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kkgirl

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Everything posted by kkgirl

  1. kkgirl
    I was dx with mcas in January. Can that cause decreased folds in duodenum. back in 2012 i was dx with celiac so now i am very confused. Does mcas and celiac go together? I also have hasimotos, lupus, eds, and POTS, fructose malsorption so i am very confused.. if anyone know any information on these let me know.
  2. kkgirl
    I like that better. I will try and find a way to post it
  3. kkgirl
    That makes since thanks
  4. kkgirl
    That makes since thanks:)
  5. kkgirl
    I am in a tecnical report writing class that just started this week. I want to write my report about Celiac since i have it along with other food intolerance.. 00 the issue i am having is braking the topic down this is the format we have to post. Example: Purpose: How to use Visual Cues to Assist Autistic Children Questions...
  6. kkgirl
    I just seen your post.i have celiac and can't have dairy proteins or lactose. But fructose a huge issue for me. The dumb thing is the breath test was negative but i was so sick during that test I thought it was going to be positive and I told them I never want to do this test again. Yet it came back negative and they think it was a false negative because...
  7. kkgirl

    ARCHIVED Canker sores

    kkgirl replied to kkgirl's topic in Doctors

    And thanks so much. I'm hoping to get to bottom of everything.. and they are painful. This is just some of them.
  8. kkgirl

    ARCHIVED Canker sores

    kkgirl replied to kkgirl's topic in Doctors

    Yeah the decreased folds are in the 2nd part of duodenum mostly. Who knows about that. It is what it is... and as far as these sores go I'll try lysine. This is just some of the sores in have them all over in my mouth.. it's from yeast?
  9. kkgirl

    ARCHIVED Canker sores

    kkgirl posted a topic in Doctors

    So before going gluten free, I would get canker sores all the time as a kid.. I then became sick by vomiting and diahrrea and stomach bloating. So I went to the doctor and they told me 2 try a gluten free diet for 3 months. I got better and sores went away and all. They told me to stay on the diet. So I did and a yr and a half later they decided to blood...
  10. kkgirl
    Well iv posted a few times on here. So since march fructose and dairy have been a issue. My gi doctor did the fructose test and it was negative but i was supper sick from it.. they did a endoscopy to see if I truly had celiac and it showed I had decreased folds in duodenum but vili were fine (iv been gluten free for 6 years) so with that being said the gi...
  11. kkgirl
    My endoscopy showed i had decreased folds in my duodenum. The biopsy came back and showed that my villi were fine... i have been on a gluten free diet for 6 years because i was just told i was intolerant but never had any testing before. when i eat gluten i get sick for 2 weeks. i came down with issues of other foods in march so they were trying to figure...
  12. kkgirl
    I never worried about cross contamination because i was originally told i was just intolerant. after going gluten free i felt so much better up until this last march. dairy and fructose have been giving me problems but both lactose and fructose test came back negative. this is what my gi doctor emailed me today
  13. kkgirl
    yep ... im really starting to get very frustrated. i called my dietion today and told her what was going on and she said it makes no since that fructose isnt the cause so for right now i want you to keep avoiding it ok... i said ok... i said when i emailed you yesterday i said never mind i did have it then you replied back i thought so! well that was a sike...
  14. kkgirl
    I had the blood test done years ago and it was negative. And they said it was just gluten intolerance so I never worried about cross contamination and all that. In a way I'm hoping something will show up in my biopsies so I will watch the cross contamination and all that of it truly have celiac. I never because sick from it.. but when I do have a bite of...
  15. kkgirl
    So I have been gluten free for 6 years because it made me barf and very sick..... the doctors then just found the cause and said I was gluten intolerance. They did not run any tests at all but I responded very well to the gluten-free diet up until 6 months ago I became getting sick again. Dairy and fructose seem to be the trigger foods I think but the tests...
  16. kkgirl
    Oh man!!!!! It turns out I do not have fructose malabsorption! They had the wrong person yesterday when they told me ........ just want to know what's going on
  17. kkgirl
    Sorry just getting back to u.. I actually did not have a biopsy 6 yrs ago they just found out what was making me sick and they said I was intolerant.. I'm still fighting with the doctors actually had a endoscopy today (still on gluten free) but it showed that my small intestine has decreased folds in duodenum. So they took a biopsy because they said supissus...
  18. kkgirl
    I won't tell your kid haha.. 6 years ago they said I was intolerant to gluten. They didn't even do the testing. After awhile I was completely better on a gluten free diet up until 6 months ago... but then again they didn't test me at all for celiac until i was already gluten free for a year and a half. Then they did the blood work and said again just intolerant...
  19. kkgirl
    I had a endoscopy again today and it showed I have decreased folds in my small intestine.... I was just diagnosed with fructose malabsorption can that cause intestinal damage?? Iv been on a gluten free diet for 6 yrs already but never had a diagnosis for celiac they never did a endoscopy before just said I was intolerant. The...
  20. kkgirl
    I am so confused right now.... 6 years ago I went on gluten free diet... after being on it for the first yr I was 100%better up until 5 months ago in got the "flu" the doctors told me to cut out dairy sonic did and my diarrhea became better but not completely gone would not have it every day tho. I went to the gi doctor and they said to cut out fructose...
  21. kkgirl
    i cant have either of these and im just wondering if others experience the same thing. is it possible to not be able to have all of this? i am going a bit crazy because it does not seem right to me. iv been gluten free for 6 yrs dairy for 2 months and fructose for 3 weeks and it has helped alot. i havent been sick. after going gluten free my symptoms a vomiting...
  22. kkgirl
    I'v been gluten intolerant for 6 yrs but last week I was diagnosed with lactose and fructose intolerance.. it it possible to have all three I heard of having gluten and dairy but never all three... i was tested at the gi doctor. I am to go to a diatrition do they have to run the same tests even if I had them?
  23. kkgirl
    I don't have celiac but doctors or amazed I don't so they told me to fallow the gluten-free diet like I have it... any way I was wondering if one can have corn, corn starch if they have fructose malabsorption. I am so confused on what I can and can't have.. i have an appt next week hopefully with a dietitian... also can you have sugar free stuff since it...
  24. kkgirl
    Thank you so much. I was just wondering about ice creams what kind 2 have alot are made from the coconut.
  25. kkgirl
    I'v posted on here b4... 6 yrs ago I was diagnosed as severely gluten intolerant. ( they were kinda shocked that test for celiac was negative) anyway my symptoms went away up until a few months ago. I went to the gi doctor and they said I can't have dairy or fructose.. * I found that out yesterday, I thought my tests for dairy was neg but guess it was...
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