Gf Princess182

Did you look at the photos in the dh photo bank?

Yes, this could be dh. If you only get them when you've been glutened then it's a no brainer. They itch like crazy especially at night often waking you from sleep & keeping you awake.

Yes, they can be on your belly button & legs. They can be anywhere on your body --- anywhere! Yes, they often become painful sores. DH is very, very sensitive to the slightest gluten.

You can go low iodine during these times & it should help them to heal pretty quickly. There is a known connection between dh & iodine. It's like iodine is the catalyst. It takes gluten to make dh but iodine really fires it up! For low iodine diet see:

Open Original Shared Link

Otherwise there is nothing you can do to make them go away faster. To help with the itching you can use Vanicream, ice packs, witch hazel, Walgreen's pain relieving ointment ( 20% Benzocaine) if you can't find that Orajel has the same ingredient in the same %, CVS version of Caladryl (the pink one) or Caladryl, Benadryl itch stopping gel. I find it helps if you can put some of the pain ointment or something like Neosporin on the places & cover them with a Band Aid --- it seems if you can keep air from getting to it then they don't itch as much & if you start to scratch the Band Aid reminds you not to. The worst thing you can do is to scratch them!!!! It only makes them itch more & will result in scars that may not go away.

I have seen some of the photos, and it looks to be close to the same thing. Mine really varies between a rash and just one or two sores. I'll have to look into the low Iodine diet. Thanks for the link!

I haven't ever put anything on it because I didn't know exactly what it was, but you certainly have given me options to try. Hopefully I'll find one that works for me. Thank you so much for your help.

Ive been Gluten Free for 2-3 year and have noticed that any time I get Glutened I end up with little bumps that itch and then they turn into painful sores. Sometimes they come in a rash and other times there is only one. I get them on my belly button and legs, could this be DH? I usually get then within 2-3 days after getting Glutened. If this is DH does anyone have any suggestions on how to care for it or what to do about it?

Where are you from? Tulsa has a great support group and I think OKC does too. You can find the Tulsa one at Open Original Shared Link

or

Open Original Shared Link

I don't live too far from Tulsa, thank you for the links. Okc is quite a ways away though.

I was just curious to see if there was any other young celiacs in Oklahoma.

I feel ya, I don't attend 90% of the social events in my circle. This has caused a lot of problems for me, as far as keeping friends/social obligation. I am sorry to hear about your ex-fiance, I can relate as I was engaged too and she left me for pretty much the same reason. She knew about it going in but I think that as she thought about the fact that this would be her life, and not just mine. That she wouldn't be able to have the same kinds of experiences as others without the concern of gluten I think that it was too much for her. I am still pretty bitter about it, I feel like I was tricked somehow.

If you get that book deal, don't forget the little people!

Yeah, it sucks knowing that someone could do such a thing. Just gotta stay positive and eventually there will be someone who understands and someone who doesnt run. I've pretty much forgiven the guy, it doesnt pay to hold a grudge.

wow sad story

welcome to the #1 best celiac forum

Thanks for the welcome

No reason to be sad about it, I'm ten billion times healthier.

I know exactly what exactly what you mean. Social events are definitely hard, and dating is nearly impossible without a disclaimer. My last serious girlfriend was one of my main motivators to go gluten free, she was very encouraging but still didn't take the time to know all the little details. ( I remember her once trying to use hand sanitizer after eating some bread) One thing I would suggest is find yourself a vegan! They understand all the concepts of celiac disease and many resturaunts that offer vegan food also offer gluten free (at least in my area). Glad to hear you are in an area where more options are available. I moved to Cleveland from an extremely small town in Arkansas and had to drive 45 minutes for anything gluten free so I can definitely relate. Here, I even have different stores to pick from and a few resturaunts that I feel comfortable going to.

Going back to social events, would you say your friends understand your disease and how it affects your ability to enjoy yourself in social situations? Sometimes I think mine get it, and other times it's like explaining the disease all over again.

