SPJandE

The tough part is finding a doctor anywhere near our area. We live in a small town and it's not easy. We drive 1.5 hrs. (1 way) to see a good pediatrician and the specialists are a good bit further (one is a 3 hr. drive one way). We would be more than willing to put him on gluten for a time, in order to do a biopsy if we could actually find a doctor within...

My son is not "officially" diagnosed, as we've decided to hold off on testing until he's older. My son had silent reflux and cried constantly (and I would bet part of that was itching and not being able to scratch). He had weight loss/failure to gain issues for months. He finally made it back onto the chart at 9 months and stayed in the 3rd percentile until...

You could also try a probiotic, which helps with all kinds of tummy issues. Culturelle for Kids is dairy and gluten free (and also has no wheat, dyes, flavorings, or preservatives). It comes in powder packets that you empty into a drink. For the baby, we just empty it into a bottle. For the big boys, just put in in a bit of watered down juice.

Doesn't sound anything like my son's either.

I can't be of too much help, but I will tell you my experience (the little bit of it anyway). My 7 year old son's doctor wanted to do the full testing, including the genetic part. They put in for the pre-approval, but insurance refused to pay for that part. So we are only able to get the regular testing done, which we are hoping is enough. He is going...

Thanks for your reply! I guess I should elaborate a bit more. I forgot I hadn't posted on this board yet. We're all going to go gluten free soon. My 7 year old is being tested and if it's positive (I'd be shocked if it isn't), we'll also test the 6 year old. Even if it's just the baby though, it'll be easier to just keep it out of the house because...

When you get a celiac diagnosis, do you replace the highchair? We have an older high chair that I looove. I am sure it's had gluten on it many times over the years. There are some scratches on the tray. It's been washed and wiped down a lot since we've had it, but will that get rid of it all or do we need to replace it? Little one is really sensitive...

Mine never has and he was broken out for 7 months straight. I have no idea if it's possible though. See what a big help I am? I know my older kids though are the kings of viral rashes that appear either out of nowhere or following a cold or illness of some sort. Maybe it's that?

I don't want to jinx it BUT this is day 10 gluten free (day 9 steroid free) and his rash has not come back. Normally, it starts to come back at day 4 (steroid free) and by day 7 it is everywhere and awful. He started to get a few bumps at day 4. They went in the usual pattern (come and go in random spots) for a couple days and now his skin is clear again...

I got the response from his doctor and all that went out the window! I always expect her to think I'm totally crazy and I am always surprised (pleasantly) when she doesn't. It took close to 7 years, but we finally found an awesome pediatrician...even if we have to drive 1.5 hrs. to get to her. Okay, so DP and I talked about it and decided to stick with...

A quick question! I got an e-mail back from his doctor. She agrees that we should definitely test my older son (he's 7). The testing she mentioned, she said has to be pre-approved by insurance (which won't be a problem). She said the testing kit has to be sent to them and the blood is drawn in their office. She said it is "a multi step test that is done...

I looked this morning on their website and from what I seen, he's on one of the lower ones. He's on Neocate Infant (which is the only one appropriate for him). The Neocate Nutra has the same amount of iodine (well, very close) but it's meant for spoon feeding. I seen that the Junior has a bit more in it. Hopefully just going gluten free will make an improvement...

Well who the heck knows then! We can't test at this point without continuing to feed him gluten for the next month and even then it's iffy as to whether or not the test would be accurate. So I think we are doing the best we can possibly do for him. We'll just see how the gluten free trial goes, see what his doctor thinks, and go from there.

I will definitely ask her about giving him about Benadryl doseage if we need it. It always comes raging back, so I expect this time to be no different. I did check our laundry detergent and it is gluten free (Ecos F&C). I still need to check on the dish detergent (hypoallergenic, dye free Dawn for bottles & Cascade for Dishwasher stuff). We...