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SPJandE

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Everything posted by SPJandE

  1. SPJandE
    The tough part is finding a doctor anywhere near our area. We live in a small town and it's not easy. We drive 1.5 hrs. (1 way) to see a good pediatrician and the specialists are a good bit further (one is a 3 hr. drive one way). We would be more than willing to put him on gluten for a time, in order to do a biopsy if we could actually find a doctor within...
  2. SPJandE
    My son is not "officially" diagnosed, as we've decided to hold off on testing until he's older. My son had silent reflux and cried constantly (and I would bet part of that was itching and not being able to scratch). He had weight loss/failure to gain issues for months. He finally made it back onto the chart at 9 months and stayed in the 3rd percentile until...
  3. SPJandE
    You could also try a probiotic, which helps with all kinds of tummy issues. Culturelle for Kids is dairy and gluten free (and also has no wheat, dyes, flavorings, or preservatives). It comes in powder packets that you empty into a drink. For the baby, we just empty it into a bottle. For the big boys, just put in in a bit of watered down juice.
  4. SPJandE
    Doesn't sound anything like my son's either.
  5. SPJandE
    I can't be of too much help, but I will tell you my experience (the little bit of it anyway). My 7 year old son's doctor wanted to do the full testing, including the genetic part. They put in for the pre-approval, but insurance refused to pay for that part. So we are only able to get the regular testing done, which we are hoping is enough. He is going...
  6. SPJandE
    Thanks for your reply! I guess I should elaborate a bit more. I forgot I hadn't posted on this board yet. We're all going to go gluten free soon. My 7 year old is being tested and if it's positive (I'd be shocked if it isn't), we'll also test the 6 year old. Even if it's just the baby though, it'll be easier to just keep it out of the house because...
  7. SPJandE
    When you get a celiac diagnosis, do you replace the highchair? We have an older high chair that I looove. I am sure it's had gluten on it many times over the years. There are some scratches on the tray. It's been washed and wiped down a lot since we've had it, but will that get rid of it all or do we need to replace it? Little one is really sensitive...
  8. SPJandE
    Mine never has and he was broken out for 7 months straight. I have no idea if it's possible though. See what a big help I am? I know my older kids though are the kings of viral rashes that appear either out of nowhere or following a cold or illness of some sort. Maybe it's that?
  9. SPJandE
    I don't want to jinx it BUT this is day 10 gluten free (day 9 steroid free) and his rash has not come back. Normally, it starts to come back at day 4 (steroid free) and by day 7 it is everywhere and awful. He started to get a few bumps at day 4. They went in the usual pattern (come and go in random spots) for a couple days and now his skin is clear again...
  10. SPJandE
    I got the response from his doctor and all that went out the window! I always expect her to think I'm totally crazy and I am always surprised (pleasantly) when she doesn't. It took close to 7 years, but we finally found an awesome pediatrician...even if we have to drive 1.5 hrs. to get to her. Okay, so DP and I talked about it and decided to stick with...
  11. SPJandE
    A quick question! I got an e-mail back from his doctor. She agrees that we should definitely test my older son (he's 7). The testing she mentioned, she said has to be pre-approved by insurance (which won't be a problem). She said the testing kit has to be sent to them and the blood is drawn in their office. She said it is "a multi step test that is done...
  12. SPJandE
    I looked this morning on their website and from what I seen, he's on one of the lower ones. He's on Neocate Infant (which is the only one appropriate for him). The Neocate Nutra has the same amount of iodine (well, very close) but it's meant for spoon feeding. I seen that the Junior has a bit more in it. Hopefully just going gluten free will make an improvement...
  13. SPJandE
    Well who the heck knows then! We can't test at this point without continuing to feed him gluten for the next month and even then it's iffy as to whether or not the test would be accurate. So I think we are doing the best we can possibly do for him. We'll just see how the gluten free trial goes, see what his doctor thinks, and go from there.
  14. SPJandE
    I will definitely ask her about giving him about Benadryl doseage if we need it. It always comes raging back, so I expect this time to be no different. I did check our laundry detergent and it is gluten free (Ecos F&C). I still need to check on the dish detergent (hypoallergenic, dye free Dawn for bottles & Cascade for Dishwasher stuff). We...
  15. SPJandE
  16. SPJandE
    We can't test him anytime soon because of the steroid he had 3 days ago. We had already decided to try him on a gluten free diet and see if it makes any difference though. Of course, he's only been gluten free for 4 days, but it's a start. I'm mainly just asking what's "normal" for a dh rash because I really have no idea. He is still itchy at times...
  17. SPJandE
    His bumps have never popped. But the rash has also never gone away at all without a steroid. The only time they scab over is if he digs at them too much. Is that normal for DH too? I guess it's possible that it's never had the chance to run it's full cycle, since he was still on gluten until a few days ago. I ask about the cat because some others ...
  18. SPJandE
    I have another quick question. He had the steroid on 4/20, so 3 days ago. You can still feel the bumps everywhere but they are smaller and you can't see them. Does that still go along with DH or does that sound more like a contact allergy? I ask because we do have a cat in the house. I don't see it being that as like I said, he will clear up for an...
  19. SPJandE
    Thank you all for your responses! I can't tell you how much I appreciate any little bit of help/advice!! I am a bit overwhelmed, but definitely taking it all in. I sent an e-mail to his doctor and I'm sure she'll get back to me on Monday and we'll go from there. For now, we are just going gluten free, mainly because I can't make myself give it to him...
  20. SPJandE
    Thanks for your reply! I don't take anything you said as knocking me. I just want help! It's hard to see him digging at his arms and legs and knowing that I don't know what to do for him. To respond to you though, we already drive about 1.5 hours to get to his ped because she is just wonderful, so it's not a big deal for us to drive to see other doctors...
  21. SPJandE
    I was directed here by another member, so hopefully you guys can help me out. My son is 7 months old and has had this rash off and on since he was 2 months old. Out of the last 5 months, I would say he has had clear skin for maybe 3 weeks total (all broken up). It is red, bumpy, and really itchy. He is totally miserable sometimes. He was breastfed...
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