QueenEe

Hi all, My rash started up after I was gluten free for a few months. First, I got a bumpy, itchy rash on my elbows (both) which cleared up after about a week, without me doing anything to get rid of it. The same rash then appeared on my legs (both) and it hasn't budged since (6+ months)! My GI took one look at it, heard my digestive complaints, and said...

GI's have heard worse so don't worry abt sounding like a hypochondriac. Interesting, because I have that same stubborn white coating on my tongue and when I went gluten free for a few months it went away. Not sure what that means, and I woudnt assume you've got celiac based on that, but between that and your extreme lethargy following eating, i'd say you...

oh gosh, that must feel awful, I feel really bad for you! I was diagnosed with celiac with negative bloodwork, just based on my experience, but as i was reading your post I recognized lots of what you described: bulky stools, pain in the lower left quarter of the abdomen, and now I'm remembering that a few years ago, before I started on this whole celiac...

I agree with you that more than one test is needed; I just wish I'd have known to ask for more tests when I was still glutened! I have all the classic symptoms: paleness, fatigue, gas, bloating, diarrhea occasionally (it mostly went away when I got rid of dairy), constipation, white coating on my tongue all the time, my hair grows super slowly, mild pain...

Such an important point!!!! Unfortunately, my GP told me to go off of gluten once my blood test came back negative. She meant well, and honestly believed that even though I tested negative, I could have an intolerance to gluten which would be helped with a gluten-free diet. Well, now that I'm off of it, I cant get retested to confirm my GI's diagnosis (she...

I just called the lab that processed my test, and they told me the range is: Anything less than 19.9 is negative. So my 5.1 is a definite negative! Its disappointing that my GI was wrong, and I'm not a weak positive, but she dx'd me with celiac before even seeing these results, so I guess my diagnosis still stands Would I need a separate test to know if...

I called my doc today, and the secretary read me the test results and told me the range was: less than 20 is negative, and above is positive. Does that make sense? If so, why would my GI tell me it's a weak positive? I'm so confused

Hi again, When I had my celiac bloodwork done, my doctor tested me only for tissue transglutaminase IGA, and I got a 5.1. My doctor said it was negative, since anything lower than a 20 is a negative. Well, I wasn't yet aware that I should also get tested for IGA deficiency to make sure my numbers were accurate indications of anything. Too late for that now...

btw, i'm also always pale, and right when my celiac symptoms started I actually gained a few pounds, and just looked bloated all the time. If your doctor won't diagnose just because of the lack of that one symptom (which isn't present in all cases), me thinks it's time to find another doctor who is better versed in celiac symptoms, and all of its possible...

I also was under the impression that weight loss was a prerequisite to being diagnosed with celiac, but I read somewhere that it isn't even such a prevalent symptom (i wish i remembered where i saw it!). I was diagnosed by my GI based on my experience, not with a biopsy, and I've never experienced the weight loss either. I strongly suspect that my parents...

Thank goodness I don't get angry but I get very irritable on gluten. I generally lock myself in my room and do my own thing for a while till I'm back to normal. Helps to minimize the damage . Oh, and stay away from gluten! Its just not worth it.

my skin is super pale, but I'm hoping that will change once I actually start absorbing the nutrients I'm eating. Thanks for the heads up, I'll do a search and see if I can find those threads. And yes, when I'm forty I'll be very happy to get carded; till then i'd like to look my age

Not fun! It's reassuring to hear that once I'm on the gluten-free diet for good I'll hopefully start looking more my age. (And one day we will be thankful that we look so young! just not while we're in our twenties )

I recently went back on gluten for a couple days, to see what would happen and determine if celiac is really what I have (never had the biopsy, and my bloodwork was negative, so I always have the doubt that maybe, just maybe I was misdiagnosed.) Well, other than having to eliminate my food within a few hours, I was totally fine right after the gluten. I...

Hi all, I'm a 21 year old female, and I was recently diagnosed with celiac by my GI, even though my blood test was negative (5.1). Based on my symptoms, my rash, and the way I reacted well to a gluten free diet she was absolutely certain that I have celiac. (She's the director of her department, so I'd trust her to know her stuff ) I had many of the ...