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hollyd

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by hollyd

  1. hollyd
    Hi celiac disease Family, Thanks for the interesting links. I would definitely think I had celiac for sure if I had your family history and blood results. It does seem like they haven't gotten it all worked out yet if they didn't find the atrophy in your biopsies. My blood work showed only elevated IGA IgG which is the sensitive marker but not specific...
  2. hollyd
    Hi Everyone, Thanks a lot for your replies. I was definitely eating lots of gluten before my tests and had never gone gluten free until after my tests. I guess I won't ever know if it's celiac or that non-celiac gluten intolerance. I just don't know how you can take all those supplements and have them have NO effect until you've built up 2+ years worth...
  3. hollyd
    I had my biopsies done by a specialist in celiac who is also a researcher in the disease. They were negative, they said they were going to take them from several sites and take a large number of them. There is no evidence of damaged villi. I am now 4 months gluten free and the bloating and "runs" are gone. The only time I have a problem is if I accidentally...
  4. hollyd
    Thanks for your response. I'm still waiting for the 27th for my appt. to talk about all the results with the doc. but I think he said the gastritis was not severe and I've showed no signs of bleeding by inspection or two different occult tests. As I had a lot of difficulty getting enough zinc, until after 2+ years of supplementation as well, I'm thinking...
  5. hollyd
    Thanks TCA. My appt. with him isn't until the 27th so I'll see what he says then but on the phone he said it isn't celiac. I really have no problems being on this diet and just hoping it brings me relief. Holly
  6. hollyd
    Okay, I know this isn't a new situation on the board. What confuses me is that even my blood work was negative except for AGA - IgG which isn't specific for celiac. I had this done in Australia where I live, under the guidance of my doctor who is the leading researcher and doctor on celiac disease in Australia. He has trained the endoscopists in exactly...
  7. hollyd
    Well I heard from my doctor and he got the reports back from the small bowel biopsies which show no villous atrophy. I asked him about the ulcers in the ileum that the doctor doing the scopes found and he apparently had no knowledge of that but said all biopsies found in the small bowel came back normal. I asked why the doctor had told me that and he guesses...
  8. hollyd
    Thanks everybody. Yes, deodenal ulcers are a totally different thing. I've hardly ever used NSAID's in my life and haven't had them at all for a few years. Pixiegirl - does eosinophilic gastroenteritis cause ulcers in the ileum?
  9. hollyd
    Can anyone shed any light on ulcers in the ileum and celiac? I seem to read, if I'm understanding correctly, that there are sometimes benign ulcers associated with celiac called benign ulcerative jejunitis. Again, the diagnosis of celiac isn't in yet, I'm just trying to figure out what's going on with me. Any knowledge on this at all? Thank you.
  10. hollyd
    I just had upper and lower scopes yesterday. Lower is all fine. Many biopsies were taken to look for celiac (won't know for two whole weeks). I have all the symptoms, plain as day. AND, they found ulcers in the ileum (the lowest part of the small intestine). I've been trying to research causes for ulcers in that area and the only thing I seem to find is Crohn...
  11. hollyd
    Hi yunalesca, I live in Australia also. I was getting the worst run around from the GI my former GP sent me to. I had no confidence in her and so joined a yahoo group for celiac and asked for a recommendation for the best GI for celiac in my city. I am now being seen by a celiac specialist who really seems to know his stuff, on recommendations from several...
  12. hollyd
    Thanks everybody:-) So it sounds like whole wheat is worse than the other, maybe that's why I'm so sick, I only eat whole wheat except for pizza or the odd other thing. I bought two boxes of muffin mix LOL, I'd miss those, I guess I should get some chocolate cake, bagels (but you can't get a decent one in Australia where I now live :-( ) but topping up...
  13. hollyd
    Hi All, I'm seeing a celiac specialist and he told me to eat 4 servings of foods with gluten in it per day for 2 weeks prior to my scope. (I am already eating gluten foods, he just wanted me to top up). Are there any foods that are more offending than others in the gluten category? Are whole grains more glutenous than non-whole grains? I want to make sure...
  14. hollyd
    That's good that you made an appt. with the gyn. I would just be concerned that the pink could mean there is blood there and that should always be checked out. I can't see why they'd give you anti-biotics if it's a yeast infection! But let them figure out what it is first. I would stay away from the fruit for now too as fruit has a lot of sugar in it. ...
  15. hollyd
    I am awaiting diagnosis by endoscopy. I am now seeing a celiac specialist and researcher. This specialist has told me that I need to eat 4 servings of glutenous food per day for 2 weeks prior to my test to make sure an accurate result is achieved. That is in addition to eating gluten as I have normally been doing. I just wanted to pass that on. All the...
  16. hollyd
    Wow, very, very interesting. Thanks so much to all who responded. I thought it was a wild shot that it was related but now I see otherwise. Sometimes just having it make some sense is a relief. I'm starting to feel so miserable so much of the time that I hope it's celiac just so I can finally feel better. I'll deal with the diet. Thank you! Holly
  17. hollyd
    I'm on a waiting list for my endoscopy so don't know yet, but am going nuts with fatigue, stomach problems including diarrhea and a wierd flu type thing that comes and goes. I feel achy in my legs and arms like with the flu but it never manifests with respiratory symptoms. I take echinacea to try to ward it off but in a few weeks or so it comes back. It definitely...
  18. hollyd
    Thanks very much George. I'm glad to read again that it does happen that your blood work is negative but you may still have the disease on biopsy because I cannot find any other cause for my symptoms. I still can't get my ferritin above the very lowest number on normal range despite maximum iron supplementation. Gastro symptoms are getting worse, my hair...
  19. hollyd
    I'm confused too. I had AGA IgA, AGA IgG, Endomysial AB and T-glutaminase. What does the AGA stand for in those tests? I wonder if there is a different IgA than what I took?? Holly
  20. hollyd
    Thanks to both of you for the feedback. I didn't want to sit around worried about colon cancer. I'm still trying to work up the nerve to have the tests done although my blood work came back negative. Something is definitely not right. Holly
  21. hollyd
    Can anyone tell me if very narrow and soft stools are commonly a symptom of celiac? I know narrow stools can be a symptom of colon cancer but can also be a symptom of other diseases. Thanks.
  22. hollyd
    Please excuse my ignorance but is it common to have deficiencies in amino acids if you have celiac? I'm just trying to sort out some things re: insomnia and the as yet undiagnosed celiac I may have. I know I'm deficient in certain minerals but wondering if celiacs are deficient in certain amino acids as well. Anyone know? Don't want to waste my money...
  23. hollyd
    Yes, I've had my thyroid checked and it's normal. I guess I'll cross the Enterolab bridge if they can't find any other reason for the zinc deficiency. I'm in Australia, so I'm not sure if you can do it from here. thanks :-)
  24. hollyd
    Can anyone tell me if the blood tests I've had done (mentioned in my previous post) are the "good ones" or are there others I should have done? Thanks!
  25. hollyd
    Thanks Judy and Kmmolina. That's good to know you can be put out. Instructions online say they don't totally put you out because they have to get you to move this way and that. I can't say I feel great about it by any means but I am feeling a bit more reasurred that others say it's not that bad! Thanks again for responding:-) Holly
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