Looks like between the two of us we are going to have the next great american novel... I wish we were getting paid by the word haha

I actually just moved back to Oklahoma like 2 weeks ago....sadly. I really don't like to socialize because it's so hard, but if I do I usually eat before attending. Usually before dating someone I tell them flat out and upfront about it, and if they even flinch I wont even consider dating them. When I first found out that I had it I was engaged, and once he found out he decided it "was too much trouble and not worth his time". Where I live there are absolutely no restaurants that are gluten free, not many stores carry the foods here, and theres no vegetarian places around here. I don't even think I've ever met a vegan in my entire life.

I would say that absolutely no one understands and everytime I go to a social event I feel completely out of place. I don't ever really enjoy myself. The nicest thing someone has done for me was at a birthday party, they knew I couldn't eat the cake so they bought me a bowl of fruit to eat instead. I usually eat before I leave the house to ensure I dont get cross contaminated or worse.

Lol maybe the novel will hit the bestsellers list and make millions. Then I would buy my own gluten free company and there would never be any problems again.

Welcome to the forum.

For a few reasons I decided to have a colonoscopy. The GI also did an endoscopy. Biopsy with both procedures of course. They also did a blood test. The result was a diagnosis, but how they verbalized that was "we think that maybe you have celiac disease".

I was not surprised by the diagnosis. I had experimented with a rotation diet where I did not eat any bread or pasta for 3 days, and on the 4 day I ate whatever I wanted. So, 3 days off and 1 day on. That relieved my main symptom that was bothering me which was severe, burning itching of the skin. (no rash, no eruptions, no scaly skin, no visible evidence of the itching)

So, I was diagnosed by a gastroenterologist, but I was on my way to figuring it out for myself (after many years of symptoms).

I was never terribly ill, never hospitalized, and for that I am very thankful.

Thank you so much for sharing. I like to hear how other people have diagnosed and how they are dealing with it afterwards. I am glad you found out though.

Hello Princess,

I am also new to the site, and have been gluten free for about the same amount of time. For me diagnosis was an extremely drawn out process. I first started showing symptoms of celiac disease when I was in the first grade. I would often feel sick at school and get sent home. However when I went to the doctor, they were never able to land a diagnosis either pointing to anything but celiac. My doctors would come up with things as silly as seasonal allergies or say that I was making it up. I was always very smart when it came to school and so I was always able to keep up until I moved to Cleveland where they have a maximum amount of days you were allowed to miss. So, I took my G.E.D.

Just before I took my G.E.D. and I went to the doctor for problems with diarrhea and my regular doctor had taken off for the weekend forgetting our appointment. I instead saw his partner who made the connection and ordered the blood test which came back positive.

Afterwards, I lived in a state of depressed denial for a few years. My life changed slowly for the better despite the constant glutening and at some point I realized I had something to lose so after a while of feeling sorry for myself and seeing my symptoms grow even worse, I decided that enough was enough and haven't looked back ever since. I still make mistakes but my symptoms seem to be better now. Sometimes I'm not sure though if I have an accurate frame of reference of what symptom free is as I have been living with the symptoms for so long.

Sorry for the essay, It was the first time I have really told the story so openly.

Thank you so much for your story. I am so glad that you shared. When I found out that I might have Celiac I too went through a state of depression. It's shameful to say this, but I felt like a prisoner in my own body. Once I figured out how to eat and got a doctor that cared I started getting better.

It was really hard having to explain things to people so I stopped seeing friends, dating, and going out. It's really hard being Celiac...no one knows what it is, no one understands it, and people think you're weird or contagious. After I realized I was missing out on my life I slowly began to start going out again. It's been 2-3 years since then and now I realize that it was worth missing out on life. I now tell everyone I know about Celiac and try to raise awareness.

