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cgilsing

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  1. Thanks fo the info about the scope! If it comes down to it, I will push to skip it. Here is the link I ws reading. Particularly the second paragraph under small bowel biopsy. Open Original Shared Link
  2. I hear you, Its not an easy decision. We should get back our boys' results in a week or so. Im probably jumping the gun even worrying about it before then. I hope your son doesn't have too bad of a day!
  3. I do know that at least in the beginning there was more going on than just celiac disease or a gluten intolerence because i was gluten free during my pregnancies and neither of the boys had ever been exposed to gluten until they were well over two. However, gluten would have fallen squarely in the do not eat list for them because it is a protien. You...
  4. Both my children (now 3yo and 5yo) were diagnosed with severe protien allergy as infants. They were on nutramigen AA for the first year, and elecare until they were 2. Other than their formula they were on a strict meat free, milk free, egg free, soy free, bean free diet. At about two they were each given a clean bill of health. However, we have some lingering...
  5. Happy birthday and may God bless you today

  6. I've used teff flour before to make injera bread for Ethiopian dishes, but never whole grain teff. I was at my health food store looking for teff flour one time and they only had the whole grain, and she suggested grinding it myself. Sounds like a lot of work, but it's worth a try!
  7. Thank God none of us have a nut allergy Luke gets all of his protein from his formula. It's broken down into individual amino acids that he can digest. So I'm not worried about trying to fill that gap for him. For me, I've gone this far without having to be a short order cook for my family (although it seems like everyone has one need or another), but this...
  8. Yes, all meat. He can't tolerate protein. He started passing blood the night we brought him home from the hospital. We took him to our pediatric GI (who is the best in the area), and he diagnosed him. He gets most of his nutrition from a speciality formula that costs us 50 a can (that lasts about 3 days). He will probably be on it much longer than babies...
  9. My 11 month old son is allergic to soy, eggs, milk, and meat. This is probably something he will outgrow by the time he is three.....but until then we need to find something to feed him. I have celiac disease. Does anyone have ANY recipes that would fit all of these criteria? I could add non gluten free things to his if I had to, but I'd prefer if there...
  10. ginnybean, I'm really sorry that your family is giving you such a hard time about this. It is not something you chose, and your husband should understand that. Does he understand that gluten free isn't a vegetarian diet? If I was you, I would make it perfectly clear to him that he is going to be finding his manly self in the kitchen cooking his own dinner...
  11. Shanmegjilal & foodiegurl, It really does get a lot better. You will never get away from reading labels all together, but I would say I don't have to read the label on 95% of what I eat. I just know what I can and can't have, what brands are good and what aren't. I haven't had an accidental glutening in 6 months or so either (and I'm very sensitive...
  12. ang1e0251 - You mentioned how your husband looks out for you. I'm lucky enough to have a husband that is the same way. No one has seen the transformation in my health like he has, and he knows how important it is that I stay away from gluten. He is a skilled label reader and knows all the right probing questions to ask at restaurants I should list that...
  13. I haven't been on this site in forever, but 4-5 years ago I was on here a LOT. It all seemed so overwhelming at first and this site helped me learn the intricate details of living with celiac disease and introduced me to a lot of great people who I could relate to. As time went on, living with celiac disease became second nature and I spent less and less...
  14. Currently, no he is not gluten free. He was gluten free of course as an infant though and the symptoms were still there. We also have tried lactose free, and soy free on our own. Ian has been on the medication for a week and from what I have read online sulfasalazine is supposed to work in 2-5 days. I'm waiting for a call back from the Dr......
  15. I suppose this isn't exactly a celiac disease question as my son has already been tested and the results were negative, but I have received so much advice and help from this community and I'm hoping that someone has some insight into our situation. My son is 21 months old and has always had a digestive problem. When he was a newborn he had up to 10 dirty...
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