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Birdie19

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Birdie19

  1. Birdie19
    The answer is yes....it can! I didn't believe it 9 months ago, but it's the truth. It totally happened to us. Our daughter was different immediately. I am thinking out kiddo had the neurological form. Which is why for us it was so immediate. I know it seems impossible but really it, it's totally possible that it can be such a change. I would say expect good...
  2. Birdie19
    Good Lord, what is wrong with these people?! Out of curosity how old is your son? I am guessing what the doctor is hinting at is a conversion disorder. So I would be very clear about what exactly the complaints are....right them down, for example, on Feb 2 at 9am: stated "left knee hurt, pain was a 8 on a scale of one to ten, was wincing, holding the knee...
  3. Birdie19
    From a mother who has been in your shoes (recently too, May is when our daughter was diagnosed). My daughter had high TTGA and IGG, but not high enough for the jerk of an GI doctor we saw. He wanted me to wait a couple years to see if damage appeared in the intestines. I beat myself up over going gluten free for months. My daughter did have distention and...
  4. Birdie19
    The pharmacy friend of the previous poster is correct. Sugar draws fluid into the bowels and breaks up constipation. Excess sugar can certainly cause diaherria and vomting. I wouldn't think it was a 'glutening' but more of a sugar issue. However to be safe I would contact the bakery to find out the ingredients. Best to cover all the bases.
  5. Birdie19
    I am so frustrated I could scream!!!!!!!!! My daughter is exhibiting what our pediatrician referred to as hold over behaviors. Since she has been sick for so long now that her body feels better she exhibits behaviors of age 2 & 3 again. Like she is re-testing the efficacy. Our pediatrician said to expect this after she was finally diagnosed Celiac. I...
  6. Birdie19
    Wow, what woes you have had....I am so sorry! A food journal is a fantastic idea! We started one and since a lot of our family indicators are behavior I am writing about all this too. Write what you can when you can. It has helped us a lot! It will take time to undo everything and heal the damage!
  7. Birdie19
    I know this seems ridiculous but what wording do you use? I have been saying it will hurt her tummy but I feel like I have to have a better way of saying it.
  8. Birdie19
    Seriously? They both don't eat gluten/wheat and they gave him pretzels? WOW. Weird, I wonder what went through their head. I am so disappointed to start over, on the upside I found a fantastic gluten-free bakery yesterday and went a little overboard, ok a lot overboard!!!!
  9. Birdie19
    Daycare let my kid eat a donut yesterday. I haven't really explained to my child the reason we are eating different, I have been just trying to replace things in her diet to keep it normal. So yesterday when daycare put bowls on the table with donuts in them my daughter grabbed a bowl as she always had and she starting eating. It was 2 bites but we are back...
  10. Birdie19
    Yogurts are often ineffective anyway, they do not provide ENOUGH probiotic to be useful. You would have to give the child double the amount of yogurt you would normally give. I have been using Little Critters Brand Probiotic Chewable tablets for kids. Before gluten-free she had yeast infections for months on end, infact I don't remember her ever NOT having...
  11. Birdie19
    OMG, I am so delighted to hear that others are still dealing with abdominal distention. I thought I made a mistake, does she not need to be gluten-free? Her personality did a 180, so we have that as a confirmation. Probiotics is a good idea, I stopped all that once we started the diet because I wanted to see if her yeast infections stopped. And the infections...
  12. Birdie19
    I totally hear you, I was so disappointed the other day when I went to my favorite grocery store and was reading labels of ALL our favorite foods. So few of them were actually ok to eat. I was there about 40 min before I felt so completely overwhelmed I left. Here's my suggestion....if you aren't wanting to make a list of things you buy that you like...
  13. Birdie19
    Thank you, my husband had the blood work done and it was negative. They recommended he do the biopsy because of his family history and because our daughter labs were positive. We made the appt and he said I'd rather just go gluten free than have the biposy, it's cheaper. So once I cancelled his appt he didn't do the diet. However it turns out that he...
  14. Birdie19
    Does anyone have any tips for helping my husband cope with becoming gluten free? A couple of weeks ago we started gluten-free for our daughter and the results have been amazing. I am also convinced my husband's EXTREME fatigue, bloating, gas, etc is caused by gluten. I have been pushing him to trial gluten free and he has been really reluctant saying...
  15. Birdie19
    Ok, I am new to Celiac disease in our family (my husband's mother has it - 20 years). But to me it is new. Our 3.5 year old daughter is a normal happy child. Never a complainer, but she gets bloated after meals. Nothing that would seem crazy unusual but enough that we noticed and thought, that can't be right. But or BIGGEST symptom was her NAUGHTY behavior...
  16. Birdie19
    Thanks, Cara! We are starting a diary. I told daycare, if it happens that she gets gluten it isn't a HUGE deal but I do want to know because we are keeping a journal of her symptoms and things that we see happening. Who knows if it was the diet or a myriad of other things but today she is a different kid still. This morning she went into daycare, sat...
  17. Birdie19
    I am in complete shock! Yesterday just to see, I limited as in cut out gluten in my kid for the day. I wasn't optimistic that anything would change I just thought ah hell let's try it. The results were actually, SHOCKING! She did have waffles for breakfast (trying to eat through our pantry before we do the switch). But then the rest of the day...
  18. Birdie19
    In theory if it is gluten that is causing the elevated labs if we go gluten-free then the labs will go back to normal range. Right?
  19. Birdie19
    Thank you all really! We live in St Paul, Minnesota. We live in St Paul and both work in Minneapolis. So if you know any doctors in this area that we should try, I am all ears! I had a break through with my husband today. We have a plan, a new plan! I am very excited. Because I was nearly in tears Wednesday night with how distended our daughter's stomach...
  20. Birdie19
    I am worried, what if I am missing something, what if it is some other autoimmune disorder? Juvenile Diabetes Arthritis: There doesn't seem to be anything that would indicate this.....but she is a child who gives me very little symptoms. Irritable Bowel Disease: However with this, she doesn't have the diaherria piece, or any blood in the stool or...
  21. Birdie19
    Can you have a false positive with the blood work? Is it possible to have high blood levels and NOT have celiac?
  22. Birdie19
    Lab ranges posted above, post had to go to a moderator first (as I am new). Yes, it is different GI docs. The test was negative, now what? Allergist? The GI was saying if it is negative that he would wait another 6 months have her tested again (lab work).
  23. Birdie19
    Sorry, here is the reference ranges..... She tested 12.8 for TTGA <10 is considered normal, > 10 = suggestive of Celiac Disease IgG level was 7.1, normal is considered less an 7 And her biopsy just came back NEGATIVE. So now what? Do I take her to an allergist? Or should I try the diet? Or should I forget it an move on?
  24. Birdie19
    Hmmm, I can't decide if our GI is just a jerk or our numbers really are borderline and not sure if it is Celiac. She was at 12.8 and the physician was behaving like I was pushing for somehting that wasn't necessary. He said "if she is Celiac then it is just starting because I have seen these numbers in the hundreds" I guess this is what is making me...
  25. Birdie19
    Wow, that seems stressful. Even tonight her stomach is so distended, she did need to use the potty but even after that it was distended not as severe but pretty bad. Maybe we should start the diet sooner. My husband was wanting to wait for the results but I guess we could start now. Do your kids go to daycare? My daycare told me I will have to provide all...
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