D leads...
  7. RiFi
    Thank you for your well wishes Like you, I'm sure nothing serious has shown up, I think I'm kinda curious more than anything. It sounds like a ridiculously indulgent and naive thing to say, but when you've got soooo many issues going on with both my head and body, you kind of hope you can uncover/ be diagnosed with a condition that helps make sense...
  8. RiFi
    Thank you for your feedback Just to clarify, do the letters 'TTG, IgA gliadin Abs' pertain to one test or two? The comma after TTG is throwing me because it makes it look like two different tests. Hope me question makes sense
  9. RiFi
    If u do a search for 'ehlers danlos' in the search box of this forum, you'll find many, many posts.
  10. RiFi
    Hi Clayton, You might want to explore the link between celiac disease and Joint Hypermobility Syndrome/ Ehlers Danlos Syndrome. Many celiacs have this syndrome and it can have major musculo-skeletal (hypermobile joints, pain, stiffness, dislocations) and neurological effects (including ataxia). Dr Tinkle is an expert in the field and has recently released...
  11. RiFi
    Hi Everyone, Any ideas on the something? My (new) GP and I are exploring whether I might have Celiac Disease. My mind and body is always all over the shop, so I can't say that I'm aware of reacting to gluten and/ or wheat per se. But given that I have many of the markers, we're just beginning to investigate. I have just been tested for: TTG, IgA...
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