I've lived in Oklahoma my entire life and moved away for the first time in my life (to Illinois); I was stunned to find so many gluten free options. Where I live in Oklahoma theres scarcely any gluten free food. I just moved back to Oklahoma and now they are starting to carry more Gluten free foods. Awareness is being raised and that just makes it so much easier on new celiacs. I am glad to hear that you are getting better and that you are able to openly tell the story. That's only the first step, it'll keep getting so much easier with time.

Sorry for the book I wrote lol

Celiac Specialites has a crossiant bun that is to die for....

Do they have a website?

Open Original Shared Link

Funny you should ask. Just saw this last night. I think its hard to make good croissants gluten-free.

Thank you so much, they look really good. I'm going to try these and see how they turn out. Hopefully at least one of these recipes will work....3 years is a long time without croissants.

I know that crescent rolls aren't exactly the same thing as croissants, but we love this crescent roll recipe. I've made it several times. It does work best if you use the flour she calls for in the recipe. (btw, we love the Jules gluten free flour mix. It is now our favorite go-to flour mix for gluten-free). It is simple to make, and they turn out great.

Open Original Shared Link

Try it! Hope you like it!

Thank you so much, I'm going to try this recipe. I haven't heard of Jules flour mix yet, I'm just now getting into baking.

Before I found out I had celiac disease I was a huge bread products fan. My favorite thing to eat was croissants. Since going gluten-free I haven't found any recipes for gluten-free croissants, does anyone have a yummy recipe? Please HELP!!!!

I was very very sick Ended up going through the ropes with doctors and Tests, Can't say I enjoyed cameras going in both ends at 18 but it's finally over and I'm getting better! =)

I know what you mean, I had the endoscopy done and I cant say I enjoyed it either. It's good you are getting better though.

I generally don't have a problem day to day. I can always find "something" in a restaurant to eat.

Do you work or are you at home?

I don't work yet. I just recently moved so I'm looking at getting a job. I can only work part time though, a full time job wears me down really fast.

Welcome Princess! I was home bound for several months and was scheduled to see a GI, who diagnosed me through endoscopy. It was a relief to find Celiac and not the dreaded "cancer" word.

I came home and did a search and found this place. I've settled in.

Thank you for the welcome Lisa. How are you coping with being a celiac? I know that even though I've been gluten free for 3 years it's still really hard.

Not from a doctor I can assure you

When I figured it out, my doctor had merely suggested it and left it at that. I joined this forum then, and got smart!

Well it's good that you found out. My test came up negative but I was already gluten free. I tried to go back and ended up facing dire consequences. My mom also ended up going on the gluten free diet to be nice and she decided to cheat on the diet. She ended up with a pretty nasty rash.

Hi everyone,

I'm 15, been diagnosed for 4 months, and still struggling a lot with my health, not feeling normal yet.

And my friends and boyfriend don't really understand, and don't take it seriously.

I'm super sensitive and I've been researching and have found that even if you kiss someone who's eaten gluten you can get contaminated. And I've spoken to my boyfriend about this and he's not willing to read books about celiacs or try and gluten free foods or anything..

And with friends and boyfriend like that it just makes everything a whole lot worse!

Any ideas?

I know exactly how you feel. I got so frustrated with the guy I was dating so I printed him out a little booklet for his family and for him as well. Unfortunately they still didn't get it. It's really hard to be a celiac and in the dating world, I hate constantly worrying about the food at dining places.

You need to worry about your health and well being, if they can't understand that then kick them to the curb. Someone who understands will come along, you're only 15. When I was diagnosed I was 16 and I know how awful it is those first few months. I know it feels like you're a prisoner, but I've been gluten free for 2-3 years now and it does get better and easier.

I'm an extremely sensitive as well, and I have been contaminated by kissing someone who has eaten gluten. The only advice I can offer you as far as helping people understand, keep explaining. It may take a while, but some people will understand. I wish you luck

Hello everyone,

Well I am new to the site, but I have been gluten free for 2-3 years. It almost seems yesterday that I went gluten-free. I was wondering how everyone else found out they were a Celiac. Anyone want to share stories? Also I was curious how everyone else handled the news.