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1desperateladysaved

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Everything posted by 1desperateladysaved

  1. 1desperateladysaved
    I admit to feeling as if someone is trying to kill me when gluten is treated without regard (by those that know my issues) in my presence. A mistake can be so costly for me that I fail to understand careless behavior. I hope that you will use utmost caution and apologize for any blunders as well as family member will not take it so personally. My reactions...
  2. 1desperateladysaved
    I had narcolepsy in my gluteny past. Gluteny past meaning the time when I freely ate gluten since I didn't know I had celiac at the time. I have since solved this with major diet changes both removing gluten and others.
  3. 1desperateladysaved
    I reacted to airborne gluten in the past. I found myself sick after holding a glass vial with gluten in it for 20 minutes. I was ill for 2 months. All I can say is that the brain knows that the gluten is there and goes into action. However; so far as I can tell, this is an allergic reaction beyond celiac and most of you will never have to worry about...
  4. 1desperateladysaved
    Many rice companies often process wheat in their fields or factories, for super-sensitive folks, rice can be tainted.
  5. 1desperateladysaved
    I have had another test that it is similar. I am positive that it helped me. I suggest you try to avoid any foods you have any antibodies too. IF you don't know what to eat, I would go to the grocery store and look for foods you have never eaten. I would point you to Teri Cochrane's book, The Wildetarian Diet. She has an online symptom survey to help...
  6. 1desperateladysaved
    Greetings old friends and new folks. At one time I had lost all of my swelling (after avoiding all foods I had antibodies to). After that I added many foods back in. Shortly thereafter I began to swell back up and for some reason, I missed the problem. Finally I had gone from 155 lbs to 203 lbs (No sweets) and I turned to my health providers to solve...
  7. 1desperateladysaved
    I am a little lot late here. I would check into the work OF Suzy Cohenn and Isabella Wentz who themselves had thyroid issues and have healed. They have many good ideas how to heal.
  8. 1desperateladysaved
    Thanks so much: I am sorry to say that they did not check her for celiac even though I pointed out that I have it and it is genetic and linked to diabetes. They said they would check, but they didn't. Since she is grown up and moved on, all I can hope is that she will recognize symptoms if they come upon her.
  9. 1desperateladysaved

    Help :(

    1desperateladysaved commented on Kristiceliac's blog entry in Help

    Yes, I had to do more than gluten free for other food sensitivities and get foods from companies free of gluten and soy. A wild diet (see Teri Cochrane's work) has finally seemed to solve all of my issues. I wish you well on your journey. Dee
  10. 1desperateladysaved
    I just stopped in to say that as of last May, I think I am 6 years gluten free. I have both celiac and super-sensitive allergies to gluten. I can get really sick just by holding a vial of gluten in an enclosed jar. Home has been gluten free and I am feeling quite well and am working with my diet carefully omitting everything possibly cross contaminated...
  11. 1desperateladysaved
    My household has been gluten free for about 5 years now (or was it 6?) Since I had super-sensitive allergies to gluten all shared kitchen meals have been gluten free. Most of the children ate here every meal before they grew up and moved on. My youngest biological daughter began to eat outside often the last year and after that got married and moved out...
  12. 1desperateladysaved
    Musickep, I did a Spectra Cell test which checks blood cell levels of nutrients. Genova Lab is another nutrient test I have used. First fix your gut. Many natural providers have information about that on the web. Dr. Peter Osborne has information that may help those that are not healing in a timely manner. Dee
  13. 1desperateladysaved
    I have SIBO, but am still working on it. I think I am making progress. I have been following grain free low fruit/no sugar diet for a very long time. I recently read that one can help symptoms of SIBO with lowfodmap/ grain free, or paleo, but that the bacteria still has food, so it remains. For me, I believe this is the case. i have been grain free many...
  14. 1desperateladysaved
    Have you checked fodmaps?
  15. 1desperateladysaved
    Yes, I recommend only buying professional product supplements when you need them and carefully checking their gluten certification (and soy if you need to). Buy products that are tested independently. My diet is adequate, but my absorption takes quite a while to heal. Can't wait to get back off the supplements. I was healed, but this can happen to anyone...
  16. 1desperateladysaved
    Thanks we did run the antibody test. Upon retesting the thyroid had made improvement it came out okay. I did make a mistake and had soy, which evidently triggers my celiac. I took it about 200 days!
  17. 1desperateladysaved
    Vitamin B12 injections seemed to help with my ferritin levels. The finally popped up to 58! I worked with a physician to get the shots. I believe I had been suffering from mal-absorbption and the shots helped me over the HUMP!
  18. 1desperateladysaved
    Thank you both. With the help of my nurse, I recently I tried Vitamin B injections which seemed to help me. Finally my ferritin level doubled + and I got this prickly sensation in my legs and arms. I think that was cells taking in nutrients. I used herbs recommended by my physician and supplemented with selenium and vitamin E. Upon retesting (after about...
  19. 1desperateladysaved
    I have been reading books about thyroid and have discovered that many people have "normal" lab results that have thyroid trouble. I highly recommend Suzy Cohen's book Thyroid Healthy. A full thyroid panel includes: TSH, T3, T4, Reverse T3, Reverse T4. The TPO antibody test, and one other antibody test that I don't know the name of. I had slipped...
  20. 1desperateladysaved
    Oops well I blew it big time. I failed to carefully read a supplement label. I saw that the company selling it said that it was gluten/soy free, but the ingredient list clearly showed that it wasn't. I took it for 200 days. I and my health care triangle couldn't figure out why I was swelling/ and gaining weight big time. The problems didn't stop there...
  21. 1desperateladysaved
    My dentist removed mine as he discovered problems with them. He used a rubber dam to be sure no mercury would be lost down my throat. When I had just a couple Amalgams left, he decided to remove them . He felt they likely had problems he couldn't see yet, as the other old fillings all had decay. As he worked, those two were also having decay. The deal...
  22. 1desperateladysaved
    I use to react possibly because of the plastic, I don't really know why. I use naturo-care which is made from bamboo fiber. I don't know what the price per pad is.
  23. 1desperateladysaved
    Update: No more need for adrenal support! When I first saw the functional medicine nurse a few years back, I had just begun to take adrenal support supplements. People warned me these were habit forming and my tolerance and dependence on them would increase. Still, my providers all 3 concurred that I needed them. I had been on up to 6 per day two summers...
  24. 1desperateladysaved
    How long have you been on the trek now Mossemalibu?
  25. 1desperateladysaved
    My ferritin level went down from the high I had achieved after months from 26 (I think it was) down to 16 after one extremely heavy 2 week cycle. I do think that one cycle can throw the iron off a lot. My doctors have been watching my levels closely every 2 months recently. I have dealt with some kind of hormonal imbalance. I am considering with my doctors...
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