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Motherbird7

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Latest Celiac Disease News & Research:

Everything posted by Motherbird7

  1. Motherbird7
    ***UPDATE*** We were finally able to recieve a copy of the family's genetic testing for my deceased sister's HLA tissue typing. It seems they did include DQ for my (living) sister with dermatitis herpetiformis and I who are both a perfect tissue match but apparently not for my other sibs. According to the Histocompatibility Report we are (have?) DQB...
  2. Motherbird7
    Alright, you have all been so helpful, but now I am hungry for cake too! lol I will check out the cake mixes you have so temptingly recommended.
  3. Motherbird7
    Thank you Skylark, I appreciate your kind words and also your comment about the stronger 'genetic test'. I have been able to relax about seeking more of that kind of testing and focus instead on the lifestyle I need to now live for my health and my children's future health.
  4. Motherbird7
    I am crying reading this because I am so grateful for you and this community who ARE making it emotionally so much easier than I was afraid. I am turning to this forum on my down days when I am scared, and on my up days when I feel confident I can learn and adjust to something new. While I technically have probably still been exposed to gluten since I am...
  5. Motherbird7
    HaHa I just read about the Chef and was trying to figure out how to get to the restaurant since I live in the same state! While I am lucky to have a husband who suggested the whole family be gluten free to make it easy on me....as if making enough gluten free bread to feed 9 people was easy! lol...I am realistic enough to know he will want his pizza and...
  6. Motherbird7
    For the second month in a row (gluten free 3 months) my cycle seems to have snuck up on me early. This isn't a problem because even though I have been very regular for at least 3 years now, it was usually longish, like 32 days. What it tells me is that being gluten free has been changing something. The best thing for me has been the near disappearance...
  7. Motherbird7
    Thanks pricklypear1971 1971 was a good year for me too! Yes, the items I have chosen to keep I can thoroughly clean. I guess I was not sure if that was enough or if there would be a residue I couldn't see. Anything with a too tight place I can't get to is going to be replaced, like my rotary cutter. I only use disposable bags anyway so that makes...
  8. Motherbird7
    I started making cakes last year. I found I really enjoyed the decorating aspect, especially modeling chocolate. I found I might have a real talent for it (lots to learn and practice though) but I am not an enthusiastic or patient baker. In fact, discovering I have celiac a few months ago has been freeing because I no longer have the pressure to make cakes...
  9. Motherbird7
    Thank you faithforlife and congratulations on your pregnancy. My children are wonderful and their Dad has been very supportive. We have had all of them tested...so far all negative but I am suspicious because some have symptoms. As for genetic testing...I am not sure I understand about finding the risk levels of each one? How do you know that? With myself...
  10. Motherbird7
    I know there is an association between miscarriage and celiac but I don't understand the relationship. About 5 years ago I suffered my first miscarriage (13 weeks) after 5 healthy pregnancies and 1 happy adoption. I was 36 at the time. I silently worried it had been caused by stress due to my sister's cancer diagnosis and taking care of her 3 babies...
  11. Motherbird7

    ARCHIVED Doctors Who Have No Clue

    Motherbird7 replied to BabsV's topic in Doctors

    I am completely new to celiac and gluten free diet (3 months) but shortly after I recovered from my initial adjustment symptoms, I started having pain exactly as you describe. This pain is different from being glutened for me too because I don't get the other symptoms along with it. I finally connected it to rice and quit eating it. I still have rice flour...
  12. Motherbird7
    Thanks MitziG, now I just need to convince my parents to get tested.... I am a little confused still about non-celiac gluten intolerance. I have been understanding it to be on a spectrum that progresses towards celiac or can be triggered at any time? If not, then how know if she is 'safe' to eat gluten sometimes even when it makes her sick?
  13. Motherbird7
    So, all my seven children have been tested for celiac as of last Friday but I have not recieved the results yet. Before testing, I was making sure they all were eating whole wheat sandwiches and other store bought bread products but I tossed all wheat flour and gluteny ingredients from the home. We ran out of bread a couple of days ago (after testing but...
  14. Motherbird7
    Thank you MitziG, I realize I may have caused some confusion. 13yo son is the same one I was originally talking about in this post. He is the first of my seven children, all ages, who will undergo testing. The doctors of the other six children have been receptive to the opinions of those on this forum and have agreed to do the comprehensive celiac panel...
  15. Motherbird7
    UPDATE: It looks like I have received more detailed lab results in the mail today for my 13yo son. It appears they did test more than I initially thought but were sent to a LabCorp in NC. Deamidated Gliadin Abs, IgA: result: 1 range: negative 0-19 t-Transglutaminase (tTg IgA): result: <2 range: negative 0-3 Immunoglobulin A Qn, Serum: ...
  16. Motherbird7
    I appreciate your responses. I haven't had time to do much research on celiac because I am too busy looking up recipes while figuring out how to eat! lol However, the little I had been able to glean seems to be correct. My daughters have a different doctor so I am hopeful for better communication when they go in tomorrow.
  17. Motherbird7
    My first child of seven was tested and I requested that they mail me all information. He is my adopted nephew (my side where the celiac family history is) but has no symptoms. His iron was tested normal. But I could not get a clear answer from the doctor as to what was being tested for celiac. The lab tech said they would be running a series of tests...
  18. Motherbird7
    beachbirdie and nora_n, Thank you for your compassion and being so willing to share your experience. Technical difficulties have delayed my reply but also increased my gratitude for this community and those who share their time with such as me. I have had a more emotional time replying to your responses than I did my original post, I am not sure why...
  19. Motherbird7
    HaHa!! Thanks for your patience! Have a great day.
  20. Motherbird7
    Experiment....This time I am using Fast Reply and so now I can clearly see the blue 'Post' button next to 'Use Full Editor'. I think I understand now. Thank you!
  21. Motherbird7
    Experimenting....I clicked on add reply and now I think I realize that hitting the 'Add Reply' that is next to the 'Preview Post' might be the button to post the reply.
  22. Motherbird7
    I am replying in this new post to the moderator who replied to my last one... New posting isn't a problem because their is a button that says 'post new topic'. When I reply, there is not a button that says 'post' when i am done typing my reply. Only a button that says 'preview post' but after that still no 'post' button. Sorry. I know there must...
  23. Motherbird7
    I was hoping to hide some of my computer ignorance a little longer. lol I am having trouble posting a reply. I have tried twice and cannot find any button or icon such as below the field I am typing now that says 'Post New Topic'. Even if I hit 'Preview Post' there is no such option follow the preview. Thanks for your help.
  24. Motherbird7
    I first heard of celiac 6 years ago from a friend whose family was diagnosed and going through an adjustment crisis. Now it seems like it is my turn. Until the last couple of weeks, we had no idea how our separate symptoms might have been related all these years. Let me introduce myself and my sisters: 1. Me, the oldest at 40: I have had relatively...
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